Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /David...
atr-x@yahoogroups.com
Jan 21, 2005 9:39 pm
613
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG00005.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:41 pm
614
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG_0011.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:42 pm
615
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG_0012.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:47 pm
616
Great photo's of the boys. Thanks for sharing. Love Shazza XX ... From: atr-x@yahoogroups.com To: atr-x@yahoogroups.com Sent: Saturday, January 22, 2005 8:12...
We were told by a genetics researcher last year that our 4 year old grandson appeared to have ATR-X. We were in the middle of investigating another syndrome we...
Hi Sharon We are in the same situation. Jarod is being tested for a couple of mutations not just for ATR-X. There are 2 tests for ATR-X. One is to determine...
Hi Sharon, Our grandson Gavin was clinically diagnosed with ATR-X. The DNA test has not as yet confirmed or ruled out ATR-X, but the lab is still studying it...
Stan Larson
mlarson1@...
Jan 26, 2005 4:04 am
620
Absolutely gorgeous boys. I cannot believe the way the boys teeth are, the bottom ones are almost identical to Aaron's. Aaron's new teeth (he has three at...
NOEL STUBBS
noel@...
Jan 26, 2005 5:36 pm
621
Hi Sally & Everyone else I was just having a look at your boys photos, they are a handsome pair. I see similarities with Aaron's and Jarod's hands. It's...
hi Shazza and Jarod, Thanks for your e-mail. Aaron hasn't got any chipped teeth. His very back teeth however are more or less totally flat due to the severe...
NOEL STUBBS
noel@...
Jan 30, 2005 6:33 pm
623
Hi Sally Luckily Jarod doesn't grind his teeth so at least that's one less thing to worry about. Have you heard of the collis curve tooth brush. That might be...
Hi Guys I was wondering how many of the mums if any have Thalassemia Trait. I'm aware that the gene responsible for ATR-X comes from our boys mums, but was...
Hi Shazza, Just read your e-mail - doesn't make much sense to me but just thought I would e-mail you to let you know that I was tested to see if I was a...
NOEL STUBBS
noel@...
Feb 10, 2005 8:26 pm
626
Hi Sally! I hope you are all doing well. I am way behind on reading the egroup mail but just wanted to say hi to you and hope to catch up later. Love, Kathy...
mis ery
medmisery@...
Feb 11, 2005 3:36 pm
627
Shazza, That is a neat idea about the toothbrush! Hope to get caught up soon w/ you. Love, Kathy ... __________________________________ Do you Yahoo!? The...
mis ery
medmisery@...
Feb 11, 2005 3:40 pm
628
Hi Sally It's just something going through my head. I know it must be rather scary in there...lol. What I mean by Thalassemia trait supposedly is where you...
Hi Kathy, Lovely to hear from you - will e-mail you properly when Aaron is back at school. At the moment he is amusing us. I have given him a cooking pan and...
NOEL STUBBS
noel@...
Feb 14, 2005 7:31 pm
630
Let me try and explain what I understand about Alpha Thalassemia. There are 4 genes that regulate Alpha Globulin synthesis in our blood. If a person is...
Last Tuesday morning, Zechariah was running a fever of 106.4. I took him to the emergency room and he was admitted and kept until Wednesday evening. He is at...
Our son Zechariah has what the doctor's call "Non-Epileptic Myoclonic Jerks." These "jerks" look a lot like seizures. They are very distict. He usually gets...
Hi David and Linda I hope Zechariah improves soon. Love Shazza XX ... From: David Hughes To: atr-x@yahoogroups.com Sent: Saturday, February 19, 2005 1:05 AM ...
Thanks David, I think once his tests come back I'll see if I can get him in to see a thalassemia expert. From the sounds of it it's a very complicated issue. ...
Dear David and Linda, So sorry to hear about Zechariah. I hope he picks up soon. Aaron has had bacterial infections in his urinary tract and strep at the...
NOEL STUBBS
noel@...
Feb 19, 2005 5:39 pm
637
David and Linda, Just wanted to say we are thinking about Zechariah and your family...it is scary when your kids go thru times like this. Hope he gets back to...
Zechariah is out of the hospital and is doing much better. Both the boys went off to school today and were happy about going. Thanks for keeping him in your...
Hi Linda and David, So glad Zechariah is better. Kathy Jones __________________________________ Do you Yahoo!? The all-new My Yahoo! - Get yours free! ...
mis ery
medmisery@...
Feb 22, 2005 2:20 am
640
That's great to hear. Love Shazza XX ... From: David Hughes To: atr-x@yahoogroups.com Sent: Tuesday, February 22, 2005 2:21 AM Subject: [atr-x] Report on...
... Let me try and explain what I understand about Alpha Thalassemia. There are 4 genes that regulate Alpha Globulin synthesis in our blood. If a person is...
