Hello Everyone, Greetings to all, and hope all is well with your families. We are expecting another grandchild (a boy) according to the amnio. We would like...
Stan Larson
mlarson1@...
Aug 20, 2005 2:12 am
667
Mary, My wife and I have two son's both affected by ATR-X. They are similarities in how it has affected them but there are also some differences. Both boys...
I found it very interesting to read about your boy's. We have a 31 year old son who was just diagnosed with ATRX this summer. It was a relief after all these...
We would love to speak with you. This is all so new to us and we are trying to learn whatever we can about ATRX and what the future might hold for Tim. Our...
Hi Everyone, I am new to this site even after years of surfing the net for information I have only just found it. I have a 14 year old son called Liam who has...
Hi Sheralyn And welcome. I wish you luck with your new babes screening, I hope it all comes back without any problems. Cheers Shazza mum to Jarod 7 ... From:...
Hi Shazza, Thankyou very much. I am not getting my hopes up as I already had an
unfavourable result earlier in the year. I am hoping that I will be proved...
Praying for good results for you, Kathy ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
mis ery
medmisery@...
Sep 14, 2005 1:14 am
674
Just to thank everyone who sent me good wishes and to let you know that the result was not good news. Thanks again Sheralyn...
So sorry to hear that Sheralyn, it must be quite a blow. How are you feeling about it all? I can't imagine what you are going through, just know we are here if...
Thanks a lot Shazza. It's nice to speak to others that will understand a
bit more than people with 'normal' children. I am feeling ok at the minute
but was...
Hi Sheralyn, I just read your email and don't quite know what to say except that I am praying for you to feel good about everything. Hugs, Kathy ... ...
mis ery
medmisery@...
Sep 19, 2005 3:13 pm
678
Hi Sheralyn, Just been reading our e-mails - a little behind on them. So sorry to hear your news and just to let you know we are thinking of you. Sally and...
NOEL STUBBS
noel@...
Sep 19, 2005 5:33 pm
679
Hi, Thanks for the thoughts from everyone. Is your little boy the one in the pictures that are posted under AJ Stubbs? Sheralyn ... From: NOEL STUBBS Date:...
Sheralyn, We are sorry to hear about the test results. I know you must be a little frighten right now but their is light at the other end of the tunnel. As...
... Sheralyn Sheralyn, I'm so sorry to hear about your test results. You will be in our thoughts and prayers over the next few months. We have a 31 year old...
Hi everybody! We are from Finland and the translation program does not have a finnish language,so i´m quite bad in english,sorry! We have a 7 years(today!)old...
Katja, Welcome to our support community. Your english is very good. I'm sure everyone can understand it without too much trouble. My Finnish is not good at...
You have odd wording, but it's understandable. Maybe the epilepsy surgery accidentally removed something important? Or maybe the seizures caused him to loose...
Hello to ATR-X parents, families and friends, I have been a member of this site for quite some time and have tried to keep up to date with issues and events....
Hi Shelley I can't relate to many of your issues I'm afraid. Although at this stage Jarod hasn't been definitively diagnosed with ATR-X yet, so this might...
Hi Shelley, I will try and answer a few of your questions using our own personal
experiences. Liam sat unaided at about 4 years old. His physio used to prop...
Thank you to the responses. To Shazza, why on earth wont they give Jarod the HbH test? We are in Queensland and our health system is pretty crude compared to...
Hi again Shelly, Liam is small for his age (thankfully, as I always joke that I will be an 80
year old woman being dragged round by the hair by my caveman of a...
Hi Shelly Just to clarify, Jarod is being tested by Dr Gibbons and had already received a positive for the Hbh inclusions here in Adelaide, before his sample...
Hello Shelly, My name is David and my wife is Linda. I am the founder of this group and we have two sons both affected by ATR-X. The description you provided...
Well Eamonn is at respite tonight. A lovely lady who lives about 10 minutes away. She is a real kindred spirit who was fostered lots of children and...
Hi Shelly I hope you enjoy your well deserved break and best of luck with the IVF. Cheers Shazza XX ... From: mitoeamonn To: atr-x@yahoogroups.com Sent:...
Hi Shelly, Don't worry about what you call me I will answer to anything.
Wouldn't you try naturally for a child and have the tests done at 11 weeks
or would...
I hope I don't offend you but why don't you want to have another ATR- X kid? I am an autistic person and a few years back I was being bullied badly and hoping...
