I heard from our genetics counselor today that based on the pictures and/or prior lab tests, that Dr. Gibbons does indeed want a sample of our little one's...
Good luck with that Sharon. I hope the results come in quickly. Love Shazza XX ... From: oldcstore2000 To: atr-x@yahoogroups.com Sent: Saturday, April 23, 2005...
Sharon: Good luck on the testing. I'm sure David can talk to you more about the timeframe required for diagnosis of the blood. Quite honestly, I don't know...
Hughes,Linda Kay
lkhughes@...
Apr 26, 2005 12:28 pm
658
Sharon, The actual test to confirm ATR-X takes less than a couple of days. I believe Dr. Gibbons uses the blood test along with the boys physical ...
Linda, Does this mean you are human? :) We all want to be saints but sometimes life gets in the way. :\ Hugs to all of you, Kathy ... ...
mis ery
medmisery@...
Apr 27, 2005 4:13 pm
660
... do not know if you é capitato also to you a period of iperattività of the children, Alexander has made 1 week to sleep 1-2 hours for day, it was most...
This problem of "not sleeping" for periods of time sounds just like what our son Alex experiences. He is now 16 and this has gone on for at least 7 years. He...
Here is the translation in Italian: Questo problema "di sonno" per i periodi di tempo suona giusto come che cosa il nostro figlio Alex sperimenta. Ora è 16 e...
Hi Teresa, Just reading my e-mails. Having a wild time with Aaron at the moment. Seems he has the same sleep problem as Alex does. Aaron's brother seems to ...
NOEL STUBBS
noel@...
May 21, 2005 7:58 pm
664
Resource for translation assistance: Just to let you all know, there are a couple of resources that I use to help in translating information/messages. Here...
Engels: Hello Dr. Gibbons and all, Does it happen that when children with the ATR-x syndrome have/get epilepsy, they lack of oxygen get herewith? So yes, when...
Dieta Heij
dieta_heij@...
Jul 16, 2005 9:43 am
666
Hello Everyone, Greetings to all, and hope all is well with your families. We are expecting another grandchild (a boy) according to the amnio. We would like...
Stan Larson
mlarson1@...
Aug 20, 2005 2:12 am
667
Mary, My wife and I have two son's both affected by ATR-X. They are similarities in how it has affected them but there are also some differences. Both boys...
I found it very interesting to read about your boy's. We have a 31 year old son who was just diagnosed with ATRX this summer. It was a relief after all these...
We would love to speak with you. This is all so new to us and we are trying to learn whatever we can about ATRX and what the future might hold for Tim. Our...
Hi Everyone, I am new to this site even after years of surfing the net for information I have only just found it. I have a 14 year old son called Liam who has...
Hi Sheralyn And welcome. I wish you luck with your new babes screening, I hope it all comes back without any problems. Cheers Shazza mum to Jarod 7 ... From:...
Hi Shazza, Thankyou very much. I am not getting my hopes up as I already had an
unfavourable result earlier in the year. I am hoping that I will be proved...
Praying for good results for you, Kathy ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
mis ery
medmisery@...
Sep 14, 2005 1:14 am
674
Just to thank everyone who sent me good wishes and to let you know that the result was not good news. Thanks again Sheralyn...
So sorry to hear that Sheralyn, it must be quite a blow. How are you feeling about it all? I can't imagine what you are going through, just know we are here if...
Thanks a lot Shazza. It's nice to speak to others that will understand a
bit more than people with 'normal' children. I am feeling ok at the minute
but was...
Hi Sheralyn, I just read your email and don't quite know what to say except that I am praying for you to feel good about everything. Hugs, Kathy ... ...
mis ery
medmisery@...
Sep 19, 2005 3:13 pm
678
Hi Sheralyn, Just been reading our e-mails - a little behind on them. So sorry to hear your news and just to let you know we are thinking of you. Sally and...
NOEL STUBBS
noel@...
Sep 19, 2005 5:33 pm
679
Hi, Thanks for the thoughts from everyone. Is your little boy the one in the pictures that are posted under AJ Stubbs? Sheralyn ... From: NOEL STUBBS Date:...
Sheralyn, We are sorry to hear about the test results. I know you must be a little frighten right now but their is light at the other end of the tunnel. As...
... Sheralyn Sheralyn, I'm so sorry to hear about your test results. You will be in our thoughts and prayers over the next few months. We have a 31 year old...
Hi everybody! We are from Finland and the translation program does not have a finnish language,so i´m quite bad in english,sorry! We have a 7 years(today!)old...
Katja, Welcome to our support community. Your english is very good. I'm sure everyone can understand it without too much trouble. My Finnish is not good at...
You have odd wording, but it's understandable. Maybe the epilepsy surgery accidentally removed something important? Or maybe the seizures caused him to loose...
