Dear Sally, Noel, Joshua and Aaron, Thank you for your note. Our therapists at DuPage Easter Seals say that any standing/assisted walking(Ben needs a great...
Dear Kathy, I just buy the lactose free milk in the milk section of the store. It comes in half gallon containers and is anywhere from $2.60 a 1/2 gal. -...
Type O+ blood for my Alex. If you find out some food tips from your book - please pass them on. I have found that my Alex cannot tolerate chocolate, much dairy...
Hi Teresa and All, I am behind on answering msgs because had to get my daughter ready for her senior trip, but will just reply quickly to this: This is...
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Mar 4, 2003 4:47 am
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Dear Leslie and Jack, Wow!! Your boys are doing so well! That is wonderful!! I never realized an ATR-X child could be so advanced. I wonder if that program...
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Mar 4, 2003 4:57 am
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Hello to everyone I've just joined the email group and find myself in an unusual position. I am actually a health care professional dealing with children with...
Hello Elizabeth, Welcome to the group! It is always great to have a new person's perspective on things, so thanks for joining. Your parents shouldn't feel...
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Mar 4, 2003 10:02 pm
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Dear Ann, I realized that I never thanked you for replying to my message. I appreciated reading about your experience. My son also had a fundoplication but...
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Mar 5, 2003 3:39 am
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Hi Teresa, I need to ask a question about the meds you mentioned in an old email. How do you know Alex has some damage to his esophagus? Did they do an...
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Mar 5, 2003 3:53 am
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Hi Nancy, I wanted to tell you how wonderful it is that Tommy is so advanced! You are probably *very* excited about all that he can do. When will your...
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Mar 5, 2003 4:05 am
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Hi Kathy, Alex just saw his gastro guy last week. He did have an endoscopy (several times) and the damage to his esophogus is better but not gone. He is...
Thank you for this, Teresa. Jerrod took Prilosec (and then Nexium) for about maybe 8 yrs, that is why I hate for him to take another similar drug for awhile....
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Mar 5, 2003 10:42 pm
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Hi again Teresa, Looking at this book Eat Right For Your Type by Peter J. D'Adamo, I will try to relate parts that you might find interesting. Some of this...
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Mar 6, 2003 12:56 am
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Thank you, Trish. ... __________________________________________________ Do you Yahoo!? Yahoo! Tax Center - forms, calculators, tips, more ...
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Mar 6, 2003 12:58 am
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The book goes through each kind of food group (meats, oils, fruits, veggies, etc) and gives a list of those that are most beneficial, those that are neutral...
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Mar 6, 2003 5:24 am
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Dear Kathy, Thank you so much for such a lovely and understanding reply. It meant so much to me. It's a little ironic really as just as I had sent my first ...
Kathy, I am excited that he is doing better than expected, however I feel upset that they cannot totally diagnose him for these reasons. The doctors are ...
Elizabeth, I can understand how you feel because my mother had a brother with disabilities and they sent him to a home to help care for him and now at the age...
Hi, My name is Kay and I have a son aged 7 who is currently undiagnosed. Matthew underwent some test about 5-6 years ago (which we have not had the results...
Kay, Welcome, I also have a son who is 7 that is currently undiagnosed and is being tested for ATRX at the University of Chicago, his name is Tommy. He shares...
Dear "Dr" Elizabeth (smile), Your letter was very interesting... thank you. I read it last week and had some questions I wanted to ask you, but now can't...
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Mar 11, 2003 12:06 am
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Hi, Nancy, Does your uncle's condition resemble Tommy's in any way? When my son Jerrod was born, I had no idea I would have anything but a healthy child. I...
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Mar 11, 2003 12:41 am
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When I was reading through all your past messages the other day I recall somebody asking about the boys grinding their teeth. Matthew is terrible for this -...
Hi, My son Eric grinds his teeth also. It's just terrible! He had four crowns on his molars and ground right through them all! The dentist eventually just...
Don and Ann Allen
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Mar 13, 2003 3:08 am
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Dear Nancy Thank you so much for your kind words. It helps so much to hear about other people's experiences and feelings. With love Elizabeth ... From: "Nancy...
Dear Elizabeth, Are you actually a medical dr? It seems so from your msg. Whether you are or aren't, I'd appreciate any input or answers you have about my...
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Mar 20, 2003 7:16 pm
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Hi Kathy I am a medical doctor but I'm also very aware that Richard Gibbons is the real expert on ATR-X so he would be the best person to ask about ATR-X in ...
Dear (Dr.) Elizabeth, (Don't want to leave out your title after you spent so many long years earning it.) Thank you so much for answering my questions. I...
