Thanks Sally! We have been dealing with stomach issues with Alex for his entire 17+ years! We have a wonderful gastro guy who has in his words (prescribed ...
Our son Ben, 12 years old, had a "cookie swallow" done last week at the hospital. His speech therapist from school wanted us to check and make sure it was...
Hi, Its yvonne mum of Jack (10) Jack has always had trouble with his stomach-some consistancy of food, smells medicine even when he's tierd he will be sick. I...
Dear Matthew and family, Thank you so much for your e-mail which was a great help to us. So sorry to hear Spencer is in hospital. I hope he picks up and is...
NOEL STUBBS
noel@...
Aug 1, 2006 2:41 pm
793
Hi David and Trish, Thanks for your e-mail about the cookie swallow Ben had. It was really helpful to know. I think that if I had faith in the hospital I...
NOEL STUBBS
noel@...
Aug 1, 2006 2:54 pm
794
Hi again Sally! Thank you so much for the news about the rest of your family. It certainly sounds like you have had your hands full with the building of a new...
mis ery
medmisery@...
Aug 3, 2006 4:13 pm
795
Hi Teresa, Not having any luck with the stomach article as the print is too small really to scan and be able to read. Good news though (I may not be a genious...
NOEL STUBBS
noel@...
Aug 3, 2006 7:08 pm
796
My name is Carina and I,m mother of a boy with atr-x he is 8 years old,and another baby boy who pass away on May of this year,he was 6 months old,altough my...
Hi Carina, Your English is just fine so don't worry. I am so sorry to hear
about your little boy did he have atr-x as well? My son is called Liam and is 15....
haven't posted in awhile. i'm jasmine, dakota's sister. http://i7.photobucket.com/albums/y261/jsj4degrees/jazzcoda-1.jpg ^there's a pic of us together in case...
jasmine jones
iliketoscoot@...
Aug 22, 2006 2:52 am
799
My son Luis is a 8 years old boy,and a baby Alejandro who is now an angel watchig over us,he was 6 months old and he was diagnosed with the atr-x before he...
Hi Carina, Its Yvonne Jack's Mum. Jack is 8 and has atrx but is steady on his feet can communicate with limited speech and Makaton sign. He has a problem with...
Hi Jasmine Its Jacks mum who used to e mail your mum Tina. I do hope she and your sister are well. Charlotte my daughter e mailed you yeaterday to see how you...
Just been reading the ATR-X yahoo website and have come across some interesting chats. I have never associated Eamonn's awful bellyaches with the twisted...
Hi, every one I'm Carina Luis mom,could you please sombody told me how to contac Dr. Gibbons ,I tried to look on the old message but I'm not shure if he has a...
i've not gotten an email from charlotte. i wonder if she sent it to the wrong address? my mother and sister are well. how are your three? yvonne smith...
jasmine jones
iliketoscoot@...
Aug 23, 2006 4:22 pm
806
hi jasmine its Charlotte, my email address is brooke003@... if u want to send me an email... be nice to stay in touch. speak soon, love Char xXx Hi Its...
... Makaton signs,because the nex month is my nex son's IPE at school and I would like to now more about,my concern now is in what way my son can be able to...
Shelly, our son Ben (now 12) has always had a problem with constipation. The gas doesn't seem abnormal but when he was a baby we thought he had teething pain...
Thanks for that, I have also contacted Dr Gibbons who has written a paper about this with an Italian doc. Evidently they feel that the ATR-x protein is...
Shelly - My brother, Tim is 32 years old with ATR-X. I remember him laying across my knees and rubbing his back while he went through similar spells. I don't...
Hi everyone, We have just come back from our first holiday abroad with Aaron in France. He was really good and is keeping well at the moment. Just been reading...
NOEL STUBBS
noel@...
Aug 31, 2006 10:57 am
812
Thanks for the responses - Not that I am happy that other poor children suffer but its nice to know Eamonn is not the only one. I too, have kept a food diary...
Hi its yvonne Jacks mum--- could someone give me some info on 'Dr Gibbons paper' what is it ??? Is it something I can show my GP as he has not got any idea at...
Hi Yvonne it is Sally, Aaron's mum. Just read your e-mail about Dr. Gibbons paper. I think you may be referring to the report I was sent about possible ...
NOEL STUBBS
noel@...
Sep 3, 2006 11:12 am
815
Hello Our son James was diagnosed with ATR-X about 4 or 6 years ago. We live in Massachusetts. James will be 18 next month. He has severe mental retardation ...
thx for this article...I could only get the abstract without somehow signing up at this website but this is perfect to share with our Dr, who could then look...
Hi to everyone, I emailed Dr Gibbons about the paper and he attached it and forwarded it to me so I am sure if anyone has trouble getting it just contact him. ...
hi Shally i'm italian, i not speak englesh,my name is Lucia, i have two twins Giuseppe and Francesco 4 years old,with the atr-x sindrome ,the article of the...
