Ciao a tutti, ho aggiunto una nuova fotografia di Alessandro con un suo amico anche lui affetto da sindrome ATRX Alessandro e Mattia sono molto simili anche se...
Hi everyone, Hope everyone is well. As a result of Aaron being so poorly in February our new paediatric consultant has been the first person in seven and a...
NOEL STUBBS
noel@...
Jul 31, 2006 3:38 pm
782
Hi Sally, Liam had a Barium swallow when he was about 5-6 years old. He has
had so much done that I can't really remember what it was for but I think it
was...
To Noel Stubbs, Just read of this report that Dr. Gibbons had sent regarding stomach issues. Is this something that is electronic and could be forwarded on? ...
Hi Sally! I'm sorry that Aaron is having such a difficult time. You and I used to write each other a few years back about alternative medicine...you may not...
mis ery
medmisery@...
Jul 31, 2006 4:54 pm
785
Dear Teresa, I am not too wonderful at this computer business but I will dig out the report from my tidy drawer and try to scan it and send it to you sometime ...
NOEL STUBBS
noel@...
Jul 31, 2006 7:43 pm
786
Hi Kathy, Oh it is so lovely to hear from you. I didn't know whether you were still a member or not and we have had a really busy two years. We have built a...
NOEL STUBBS
noel@...
Jul 31, 2006 7:46 pm
787
Hi Sheralyn, Thanks for your message. Did the barium swallow show up the damage to Liam's oesophagus or show whether he needed any surgery or anything. I ...
NOEL STUBBS
noel@...
Jul 31, 2006 7:47 pm
788
Sally, We are in Houston, TX and presently going through gastro issues as well. Our son, Spencer, is 21 months old and currently in the hospital. He was ...
Thanks Sally! We have been dealing with stomach issues with Alex for his entire 17+ years! We have a wonderful gastro guy who has in his words (prescribed ...
Our son Ben, 12 years old, had a "cookie swallow" done last week at the hospital. His speech therapist from school wanted us to check and make sure it was...
Hi, Its yvonne mum of Jack (10) Jack has always had trouble with his stomach-some consistancy of food, smells medicine even when he's tierd he will be sick. I...
Dear Matthew and family, Thank you so much for your e-mail which was a great help to us. So sorry to hear Spencer is in hospital. I hope he picks up and is...
NOEL STUBBS
noel@...
Aug 1, 2006 2:41 pm
793
Hi David and Trish, Thanks for your e-mail about the cookie swallow Ben had. It was really helpful to know. I think that if I had faith in the hospital I...
NOEL STUBBS
noel@...
Aug 1, 2006 2:54 pm
794
Hi again Sally! Thank you so much for the news about the rest of your family. It certainly sounds like you have had your hands full with the building of a new...
mis ery
medmisery@...
Aug 3, 2006 4:13 pm
795
Hi Teresa, Not having any luck with the stomach article as the print is too small really to scan and be able to read. Good news though (I may not be a genious...
NOEL STUBBS
noel@...
Aug 3, 2006 7:08 pm
796
My name is Carina and I,m mother of a boy with atr-x he is 8 years old,and another baby boy who pass away on May of this year,he was 6 months old,altough my...
Hi Carina, Your English is just fine so don't worry. I am so sorry to hear
about your little boy did he have atr-x as well? My son is called Liam and is 15....
haven't posted in awhile. i'm jasmine, dakota's sister. http://i7.photobucket.com/albums/y261/jsj4degrees/jazzcoda-1.jpg ^there's a pic of us together in case...
jasmine jones
iliketoscoot@...
Aug 22, 2006 2:52 am
799
My son Luis is a 8 years old boy,and a baby Alejandro who is now an angel watchig over us,he was 6 months old and he was diagnosed with the atr-x before he...
Hi Carina, Its Yvonne Jack's Mum. Jack is 8 and has atrx but is steady on his feet can communicate with limited speech and Makaton sign. He has a problem with...
Hi Jasmine Its Jacks mum who used to e mail your mum Tina. I do hope she and your sister are well. Charlotte my daughter e mailed you yeaterday to see how you...
Just been reading the ATR-X yahoo website and have come across some interesting chats. I have never associated Eamonn's awful bellyaches with the twisted...
Hi, every one I'm Carina Luis mom,could you please sombody told me how to contac Dr. Gibbons ,I tried to look on the old message but I'm not shure if he has a...
i've not gotten an email from charlotte. i wonder if she sent it to the wrong address? my mother and sister are well. how are your three? yvonne smith...
jasmine jones
iliketoscoot@...
Aug 23, 2006 4:22 pm
806
hi jasmine its Charlotte, my email address is brooke003@... if u want to send me an email... be nice to stay in touch. speak soon, love Char xXx Hi Its...
... Makaton signs,because the nex month is my nex son's IPE at school and I would like to now more about,my concern now is in what way my son can be able to...
Shelly, our son Ben (now 12) has always had a problem with constipation. The gas doesn't seem abnormal but when he was a baby we thought he had teething pain...
Thanks for that, I have also contacted Dr Gibbons who has written a paper about this with an Italian doc. Evidently they feel that the ATR-x protein is...
