It has been a long time since I visited. I just wanted to brag about my little Kenny. He is now 4 years old and remains a loveable kid. He is small, about...
Wow! Kenny is doing really well! That is wonderful. How long will it be before you find out his diagnosis? I wonder if there are others out there that are ...
mis ery
medmisery@...
Nov 7, 2003 10:35 pm
328
I'm really happy for you. My brother, Dakota didn't start walking until he was about 8. And he is 13 now. He still has problems with balance, though. I...
jasmine jones
iliketoscoot@...
Nov 8, 2003 2:02 am
329
As things usually take with research, the diagnosis may take some time. The research is being done in the Netherlands. Kenny's blood was sent in May of this...
Hello to everybody. This is my first message. I'm an Italian MD attending to the Specialization School in Child and Adolescent Neurology and Psychiatry, at the...
Carissimo Diego, noi siamo una famiglia che abita nel Canton Ticino in Svizzera e abbiamo un bambino di 5 anni e mezzo con la sindrome ATR-X, se hai bisogno di...
Carissimi amici, siamo i genitori di due gemelli di 19 mesi affetti da ATRX, non abbiamo potuto scrivere tempestivamente perchè abbiamo avuto dei problemi con...
Cara Jolanda abbiamo smarrito il tuo indirizzo e-mail a causa di un problema con il PC, perciò mandiamo il nostro messaggio al gruppo, con la spreanza che tu...
One of the best sites I have found for helping to translate can be found at: http://www.worldlingo.com <http://www.worldlingo.com/> You can use this site to...
Hughes,David Huston
dhhughes@...
Nov 17, 2003 2:10 pm
335
Dr. Mugno, Ho trasmesso appena questo messaggio a Lucia. Lascilo prego sapere se traducesse abbastanza bene affinchè lei capisca. David Hughes ... ...
Ho trasmesso appena questo messaggio a Lucia. Lascilo prego sapere se traducesse abbastanza bene affinchè lei capisca Lucia, Lascilo prego sapere se potete...
Recently our genetic dr. informed us that he believes our son is a strong candidate for ATRX diagnosis. We will be undergoing further test (blood) to help...
The Global Health Network along with LMNO Productions (The Learning Channel) is interested in talking to you about featuring someone on their "Amazing Medical...
Hello, I just wanted to say hello and welcome. Your son sounds delightful. There are some on here who will probably share their experiences w/ you and can be...
mis ery
medmisery@...
Nov 21, 2003 4:12 pm
341
Is that consideration for any of the ATRX families? I think that would be really interesting. There was an inspirational article done in Woman's Day about...
jasmine jones
iliketoscoot@...
Nov 21, 2003 10:07 pm
342
It's quite miraculous. He began (well, I observed them for the first time) at 7 months. He suffers with Partial Secondary Generalized seizures. They were...
I've read your message. It sounds like it could be benefical and informative. Our dx. of ATR-X is not 'CONFIRMED' 100% so I doubt they'd be interested. If...
I just wanted to say hello. Thank you for sharing your news. I'm am just so thrilled to be reading all these stories and seeing the similarities to our life!...
I spoke to my mother about it last night, and she is really interested and excited. She continued asking me questions, and I didn't know what to tell her,...
jasmine jones
iliketoscoot@...
Nov 22, 2003 7:22 pm
346
I'm interested in learning more about seizures. - Which kind of seizures do ur children have and how they were diagnosed? - What did the medical doctors said...
Sono Lucia, la zia del piccolo Giuseppe di 5 anni e mezzo affetto da ATRX .Sono felice di poter comunicare con le famiglie ,per potersi confrontare, sono del...
troverete in "files" il mio file"documentazione.com".In questo ci sono tutte le notizie relative al caso di mio nipote,dalla gravidanza ad oggi,spero vi sara'...
If any of you are interested in having your child's picture on the front page, please let me know. The photo would first need to be uploaded in the "FILES"...
Jasmine, I have received any stories from our members so I don't know if there is any that will get included. I'm hoping Dr. Gibbons may have some patients...
Hi David, On the front page of what? Cameron's aide at school has taken some really good pictures of him recently, so we might be interested. Please let me...
The boys have been doing well. The usual....minor sinus infections now and then. Please add Camerons picture to the FILES section of the group and I will ...
Hi all, Just thought I'd ask for some positive vibes to be sent our way. Cameron was flown by helicopter to Children's Hospital yesterday. He has pneumonia in...
Very sorry to hear about Cameron's hospitalization...we went thru something similar in August with Ben (9) where one lung was partially collapsed and he was on...
I can do better than good vibes. I will send strong prayers your way and have others pray too. We'll prayer for his health and your strength. Get some rest...
Don and Ann Allen
adallen@...
Dec 17, 2003 4:32 am
356
Dear Sandy, We are so sorry to hear about Cameron being hospitalised. We wish him a speedy recovery. These wonderful boys are very strong and Aaron (our...
