According to Babelfish, that's "most expensive parents, I have sent you some photos of Alexander". Computer translaters are screwy, but you can get the jist. ...
Hi Everyone I wanted to send out a big boquet of cyber flowers to Sally (mum to Aaron) and Aaron. Poor Aaron has been in hospital for the last 2 weeks,...
Alessandro is really sweet. Thanks for sharing the pictures. Love Shazza XX mum to Jarod 7 ... From: Monica Dominioni To: atr-x@yahoogroups.com Sent: Saturday,...
hi all, my name is mike my partners donna and our wonderful son is thomas. we come from st helens in england. Thomas is 15 months old and was born prem (10...
Hi Mike Donna & Thomas, You must be feeling like you're on a rollacoaster at the moment. We are all here for you. Perhaps I am the closest being in England,...
Hi Mike, Donna & Thomas Welcome to the group, I think you will find we are all a helpful and
friendly bunch. I know you are probably in shock at the moment but...
We are looking into ATR-X as a possible diagnosis for my 2 year old son, Gage. His major characteristics are: severe developmental delay, hypotonia, seizure...
Hi, I have read your e mail alot sounds like atrx but I havent known of blindness although my son (9) has glasses. He also had a mri but nothing was found. The...
My son, Barak (age 12) has some visual problems. He has what is called "Coloboma's" (holes in the retina) in both eyes. In his right eye, it includes the...
Thanks for the info. My son, Alex is known to have depth perception problems and has always looked at things peripherally. Do you know if the Coloboma's can...
Teresa, Any eye doctor can diagnose coloboma's. When they look into the pupil of the eye and examine the retina, they would see white holes where the sclera...
Welcome I looked at the photos and I saw alot of similarities with my son. We too have not have offical confirmation of his Dx. Much of their symptoms are...
Thanks for your response. No, my son does not have behavior problems, but he is severly impaired so he can't really do anything to misbehave. He can't talk...
Hi everyone, We now have Aaron out of hospital and he has been given high calorie desserts and liquids and his weight is back up. I just wondered if any other...
NOEL STUBBS
noel@...
Mar 25, 2006 7:29 pm
761
Noel, I'm glad to hear Aaron is out of the hospital. Both Bear (age 12) and Zechariah (age10) weigth about the same. Both weight about 55 lbs or 24 kg. Bear...
hi our son is thomas and we have had loads of trouble with thomas's weight. thomas was born prem at 30 wks and only weighed 1.18kg and has been slow to gain...
Hi, Thanks for replying and telling us about Thomas. It was suggested that Aaron had a mickey button 4 years ago when he was really ill and lost lots of weight...
NOEL STUBBS
noel@...
Mar 26, 2006 7:44 pm
764
hi they wanted to give thomas a mickey button to top him up during the night and we also had concerns about thomas being sick or not feeding properly the day...
Barak, my 12 year old, had a mic-key and Nissan fundoplycation surgery when he was 10 months old due to "failure to thrive". He had it up until he was 9 years...
Dear Donna, Mike and Thomas, Thanks again for your message. Guess what, Aaron went to bed last night!!! He has slept all day today too!!! He now has his...
NOEL STUBBS
noel@...
Mar 27, 2006 3:58 pm
767
Hi David and family, Thank you so much for your messages and the information you have given us. You really are a great help to this group. You will probably...
NOEL STUBBS
noel@...
Mar 27, 2006 4:02 pm
768
Sally, I'm glad to hear that his rested last night. I give my boys vitamin C to help them when they are sick. It seems to work a little. Don't under estimate...
hi sally glad to here that aaron has had a good nights sleep. {hope he keeps it up} when i was asking had you spoke to your genetist with regards to how he...
Hi David, Its Jack's mum Yvonne. I've just looked at the photos and Zach looks just like Jack. we all couldn't believe it when we saw the likeness!! Gorgeous...
My brother, Tim, doesn't eat when he doesn't feel well. He had a Nissen when he was nine (he turned 32 last week), but they didn't leave a feeding tube in....
Do any of your kids have gingival hyperplasia or hypertrophy (overgrowth of gum tissue) due to the anemia? Thanks, Susan Mom of Gage, 2 - undiagnosed -...
Susan, No, my sons don't have this problem. They do have microdentia with large gaps between their teeth. Barak "Bear's" teeth do not lineup well at all....
Hi its Yvonne mother of Jack, He has spaced out teeth with large gaps but nothing else.He has trouble with meat and doesnt wish to eat meat so I just keep him...
Hi Susan, Aaron has large gaps between his teeth and as David says in his e-mail about his boys, Aaron's teeth do not meet. His back teeth are ground right...
