Hello everyone, Tomorrow is the day we take Eamonn to have a PH test as well as checking his swallow reflex to ascertain if a fundoplitation (??)is necessary....
Shelly, Our oldest son had this procedure done when he was 10 months old. He was diagnosed with failure to thrive and they discovered that he had a problem...
Hi Atrx Parents My Name is Yvonne from England. My son Jack is 9 and has been diagnosed with atrx since he was 4. Does anyone have problems with challenging...
Hi Yvonne, Welcome to the group! I am sure you will find the other parents experiences with our children very helpful. We have a son called Aaron who is now...
NOEL STUBBS
noel@...
Jan 6, 2006 6:26 pm
715
Hi, thanks for e mailing me I thought I was the only one coping in england with atrx!! My son Jack is 9, we new he had atrx when he was 4. I have 3 daughters 2...
Yvonne, Welcome to our support community. My name is David and I am the founder of this group, as well as, the Global Health Network. I have two sons both...
Yvonne, We live in Plano, TX USA, a suburb of Dallas. There are three families with ATR-X sons that live in our state that I am aware of. Two of us are about...
Hi Yvonne I'm Shazza from Australia. I have a 7 year old who is believed to have ATR-X and a seizure disorder called SMEI. Jarod can be a bit of a handful at...
Hello, I'm the mother of Eric, age 11, who also has ATRX. I just realized that when Eric rocks in his w/c, he wants me to get pushing! He wants some kind of...
Ann & Don Allen
adallen@...
Jan 7, 2006 12:25 am
720
MessageHi Ann I know what you mean. I've always known why he rocks, he just doesn't like being in his wheelchair, who would. It's just that he's doing it at...
Hi Everyone, When we go out and Liam is in his buggy he rocks backwards and forwards to
try and move his chair along himself and can get quite a way by doing...
Hi Sally and Noel, I didn't realise you were only in Yorkshire. We are in Derbyshire. Do you
find Aaron has stages of behaviour? Liam will have an obsession...
Hi Sheralyn, Thank you for your e-mail. I certainly agree with you about the "stages". Aaron too appears to go through different stages when he is around...
NOEL STUBBS
noel@...
Jan 7, 2006 11:55 am
724
Dear Yvonne and Martyn, Just seen your message on the site. I know the feeling of thinking you may be alone coping with ATRX in England. There appear to be...
NOEL STUBBS
noel@...
Jan 7, 2006 12:07 pm
725
Hi david, Yes I know Dr Gibbons I've met him 3 times he usually see's Jack Yearly-just so he can learn more things I suppose. Jack Mobile and uses Makaton sign...
Hi its Yvonne yes I find Jack is exactly the same he goes through stages and then all of a sudden a new one crops up!! Jack knows how to work peoples strings...
Liam doesn't suck his thumb but he had a dummy until he was about 12 and
would quite happily steal one from a passing baby now, given half a chance. Sheralyn ...
Hope all have had a lovely Xmas. My little girl starts year 1 in two weeks and is very excited. Eamonn is still vomiting/refluxing constantly and as a...
Hi Everyone, This is Yvonne , I've just come home from jack's school and I feel so upset. Jack's behavior has been so bad that they asked me into his school...
Hi Yvonne, Take no notice of these insensitive people, They don't have to look after
Jack 24/7. I had a similar situation with Liam. The school he was at,...
Hi its yvonne, thanks for your response, it did make me feel better, but I woke up this morning feeling incredibly tierd. I think it really took it out of...
Dear Yvonne, Have you had a good cry - I would have, that is after having told the teacher/school nurse/action worker exactly what I thought of them! I ...
NOEL STUBBS
noel@...
Jan 14, 2006 3:33 pm
735
Hi Sheralyn, Just seen your reply to Yvonne. Totally agree. Aaron too loves pulling hair and his speciality at the moment is nipping very small amounts of...
NOEL STUBBS
noel@...
Jan 14, 2006 3:40 pm
736
Hi Yvonne, I have just looked at the pic of Jack (he is soooo cute) he really doesn't
look like a child with atr-x which I am sure causes more problems as some...
Hi Yvonne Got to agree with the other mums here, they have no right to pass judgement on how you raise your child. Now if you where neglecting Jack or bringing...
I don't know how many of you have problems with relationships with your family and friends but I'm suspecting that you all do. Our boys take a lot of our...
Hi David, I dont know whether you saw my e mail a few days ago, but having read your e mail I dont think I've got anything to moan about.You are remarkable in...
