If any of you are interested in having your child's picture on the front page, please let me know. The photo would first need to be uploaded in the "FILES"...
Jasmine, I have received any stories from our members so I don't know if there is any that will get included. I'm hoping Dr. Gibbons may have some patients...
Hi David, On the front page of what? Cameron's aide at school has taken some really good pictures of him recently, so we might be interested. Please let me...
The boys have been doing well. The usual....minor sinus infections now and then. Please add Camerons picture to the FILES section of the group and I will ...
Hi all, Just thought I'd ask for some positive vibes to be sent our way. Cameron was flown by helicopter to Children's Hospital yesterday. He has pneumonia in...
Very sorry to hear about Cameron's hospitalization...we went thru something similar in August with Ben (9) where one lung was partially collapsed and he was on...
I can do better than good vibes. I will send strong prayers your way and have others pray too. We'll prayer for his health and your strength. Get some rest...
Don and Ann Allen
adallen@...
Dec 17, 2003 4:32 am
356
Dear Sandy, We are so sorry to hear about Cameron being hospitalised. We wish him a speedy recovery. These wonderful boys are very strong and Aaron (our...
NOEL STUBBS
noel@...
Dec 17, 2003 6:39 pm
357
Auguri di buon Natale e felice Anno nuovo da Biagio, Lucia, Vincenza ed i gemelli Giuseppe e Francesco. Un augurio particolare di pronta guarigione al piccolo...
I think I just goofed. I was searching the net for more info on ATR-X and I came across the rare disease sight. At that moment, I'd forgotten I'd been there...
Brenda Funari
tfunari@...
Dec 18, 2003 11:57 pm
359
Our many prayers to Cameron and all of you. How is he doing today? Our little one spent most of December in hospital some time back and I remember how hard it...
Enter your vote today! A new poll has been created for the atr-x group: How many of you have children that have learned to say a word or two? o Ours does! o...
atr-x@yahoogroups.com
Dec 19, 2003 2:16 pm
361
Enter your vote today! A new poll has been created for the atr-x group: My child or children exhibit the following: o Severe learning difficulties o...
atr-x@yahoogroups.com
Dec 19, 2003 3:20 pm
362
Hi Sandy, More prayers here for Cameron and the rest of your family... Kathy Jones __________________________________ Do you Yahoo!? Free Pop-Up Blocker - Get...
mis ery
medmisery@...
Dec 21, 2003 1:12 am
363
Hi All, First off I would like to say a huge "Thank-you" to all of you for all your kind words, thoughts and prayers for Cameron! That is what is so great...
Merry Christmas to all!!! We brought Dakota home today, and he is spending the next few days at home if all goes well. He has already shown some aggression...
jasmine jones
iliketoscoot@...
Dec 25, 2003 4:49 am
365
Hello and happy New Years to everyone. I hope you are all doing well. We just recently returned from visiting family in OK. The boys cousin just got a new...
Hi David, I think that Cameron may have episodes of myoclonic activity as well. Can you describe in words, (the best you can) what Zechariah's body is doing...
Sandy, I'm glad to hear that Cameron is doing much better and pray he continues to improve. How long has he been in the hospital now? Does it look like he...
Hughes,David Huston
dhhughes@...
Jan 8, 2004 2:18 pm
368
Sandy and David and all, So glad that someone started this conversation. Alex definitely does this. We have always felt that it was something that he wanted...
Hi everyone, My nephew who also has ATR-X does something like this, too. He holds his breath and if I remember correctly, kind of rolls his eyes. He also...
mis ery
medmisery@...
Jan 12, 2004 3:46 pm
370
Yes Alex does walk some. He wears AFO's and has a very unsteady gait but he can walk as far as a block (with someone right next to him). He crawls well and...
Wow! I wish Jerrod could walk. From time to time, I dream that he is walking and doing all sorts of neat things. :) How old was he when he started? ... ...
mis ery
medmisery@...
Jan 14, 2004 1:54 am
372
I should have added that when Jerrod and Tommy and all these affected w/ ATR-X get to heaven I feel they will walk and run and enjoy the presence of God along...
mis ery
medmisery@...
Jan 14, 2004 2:00 am
373
Ciao sono Lucia la zia del piccolo Giuseppe di 6 anni.Vorrei sapere che età hanno i piccoli che lei conosce, se camminano, se parlano,se hanno il pannolino,...
Kathy, Hi, I'm David's wife, Linda Hughes. I don't get on the computer at home alot. I'm on it so much at work, it's kind of the last thing I want to do when...
I personal feel like it is God who has shared these angels with us. They love to laugh, they have no fears and have the ability to love more than we have ever...
We are very blessed, indeed! ... From: David Hughes <OurHughesFamily@...> To: <atr-x@yahoogroups.com> Sent: Tuesday, January 20, 2004 3:13 PM Subject:...
Don and Ann Allen
adallen@...
Jan 22, 2004 2:41 am
377
Hi Linda, I just now read your nice email and thank you for writing. I am not able to get on the computer every day so if you write and don't hear back for a...
mis ery
medmisery@...
Jan 23, 2004 5:11 pm
378
Hi Everyone~ We had an appointment yesterday with Kenny's geneticist, and we have come to the conclusion that Kenny does not have ATR-X. He may actually have...
