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atr-x · X-Linked Alpha Thalassemia M/R Syndrome
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Messages 918 - 947 of 1249   Oldest  |  < Older  |  Newer >  |  Newest
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918
I don't know how many of you use Yahoo's Instant Messenge but you can add me to yours or join mine if you would like. I use the following email address: ...
David Hughes
rarediseases
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Feb 4, 2007
5:19 am
919
Hi Yvonne, Just read your message. How on earth do you manage on your own all week. You are amazing. I (embarrassingly) broke down at school a couple of...
NOEL STUBBS
noel@...
Send Email
Feb 5, 2007
4:54 pm
920
Sally, I hope Aaron gets better soon. I know all of this is so frustrating. I've been through it, too (the vomiting episodes set off by any little thing and...
mis ery
medmisery
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Feb 5, 2007
5:25 pm
921
Sally, My oldest son takes medication that has really helped him. It took me a long time to find a doctor willing to treat him for the ADHD and behavioral...
Hughes,David H
rarediseases
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Feb 5, 2007
5:48 pm
922
Hi David, Thanks for you e-mail. In one of you last e-mails you referred to Adderall and Respidal so I went off to the doctor with these two names but he ...
NOEL STUBBS
noel@...
Send Email
Feb 5, 2007
8:13 pm
923
Hi sally, Yes it was the worst week I have ever had. I have been invited to go into jacks school today to see the behaviour therapist, to see if she can give...
yvonne smith
ybs04
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Feb 6, 2007
11:41 am
924
Yvonne, I know this sounds like lame advice (don't everybody "boo" me), but if he could be in pain w/ acid reflux, maybe an antacid like Maalox could help. I...
mis ery
medmisery
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Feb 6, 2007
2:28 pm
925
My son Alex (18) is really a doll -BUT when he was not treated for excess stomach acid, he was horrible. He would bite and scratch and yell constantly. He is...
teresa.guthmann@...
u38416
Offline Send Email
Feb 6, 2007
2:36 pm
926
Hi Yvonne, Thanks for your e-mail. It made me laugh when you said you ask your husband if he had a nice break when he came in from work and about you feeling ...
NOEL STUBBS
noel@...
Send Email
Feb 10, 2007
12:19 pm
927
Hi Sally, I'm sorry Aaron and you have had a hard time. I bet you are exhausted. I hope things improve quickly now that you are back home. About the...
mis ery
medmisery
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Feb 10, 2007
3:54 pm
928
Dear Yvonne, i was reading your message about Jack and his behaviour and remembered taking Mark to see a physcologist at a a hospital totally useless, at the...
rhindamanda
Offline Send Email
Feb 12, 2007
1:26 pm
929
Hi thanks for your e mail. Since Jack was about 5 and showing signs of bad behaviour, all the experts have said to me is ' if you dont do something soon he...
yvonne smith
ybs04
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Feb 12, 2007
8:40 pm
930
Dear Yvonne,i was wondering if you get any respite care from social services for Jack. We are lucky where we live that we get hours through the week and a...
rhindamanda
Offline Send Email
Feb 16, 2007
4:38 pm
931
Hi, thanks for your e mail-No we only get 3 hours after school on a monday til 7pm. We then have to collect him. Half term holiday next week. He has just...
yvonne smith
ybs04
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Feb 17, 2007
3:19 pm
932
Hi Yvonne, Oh my god, you say Jack and Aaron could be twins, so could we!! The feelings you describe I have too. Aaron really pushes me sometimes such as the...
NOEL STUBBS
noel@...
Send Email
Feb 17, 2007
5:12 pm
933
I have a boy 29 years old with Atr-x. He will be 30 in August. I also have a 11 year old grandson with Atr-x. He lives in KY. Would like to know if anyone in...
Nancy
ncasecole
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Feb 18, 2007
5:57 am
934
Not sure about Indiana, Tom, but we live in suburban Chicago and I believe there is another family up here around the Midway airport area. Also, we have...
David and Trish Hess
hess265
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Feb 19, 2007
3:01 am
935
Tom, Welcome to our group. My name is David and I have two sons with ATR-X. I am not aware of any girls with the X-linked disorder. If I'm not mistaking,...
David Hughes
rarediseases
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Feb 19, 2007
4:15 am
936
David & Trish & the group: We live South of Terre Haute Indiana. Our son weighs about 105 # is 5'2 if he would stand straight. He walks around the house and...
tcole@...
ncasecole
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Feb 19, 2007
2:35 pm
937
Hello Everyone, I have a grandson, Gage, with ATR-X that lives in the Johnson City, Tenn. area. He is 4 years old and now weighs around 40 lbs. He has a...
Kandy Hast
kandyhast
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Feb 19, 2007
6:42 pm
938
Hi sally, No we are the family from cheltenham!! glad to hear that i'm not the only one!! Sorry its short= Half Term!!!! Yvonne ... New Yahoo! Mail is the...
yvonne smith
ybs04
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Feb 19, 2007
8:02 pm
939
Wow, 105 lbs sounds great and your son's ability to walk around the house could be a big help. Our son Ben has always had trouble putting on weight. Since he...
David and Trish Hess
hess265
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Feb 20, 2007
2:56 am
940
Hi Sally, Whereabouts in Derbyshire are you going to? We live in Derbyshire and would be very happy to meet you all. It will be nice to meet up with someone...
Sheralyn Sharman
wabbz2005
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Feb 20, 2007
10:43 am
941
Hello everyone.... I just wanted to say hi to everyone and tell you about a small problem that Bear has developed. He developed what appeared to be a small...
David Hughes
rarediseases
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Feb 20, 2007
1:22 pm
942
Hi David, Good Luck for this afternoon and try not to worry (easier said than done, I know) We will be thinking of you Sheralyn and family ... problem ... left...
Sheralyn Sharman
wabbz2005
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Feb 20, 2007
1:40 pm
943
Hi Kandy, Enjoyed reading your message about Gage. You are a godsend to your son and daughter in law. Made me smile reading about you teaching Gage to hold...
NOEL STUBBS
noel@...
Send Email
Feb 20, 2007
4:07 pm
944
Hi David, Just seen your message about Bear. Hope all went well at the doctors today and that the outcome of the biopsy is a good one. Thinking of you all. ...
NOEL STUBBS
noel@...
Send Email
Feb 20, 2007
4:18 pm
945
Hi Sheralyn, Sorry got muddled with which family was in Derbyshire. Have noticed one thing from reading these e-mails and that is we all seem to have a sense...
NOEL STUBBS
noel@...
Send Email
Feb 20, 2007
4:22 pm
946
Hi Sally, I agree with you. If we didn't laugh and make fun of the situation then we would all be in the loony bin. Although if Liam is in a noisy, hair...
wabbz
wabbz2005
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Feb 20, 2007
6:01 pm
947
I have created a database question to help us identify where we all live based on our postal codes. Please take a moment and add your home postal code to the...
David Hughes
rarediseases
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Mar 5, 2007
12:00 am
Messages 918 - 947 of 1249   Oldest  |  < Older  |  Newer >  |  Newest
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