I have created a database question to help us identify where we all live based on our postal codes. Please take a moment and add your home postal code to the...
Hi, My son is a lucky one and began walking @ 28months! He's always been "duck footed" and a flat foot. NOw, we've noticed that his ankles have "rolled" - or...
Hi Brenda, Liam has flat feet also. When he was younger he used to have
some special orthotic inserts to go inside his boots (supplied by his
physio) to...
dakota's ankles also turn in, as does one of mine. i've noticed that some of the problems/birth defects he has (physical) my sister and i also have. is this...
jasmine jones
iliketoscoot@...
Mar 6, 2007 2:56 am
952
I have added a couple of new functions to the Transglobal Health Community website. They include: Calendar of Events Chat Room Opt in Mailing List and a...
A few years ago I was told that some carriers do show some of the physical
attributes of the condition. I was later told that this wasn't the case. Last time...
Hi Jasmine, Yes, Jack has flat feet and also very weak ankles that turn in-we got them checked and the 'profs' said ther was nothing to worry about. Also Maria...
Hi everyone, Aaron has very strange feet. They are long and narrow and he has the narrowest heel his physiotherapist as every seen. He wears AFO's as his ...
NOEL STUBBS
noel@...
Mar 6, 2007 11:58 am
956
Thanks for the info! Hopefully it's not going to be very involved! That's interesting about females and iron levels and the flat head. I too have iron...
Hi David My son has a working dx of ATR-X and I'm trying to learn as much as I can about it, the various mutations... whatever I can. Partly because of the...
Hi, You are lucky! Jasper, who just turned 7, stands and bears his own weight but cannot balance himself. Our experience is that he has progressed slowly...
Just thought i'd write something as i'm having a bad day today. Mark is being very agressive today hitting all the time he's upstairs in his room at the moment...
Hi My name is Suzett and my son just got a diagnosis of ATRX. Nathaniel is 5 1/2 yrs. old. We live in Massachusetts. Joined to get some info and support from...
Hi Suzett. my name is Yvonne-my son Jack is 10. We had our diagnosis when he was 4. Jack is mobile had limited speech and uses makaton sign language, his...
Hi Amanda, Thanks for that info, I went to see the consultant last week about Jacks aggressive behaviour and they said there was nothing that they can give him...
Hi Suzett, Welcome to the group. Our son Ben will be 13 next week and is on the severely affected side of the spectrum. Ben can't walk or talk and needs to...
... syndrome for short, is one of many genetic conditions that can cause learning difficulties. It is the purpose of this article to describe what is known...
Here's Nathaniel's story. After he was born he was on oxygen for what the dr's thought was pneumonia. He was in our local hospital for one month, during this...
Hi Everyone, Seems the time for bad days. I am having one with Aaron today! He has been really calm and happy since coming out of hospital last month but went...
NOEL STUBBS
noel@...
Mar 12, 2007 3:53 pm
968
I'm sorry to hear about your troubles with the behavior issue. I have had a few with Bear but since I have him on medications, things have been wonderful. He...
Hi Sally, Thanks for e mail. I have contacted Dr gibbons and he thinks because Jack is on the moderate scale of atrx and can speak a little he doesnt think its...
... Hi Yvonne et al, Jasper also has reflux, although since he wasn't displaying classic symptoms we weren't sure about this until some invasive tests two ...
Dear Suzett: Thank you for your story. Although we were lucky to get our diagnosis early -- just before Jasper left hospital at six weeks -- reading about...
see below. This fits with our theory about Jasper's crazy laughing not-sleeping phases. (see my earlier e-mail on reflux). Once the drugs kicked in this...
Hi its Yvonne, Yeh Jack is quite good now. Jack has to eat things that hasnt got a soft slimy consistency. Things that are crisp, fresh goes down ok. Jack...
Hi Yvonne, Wow, that is so interesting...Jasper is just the opposite. His chewing and swallowing abilities were very slow to develop and he's still not great,...
Well we went to the hospital on Monday and Mark was in fine form.He managed to rip up the Consultant's Medical book and pull a large clump out of his dad's...
Hi everyone, Just thought I would write to ask if anyone would like to sponsor, donate or just read Noel's website to do with his sponsored cycle ride from...
