Search the web
Sign In
New User? Sign Up
atr-x · X-Linked Alpha Thalassemia M/R Syndrome
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.

Messages

  Messages Help
Advanced
Messages 273 - 302 of 1259   Oldest  |  < Older  |  Newer >  |  Newest
Messages: Simplify | Expand   (Group by Topic) Author Sort by Date ^
273
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Virtual World of...
atr-x@yahoogroups.com
Send Email
Jun 27, 2003
6:54 pm
274
I will be out of the office starting June 27, 2003 and will not return until July 1, 2003. I will respond to your message when I return....
Nancy Bradel
tomdani02
Offline Send Email
Jun 27, 2003
6:57 pm
275
Very exciting news here...we have started putting Jasper on the potty and from the third day onwards he has produced every day since (for over a week)!!! I...
lisa.beck@...
lisabeck63
Offline Send Email
Jul 1, 2003
10:12 pm
276
My brother, Dakota, is almost 13. He's not quite poty trsained, and due to his aggressiveness, he had to be placed in a year round school for children with...
jasmine jones
iliketoscoot@...
Send Email
Jul 2, 2003
7:51 pm
277
That is great news for Jasper going to the potty. My son is 6, and sounds similar to Dakota. Micah tends to get #2 stuff out of his pull up, and get it all...
Stephen Lodge
stephenm002@...
Send Email
Jul 4, 2003
6:25 am
278
I will be out of the office starting July 3, 2003 and will not return until July 8, 2003. I will respond to your message when I return....
Nancy Bradel
tomdani02
Offline Send Email
Jul 4, 2003
6:27 am
279
I am the mother of a 15 year old ATR-X child. When the diagnosis was made years ago, we were told there wasn't much information available. Just this past year...
kathleenjane2003
kathleenjane...
Offline Send Email
Jul 4, 2003
8:11 pm
280
Our 9 yr old son Benjamin had spinal fusion surgery last week to straighten his back and that seems to be healing normally. However, on Saturday night he...
hess265
Offline Send Email
Aug 20, 2003
4:46 pm
281
Hi, I'm so sorry to hear about your son, Benjamin! Our son, Eric, also age 9, has had a feeding tube since he was a year and a half old. He had a ...
Don and Ann Allen
adallen@...
Send Email
Aug 20, 2003
8:12 pm
282
My brother had scar tissue built up in hie esophogus due to constant vomiting. The feeding tube was not necessary. He just had a surgery that kept him from...
jasmine jones
iliketoscoot@...
Send Email
Aug 20, 2003
8:55 pm
283
I would suggest talking to the doctors about having a mic-key put in if this seems to be a chronic problem for your son. Our son had one put in when he was 10...
OurHughesFamily@...
rarediseases
Offline Send Email
Aug 21, 2003
2:58 am
284
Hi, I am writing an magizine article about David Hughes. He is the director of the International Rare Disease Support Network and runs ...
Magan
magan03_37
Offline Send Email
Aug 29, 2003
3:20 pm
285
I will be out of the office starting August 28, 2003 and will not return until September 2, 2003. I will respond to your message when I return....
Nancy Bradel
tomdani02
Offline Send Email
Aug 29, 2003
3:24 pm
286
Megan, Hi, I am the Founder of the Global Health Network ( http://www.GlobalHealthNetwork.org )and the International Rare Disease Support Network ...
OurHughesFamily@...
rarediseases
Offline Send Email
Aug 30, 2003
10:38 pm
287
... Dear Kathleen, Welcome to the group. I'm just now catching up with my e-mail as the kids and I have been on a long visit to my parents' in the states (we...
lisa.beck@...
lisabeck63
Offline Send Email
Sep 2, 2003
7:40 pm
288
Hi Everyone, My son Alex is almost 15 and has drooled since birth. I would say that he drools less than before but he still needs to wear a bib all the time. ...
Teresa Guthmann
u38416
Offline Send Email
Sep 3, 2003
6:24 pm
289
Are all of your boys in school? And is there a problem with aggression among the boys? My brother, Dakota, 13, got too agressive for us to handle, and he was...
jasmine jones
iliketoscoot@...
Send Email
Sep 3, 2003
9:43 pm
290
Just curious Jasmine, what kind of aggression does your son have? My son is only 6 and I'm having a hard time with his aggressions too. Thanks, Myra ... From:...
Stephen Lodge
stephenm002@...
Send Email
Sep 4, 2003
1:29 am
291
Well, he's my brother, but he bites, pulls hair, and pinches. But he will also kick. He's not only outwardly aggressive, but he also hurts himself. He will...
jasmine jones
iliketoscoot@...
Send Email
Sep 4, 2003
12:50 pm
292
Hi Jasmine, My name is Nancy Bradel and I have a 7 year old son Tommy which has not been yet diagnoised with ATRX, but has alot of the similar characterics of ...
Nancy Bradel
tomdani02
Offline Send Email
Sep 4, 2003
2:32 pm
293
Hi Jasmine, and Nancy, Thank you both for your response. I don't feel all alone now. My son too sounds exactly like what you both are going through. He will...
Stephen Lodge
stephenm002@...
Send Email
Sep 4, 2003
5:28 pm
294
My brother has had the fundoplication, and we haven't had any reflux problems since then. One thing though is that scar tissue has built up severely, and we...
jasmine jones
iliketoscoot@...
Send Email
Sep 4, 2003
7:25 pm
295
Yes, my brother does get aggressive when he is sick or feels bad. When my mother or someone in my family at home is tense, or angry, I think he senses it,...
jasmine jones
iliketoscoot@...
Send Email
Sep 4, 2003
7:28 pm
296
Jasmine, I do spank my son, he understands that and usually gets very sad after I spank him. Most of the time he is just extremely tired so after a spanking...
Nancy Bradel
tomdani02
Offline Send Email
Sep 5, 2003
2:10 pm
297
Yes. We have our own ways of dealing with him, I was just wondering what works with other boys. My brother isn't very high functioning, and I think sometimes...
jasmine jones
iliketoscoot@...
Send Email
Sep 5, 2003
6:47 pm
298
I'm confused, Nancy. Do you spank during aggression, hold him tightly, use a stern voice, or do all of the above? ... From: jasmine jones To:...
Don and Ann Allen
adallen@...
Send Email
Sep 6, 2003
12:35 am
299
I can't bite my tongue any longer...Yelling or spanking will only add to the overwhelming sensory inputs and add to the stress causing the problem in the first...
Don and Ann Allen
adallen@...
Send Email
Sep 6, 2003
12:49 am
300
I agree with you. When my mom spanks my brother, it only makes him worse, and he gets more aggressive instead of less aggressive. And sometimes my dad will...
jasmine jones
iliketoscoot@...
Send Email
Sep 6, 2003
1:34 am
301
Don & Ann, I first use a stern voice which sometimes will work, therefore no further action is needed. Other times, I first use a stern voice and hold him ...
Nancy Bradel
tomdani02
Offline Send Email
Sep 8, 2003
2:05 pm
302
Don/Ann, My son understands alot more then some of the other children effected with ATRX, and when my son is in danger of hurting himself, he has to understand...
Nancy Bradel
tomdani02
Offline Send Email
Sep 8, 2003
2:20 pm
Messages 273 - 302 of 1259   Oldest  |  < Older  |  Newer >  |  Newest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2007 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help