Hello Everyone, Over the Holidays another ATR-X family that I had met through this site stopped in St. Paul, Minn while traveling! It was so fun to have our ...
Guthmann, Teresa
teresa.guthmann@...
Jan 2, 2001 10:12 pm
58
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Barak7.jpg ...
atr-x@egroups.com
Jan 6, 2001 6:20 am
59
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Zechariah5.jpg ...
atr-x@egroups.com
Jan 6, 2001 6:21 am
60
My name is Helen and I live in Paris, France. My sister is actually the one who has a son age 5 with ATR-X. He is a happy little boy and the joy of my life. ...
helene clement
heleneclement@...
Feb 28, 2001 6:07 pm
61
Hi my name is Dena and I have two sons with ATR-X and I also have a web site based on them please go to it and sign my guestbook at the bottom to tell me what...
DENA HUNT
mickeyd29@...
Mar 2, 2001 5:46 pm
62
Hello Helen, My name is Ann Allen. My husband Don and I have an 8 year old girl and our son Eric, age 6, has ATR-X. He too, is extremely happy and loving....
Ann and Don
adallen@...
Mar 3, 2001 8:55 pm
63
Helen- My son, Benjamin, is 3 1/2 years old and was diagnosed with ATRX around his 2nd birthday. He has had delays since birth, but luckily has been quite ...
pdbollman@...
Mar 3, 2001 8:56 pm
64
I would like to share information about a new ATR-X family. She was refered to us by the MUMS - National Parent to Parent Network. She called me on the...
David Hughes
davidhu@...
Mar 6, 2001 12:43 am
65
Greeting to all,...
EMorrone@...
Mar 6, 2001 7:05 pm
66
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /ATRXarticle.jpg ...
atr-x@yahoogroups.com
Mar 14, 2001 2:31 pm
67
Hello, My name is Gerrit Jan Kamphuis and our son Kaay (3.5 yr old) is diagnosed with the ATR-X syndrome. He lives together with his mother Annie and his...
Gerrit Jan Kamphuis
gjkamphuis@...
Mar 20, 2001 3:06 am
68
Hello, My name is Ann Allen and our son, Eric, who is 7 years old has ATR-X. My son went through a terrible period in his life where he could no longer digest...
Ann and Don
adallen@...
Mar 21, 2001 3:45 am
69
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Zech2001.jpg ...
atr-x@yahoogroups.com
Apr 5, 2001 5:21 pm
70
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Barak2001.jpg ...
atr-x@yahoogroups.com
Apr 24, 2001 4:00 pm
71
Does anyone know if our boys would benefit from being on a special diet? David...
David Hughes
rarediseases@...
Apr 24, 2001 4:11 pm
72
my boys are such picky eaters. I doubt they would rise to the challane. Good Luck! leslie morrone...
EMorrone@...
May 4, 2001 5:54 pm
73
Leslie, Do you have more than one boy with ATR-X? We are blessed with two of them ourselves. *S* David ... ...
David Hughes
davidhu@...
May 5, 2001 1:29 pm
74
Yes, Anthony is 10 and Dominic is 6. I understand that the second child is often less affected. No one understands how this can be, but our Dominic is much...
EMorrone@...
May 5, 2001 5:46 pm
75
Our youngest, Zechariah age 5 is actually much slower in his development than his brother. Barak 'Bear' is actually very high functioning. He seems to...
David Hughes
davidhu@...
May 8, 2001 10:46 am
76
My son was diagnosed about 3 months ago. I do not understand all the details of ATR-X but I am learning. Kenny is 19 months old but is at a development level...
Roberta Rogstad
bertarcf@...
May 9, 2001 4:31 am
77
ANDY by Ann Gibson Did you turn to look as we walked along the street? did you notice that our Andy“s so unsteady on his feet? Did you maybe see he has a...
David Hughes
davidhu@...
May 9, 2001 3:20 pm
78
Hi Roberta, The best information that I have ever read about ATR-X was from a medical library where a friend and I spent a day doing research. The articles...
Guthmann, Teresa
teresa.guthmann@...
May 9, 2001 3:22 pm
79
Hi ya'll : I am Texan, how can I be any other way than southern? *smile* I also have gone through the weariness and self degradation of assuming that I was not...
David Hughes
davidhu@...
May 9, 2001 4:40 pm
80
Dear Dayna, I wanted to comment on what a beautiful writer you are! Do you write as a hobby--professionally---or do your words actually flow out of your mouth...
Ann and Don
adallen@...
May 11, 2001 3:02 am
81
ATR-X has many complexities. Does any of your children have trouble with their speaking? My 19 month old has started speech therapy because he does not make...
Roberta Rogstad
bertarcf@...
May 15, 2001 2:37 pm
82
Roberta, It is my understanding few of our sons will ever talk or even say a single word. Both our sons have never said a word. They laugh, cry and make a...
David Hughes
rarediseases@...
May 15, 2001 2:52 pm
83
Roberta, It is my understanding few of our sons will ever talk or even say a single word. Both our sons have never said a word. They laugh, cry and make a...
David Hughes
rarediseases@...
May 15, 2001 2:54 pm
84
Roberta- My son, Ben, is almost 4 and also doesn't speak. He has been in speech therapy for a couple of years, and we have had luck with some signs. He can ...
pdbollman@...
May 16, 2001 4:14 am
85
Mi chiamo Monica e sono la mamma di Alessandro di 3 anni a cui hanno diagnosticato la sindrome ATR-X, vorrei avere delle notizie pił dettagliate su questa...
Monica Dominioni
monicadominioni@...
Jun 1, 2001 5:41 pm
86
I recently received the following message and would like to pass it on to you all. I have added Linlea Armstrong to our membership and you may send your...
