Eric sounds precious. Thanks for sharing. He sounds somewhat like Jerrod used to be before he started slowing down a few years ago. He always wore out the...
mis ery
medmisery@...
Oct 1, 2004 2:56 pm
565
Our oldest son Anthony has had seizures since birth, much like Jarob....Anthony is currently on Trilepetil(spelling is wrong), Clorazapate and Lamictal. Still...
EMorrone@...
Oct 5, 2004 1:38 am
566
We have two boys suspected of ATR-X. Dominic is now 10 and has a very large vocabulary and is getting better every day, he has a speech teacher and we work...
EMorrone@...
Oct 5, 2004 1:43 am
567
Hi Leslie I've heard the full moon theory quite a bit from other parents of kids with epilepsy. The full moon theory, has something to do with the electrical...
The following atr-x poll is now closed. Here are the final results: POLL QUESTION: Would you like to leave the archived messages open for the public to read...
atr-x@yahoogroups.com
Oct 7, 2004 7:54 am
569
Hi Guys I've heard some great story's about fish oil and finally thought I'd take the plunge and give them a go with Jarod. Has anyone else tried them? I'm not...
Hi All Thanks for setting that up David, I think the results are very interesting. It's good to know what every one thinks. If anyone would like to take me up...
on 10/12/04 1:38 AM, Shazza at sillysausage0@... wrote: Hi Guys I've heard some great story's about fish oil and finally thought I'd take the plunge...
Jasper's mom here, dipping back in again after much computer trouble and too little time to keep up here as much as I'd like. Jasper is now 4 1/2 and in his...
Thanks Lisa That's so helpful. I keep hearing about Eye Q but I don't believe they sell it here in Australia. I think I'll just have to chance it with the...
Hi Guys I'm in the market for a new jogger but I'm not getting very far with my research. I was wondering if any of you have used one that you might like to...
Shazza, We have a two-seat jogger for the boys. Both boys enjoy going for strolls and rides to the park. It is rather large but we have a Durango so it's not...
Thanks David and Linda Is it by chance the Baby Jogger brand? If so I'm guessing it's the special needs 5. They aren't making it at the moment, but it does...
My name is Carole Quinto, and I live in East Meadow (Long Island), New York with my husband, Vito, and our two children. Our 18 month old son, Michael, was...
Hi Carole -- I think many of the people in this group can relate to your story. Our son Ben is now 10 and what we didn't appreciate when he was Michael's age...
Dakota used to not be able to go to the bathroom by himself either, but that's because the form of cerebral palsy he had caused him not to have any muscle...
jasmine jones
iliketoscoot@...
Oct 27, 2004 2:09 am
580
Our grandchild has been on ventilation pretty much since birth (two months). We need to know if shallow breathing disorders in ATR-X babies have a history of...
Stan Larson
mlarson1@...
Oct 27, 2004 4:06 am
581
Dakota used to have to be on some kind of machine because he would stop breathing in his sleep. He's 14 now and does fine. [Non-text portions of this message...
Hi Carole My son Jarod has just tested positive for the Hbh inclusions and now they are doing the atrx gene testing. I'm not sure if I can help at the moment,...
Hi Mary I'm sorry I can't help you. Jarod's never been on a ventilator. I'm so sorry to hear your grandchild is having to go through all that. It must be a...
Dear Carole, We received our diagnosis for Jasper when he was just five weeks old and even though that was a little over four and a half years ago, the...
Our son Ben did have "sleep apnea" as an infant that required using a monitor (read loud alarm!) for awhile at home. However, he grew out of it before long...
Yea Coda had sleep apnea and that's why he had to be on one. I think he still has it a little bit, but it's not like it used to be. [Non-text portions of this...
Hi Carole, My son (also named Jerrod) is 33 and has atr-x. There seems to be a fairly wide range of capability w/in this syndrome. My son doesn't walk or...
mis ery
medmisery@...
Oct 29, 2004 2:03 am
588
Hi Mary, My 33 yr old son Jerrod seems to always breathe in a very shallow way. I can't say that it has gotten worse or better, though. When Jerrod was much...
mis ery
medmisery@...
Oct 29, 2004 2:09 am
589
Dakota is 14 now. He's only been walking for about the past 4 or 5 years. And only since he's been at his school has he been walking without assistance. He's...
Hi Carole, Have just been reading your e-mail about Michael. We have a son called Aaron who will be 6 years old next Friday. Aaron was diagnosed at 2 years of...
NOEL STUBBS
noel@...
Oct 29, 2004 7:11 pm
591
Your son Aaron sounds just like Dakota was he was younger. It took him a while to learn to sit up, and he used to wear AFOs. At his school they had this ...
I just wanted to add to the discussion what our guys have accomplished. Bear is 11 yrs old. He is so much like a normal little boy that I sometimes probably...
Hughes,Linda Kay
lkhughes@...
Oct 29, 2004 9:00 pm
593
Thank you to everyone who responded to my message about my son Michael. I enjoy learning about your children, and it is truly a comfort to know that my family...
