This kind of information is so helpful. It is really great to hear what goals Jasper may possibly attain. Thank you for writing that; it gave me a real lift...
I have three little boys and the oldest, who is 5, has had plenty of problems with this lately. He will vomit during school for no apparent reason and they...
Now Dakota used to MAKE himself vomit. He would do it so often that he stayed dehydrated so he had to have a surgery to stop any kind of vomiting. ... ...
jasmine jones
iliketoscoot@...
Nov 2, 2004 5:30 pm
601
My son Alex (16) would always vomit quite a bit. We looked into having a "Nissan" (not sure how to spell it) where they put a restrictive band around the top...
Dakota also has dental problems. He grinds his teeth. He used to do it constantly, but he doesn't do it as often know usually unless he is sick, but he hardly...
jasmine jones
iliketoscoot@...
Nov 2, 2004 8:56 pm
603
I am new to this group. My husband and I have 3 sons (5,4, and 2) who have all had various delays. We recently saw a geneticist and he immediately said that he...
Dakota used to have grand mal seizures when he was younger, but doesn't anymore. He is also aggressive like you said Lance is. And he used to vomit ...
I just realized that there is a wealth of information that has already been posted about seizures on this board, so please accept my apologies! I will post...
My son, Eric started having grand mal seizures when he was 9 years old. He had 3 and then was put on Topamax--he hasn't had a seizure since then. ... From:...
Don and Ann Allen
adallen@...
Nov 5, 2004 2:39 am
607
Hi Katie From what I can gather, any seizure types can be present in kids with ATR-X, but the literature talks allot about myoclonic seizures. Jarod is not...
Katie, Has your son who is vomiting just started any new medication? Perhaps he is having an adverse reaction to something. ?? Someone on another egroup I...
mis ery
medmisery@...
Nov 8, 2004 8:51 pm
609
I have been working on the re-design of the Global Health Network's home website. The site is yet to be published. Since I feel like you all are a part of my...
Hi David, Linda and kids I love the flash portion of the site, well done! It appears to be very functional and easy to navigate. I think you've got a winner...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /David...
atr-x@yahoogroups.com
Jan 21, 2005 9:39 pm
613
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG00005.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:41 pm
614
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG_0011.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:42 pm
615
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /IMG_0012.JPG ...
atr-x@yahoogroups.com
Jan 21, 2005 9:47 pm
616
Great photo's of the boys. Thanks for sharing. Love Shazza XX ... From: atr-x@yahoogroups.com To: atr-x@yahoogroups.com Sent: Saturday, January 22, 2005 8:12...
We were told by a genetics researcher last year that our 4 year old grandson appeared to have ATR-X. We were in the middle of investigating another syndrome we...
Hi Sharon We are in the same situation. Jarod is being tested for a couple of mutations not just for ATR-X. There are 2 tests for ATR-X. One is to determine...
Hi Sharon, Our grandson Gavin was clinically diagnosed with ATR-X. The DNA test has not as yet confirmed or ruled out ATR-X, but the lab is still studying it...
Stan Larson
mlarson1@...
Jan 26, 2005 4:04 am
620
Absolutely gorgeous boys. I cannot believe the way the boys teeth are, the bottom ones are almost identical to Aaron's. Aaron's new teeth (he has three at...
NOEL STUBBS
noel@...
Jan 26, 2005 5:36 pm
621
Hi Sally & Everyone else I was just having a look at your boys photos, they are a handsome pair. I see similarities with Aaron's and Jarod's hands. It's...
hi Shazza and Jarod, Thanks for your e-mail. Aaron hasn't got any chipped teeth. His very back teeth however are more or less totally flat due to the severe...
NOEL STUBBS
noel@...
Jan 30, 2005 6:33 pm
623
Hi Sally Luckily Jarod doesn't grind his teeth so at least that's one less thing to worry about. Have you heard of the collis curve tooth brush. That might be...
Hi Guys I was wondering how many of the mums if any have Thalassemia Trait. I'm aware that the gene responsible for ATR-X comes from our boys mums, but was...
Hi Shazza, Just read your e-mail - doesn't make much sense to me but just thought I would e-mail you to let you know that I was tested to see if I was a...
NOEL STUBBS
noel@...
Feb 10, 2005 8:26 pm
626
Hi Sally! I hope you are all doing well. I am way behind on reading the egroup mail but just wanted to say hi to you and hope to catch up later. Love, Kathy...
mis ery
medmisery@...
Feb 11, 2005 3:36 pm
627
Shazza, That is a neat idea about the toothbrush! Hope to get caught up soon w/ you. Love, Kathy ... __________________________________ Do you Yahoo!? The...
