Our son Ben who just turned 9 on March 15 was diagnosed with seizures in Jan. 2003. Ben's teachers at school called me just before Christmas and said they had...
Ann, I have two sons both affected by ATR-X. My youngest, Zechariah, has what appears to be seizures but they are not seizures. The doctors refer to the them...
Thank you so much for your response, David. Eric had a second seizure and is scheduled for an MRI this week. I'll share your information with the neurologist....
Don and Ann Allen
adallen@...
May 24, 2003 6:10 pm
272
Hello everyone, After the first few sleepless months of new motherhood with Jasper's little sister Christy followed by a few frustrating internet-less months...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the atr-x group. File : /Virtual World of...
atr-x@yahoogroups.com
Jun 27, 2003 6:54 pm
274
I will be out of the office starting June 27, 2003 and will not return until July 1, 2003. I will respond to your message when I return....
Very exciting news here...we have started putting Jasper on the potty and from the third day onwards he has produced every day since (for over a week)!!! I...
My brother, Dakota, is almost 13. He's not quite poty trsained, and due to his aggressiveness, he had to be placed in a year round school for children with...
jasmine jones
iliketoscoot@...
Jul 2, 2003 7:51 pm
277
That is great news for Jasper going to the potty. My son is 6, and sounds similar to Dakota. Micah tends to get #2 stuff out of his pull up, and get it all...
Stephen Lodge
stephenm002@...
Jul 4, 2003 6:25 am
278
I will be out of the office starting July 3, 2003 and will not return until July 8, 2003. I will respond to your message when I return....
I am the mother of a 15 year old ATR-X child. When the diagnosis was made years ago, we were told there wasn't much information available. Just this past year...
Our 9 yr old son Benjamin had spinal fusion surgery last week to straighten his back and that seems to be healing normally. However, on Saturday night he...
Hi, I'm so sorry to hear about your son, Benjamin! Our son, Eric, also age 9, has had a feeding tube since he was a year and a half old. He had a ...
Don and Ann Allen
adallen@...
Aug 20, 2003 8:12 pm
282
My brother had scar tissue built up in hie esophogus due to constant vomiting. The feeding tube was not necessary. He just had a surgery that kept him from...
jasmine jones
iliketoscoot@...
Aug 20, 2003 8:55 pm
283
I would suggest talking to the doctors about having a mic-key put in if this seems to be a chronic problem for your son. Our son had one put in when he was 10...
... Dear Kathleen, Welcome to the group. I'm just now catching up with my e-mail as the kids and I have been on a long visit to my parents' in the states (we...
Hi Everyone, My son Alex is almost 15 and has drooled since birth. I would say that he drools less than before but he still needs to wear a bib all the time. ...
Are all of your boys in school? And is there a problem with aggression among the boys? My brother, Dakota, 13, got too agressive for us to handle, and he was...
jasmine jones
iliketoscoot@...
Sep 3, 2003 9:43 pm
290
Just curious Jasmine, what kind of aggression does your son have? My son is only 6 and I'm having a hard time with his aggressions too. Thanks, Myra ... From:...
Stephen Lodge
stephenm002@...
Sep 4, 2003 1:29 am
291
Well, he's my brother, but he bites, pulls hair, and pinches. But he will also kick. He's not only outwardly aggressive, but he also hurts himself. He will...
jasmine jones
iliketoscoot@...
Sep 4, 2003 12:50 pm
292
Hi Jasmine, My name is Nancy Bradel and I have a 7 year old son Tommy which has not been yet diagnoised with ATRX, but has alot of the similar characterics of ...
Hi Jasmine, and Nancy, Thank you both for your response. I don't feel all alone now. My son too sounds exactly like what you both are going through. He will...
Stephen Lodge
stephenm002@...
Sep 4, 2003 5:28 pm
294
My brother has had the fundoplication, and we haven't had any reflux problems since then. One thing though is that scar tissue has built up severely, and we...
jasmine jones
iliketoscoot@...
Sep 4, 2003 7:25 pm
295
Yes, my brother does get aggressive when he is sick or feels bad. When my mother or someone in my family at home is tense, or angry, I think he senses it,...
jasmine jones
iliketoscoot@...
Sep 4, 2003 7:28 pm
296
Jasmine, I do spank my son, he understands that and usually gets very sad after I spank him. Most of the time he is just extremely tired so after a spanking...
Yes. We have our own ways of dealing with him, I was just wondering what works with other boys. My brother isn't very high functioning, and I think sometimes...
