Dr. Gibbons, Zechariah was having problem recovering from his illness here lately. His temperature was back up to 106.2 the day before yesterday. We still do...
Dr. Gibbons, Did you mean that the important protein factor that our sons are missing is actually called "ATRX"? Or is it called something else? I saw on the...
mis ery
medmisery@...
Mar 3, 2005 3:25 pm
647
... Dr. Gibbons, Zechariah was having problem recovering from his illness here lately. His temperature was back up to 106.2 the day before yesterday. We...
ciao a tutti Ale é fiero di presentare la sua sorellina Emma nata il 04.07.2004, anche lei purtroppo č portatrice sana della sindrome ATR_X, all' inizio era...
Hi everyone, Ale [short for Alessandro] is proud to introduce his sister, Emma, born on July 4, 2004. Unfortunately, she, too, is a healthy carrier of ATR-X...
Hi Monica and Renato Congratulations on the safe arival of Emma. I'm sorry to hear she is also a carrier. Love Shazza XX mum to Jarod 6 ... From: David Hughes ...
ciao a tutti, alla fine del mese Alessandro fa 7 anni, non so se vi é capitato anche a voi un periodo di iperattivitą dei bambini, Alessandro ha fatto 1...
English? ... _________________________________________________________________ Chatten met je online vrienden via MSN Messenger. http://messenger.msn.nl/...
Dieta Heij
dieta_heij@...
Mar 30, 2005 12:06 pm
653
purtroppo no,uso il traduttore ... _________________________________________________________________ Ricevi messaggi indesiderati? Combatti lo spam con MSN...
Here's a translation: hello to all, to the end of the month Alexander it makes 7 years, I do not know if you é capitato also to you a period of iperattivitą...
I heard from our genetics counselor today that based on the pictures and/or prior lab tests, that Dr. Gibbons does indeed want a sample of our little one's...
Good luck with that Sharon. I hope the results come in quickly. Love Shazza XX ... From: oldcstore2000 To: atr-x@yahoogroups.com Sent: Saturday, April 23, 2005...
Sharon: Good luck on the testing. I'm sure David can talk to you more about the timeframe required for diagnosis of the blood. Quite honestly, I don't know...
Hughes,Linda Kay
lkhughes@...
Apr 26, 2005 12:28 pm
658
Sharon, The actual test to confirm ATR-X takes less than a couple of days. I believe Dr. Gibbons uses the blood test along with the boys physical ...
Linda, Does this mean you are human? :) We all want to be saints but sometimes life gets in the way. :\ Hugs to all of you, Kathy ... ...
mis ery
medmisery@...
Apr 27, 2005 4:13 pm
660
... do not know if you é capitato also to you a period of iperattivitą of the children, Alexander has made 1 week to sleep 1-2 hours for day, it was most...
This problem of "not sleeping" for periods of time sounds just like what our son Alex experiences. He is now 16 and this has gone on for at least 7 years. He...
Here is the translation in Italian: Questo problema "di sonno" per i periodi di tempo suona giusto come che cosa il nostro figlio Alex sperimenta. Ora č 16 e...
Hi Teresa, Just reading my e-mails. Having a wild time with Aaron at the moment. Seems he has the same sleep problem as Alex does. Aaron's brother seems to ...
NOEL STUBBS
noel@...
May 21, 2005 7:58 pm
664
Resource for translation assistance: Just to let you all know, there are a couple of resources that I use to help in translating information/messages. Here...
Engels: Hello Dr. Gibbons and all, Does it happen that when children with the ATR-x syndrome have/get epilepsy, they lack of oxygen get herewith? So yes, when...
Dieta Heij
dieta_heij@...
Jul 16, 2005 9:43 am
666
Hello Everyone, Greetings to all, and hope all is well with your families. We are expecting another grandchild (a boy) according to the amnio. We would like...
Stan Larson
mlarson1@...
Aug 20, 2005 2:12 am
667
Mary, My wife and I have two son's both affected by ATR-X. They are similarities in how it has affected them but there are also some differences. Both boys...
I found it very interesting to read about your boy's. We have a 31 year old son who was just diagnosed with ATRX this summer. It was a relief after all these...
We would love to speak with you. This is all so new to us and we are trying to learn whatever we can about ATRX and what the future might hold for Tim. Our...
Hi Everyone, I am new to this site even after years of surfing the net for information I have only just found it. I have a 14 year old son called Liam who has...
Hi Sheralyn And welcome. I wish you luck with your new babes screening, I hope it all comes back without any problems. Cheers Shazza mum to Jarod 7 ... From:...
Hi Shazza, Thankyou very much. I am not getting my hopes up as I already had an
unfavourable result earlier in the year. I am hoping that I will be proved...
Praying for good results for you, Kathy ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
mis ery
medmisery@...
Sep 14, 2005 1:14 am
674
Just to thank everyone who sent me good wishes and to let you know that the result was not good news. Thanks again Sheralyn...
