We are new to your group but would enjoy sharing experiences as we raise an ATR-X boy named Ben. We recently got advice to do surgery to staighten Ben's back...
Dear Trish and David (and all), Welcome to the group! I enjoyed reading about your precious Ben. He sounds so much like my son Jerrod, now 31, was at that...
mis ery
medmisery@...
Feb 21, 2003 11:57 pm
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Dear Trish, David and Ben, Lovely to read your e-mail about Ben. Our little boy, Aaron, is now just over 4 years old. He was diagnosed with ATR-X when he was...
NOEL STUBBS
noel@...
Feb 25, 2003 7:03 pm
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Dear Kathy, Thank you so much for your note. It was so interesting to read how similar your son Jerrod is to Ben. In answer to your questions regarding Ben's...
Dear Trish, Wanted to introduce my family. Here are our three kids. Abby (10), Alex (14)(my ATRX guy) and Andy (10). We live in St. Paul, Minnesota. Alex...
Carissima Trish, sono la mamma di Alessandro,5 anni, come Ben ha molti problemi di costipazione, qui da noi in svizzera uso l`olio di parafina, che rimano pił...
Dear Patricia, My son, Tommy has not be diagnosed at this time but shares all the same features of those with ATRX and is currently being tested for this ...
Dear Patricia, I also forgot to mention that we also live in Chicago, right by Midway Airport. We should try to get together sometime with our boys it would...
Dear Trish (and All), Thank you for your msg and for the information about Senokot, etc. Does Ben drink just regular milk that is lactose free or is it a...
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medmisery@...
Feb 27, 2003 2:05 am
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Hi Sally, I enjoyed your msg about Aaron and wanted to ask a question. What are these paracetamol suppositories? I have never heard of them. However, I have...
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medmisery@...
Feb 27, 2003 2:19 am
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Welcome! My husband and I can't help being amazed when we read about other children. How similiar they are.... Although our boys do not have any spine or hip...
EMorrone@...
Feb 27, 2003 3:13 am
227
Dear Sally and family, After reading your e-mail I thought I could offer some of our "tricks". We have two affected boys, Anthony is 12 and Dominic is 8....
EMorrone@...
Feb 27, 2003 3:44 am
228
Dear Leslie and family, Thank you somuch for your message and for the information about feeding which was really helpful. We cannot believe how well Aaron is...
NOEL STUBBS
noel@...
Feb 27, 2003 9:19 pm
229
Dear Teresa, Just been reading your message to Trish. What a lovely photograph, you have three gorgeous children. Alex, like Aaron, looks very cheeky and...
NOEL STUBBS
noel@...
Feb 27, 2003 9:48 pm
230
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Dear Sally, Noel, Joshua and Aaron, Thank you for your note. Our therapists at DuPage Easter Seals say that any standing/assisted walking(Ben needs a great...
Dear Kathy, I just buy the lactose free milk in the milk section of the store. It comes in half gallon containers and is anywhere from $2.60 a 1/2 gal. -...
Type O+ blood for my Alex. If you find out some food tips from your book - please pass them on. I have found that my Alex cannot tolerate chocolate, much dairy...
Hi Teresa and All, I am behind on answering msgs because had to get my daughter ready for her senior trip, but will just reply quickly to this: This is...
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medmisery@...
Mar 4, 2003 4:47 am
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Dear Leslie and Jack, Wow!! Your boys are doing so well! That is wonderful!! I never realized an ATR-X child could be so advanced. I wonder if that program...
mis ery
medmisery@...
Mar 4, 2003 4:57 am
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Hello to everyone I've just joined the email group and find myself in an unusual position. I am actually a health care professional dealing with children with...
Hello Elizabeth, Welcome to the group! It is always great to have a new person's perspective on things, so thanks for joining. Your parents shouldn't feel...
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medmisery@...
Mar 4, 2003 10:02 pm
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Dear Ann, I realized that I never thanked you for replying to my message. I appreciated reading about your experience. My son also had a fundoplication but...
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medmisery@...
Mar 5, 2003 3:39 am
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Hi Teresa, I need to ask a question about the meds you mentioned in an old email. How do you know Alex has some damage to his esophagus? Did they do an...
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medmisery@...
Mar 5, 2003 3:53 am
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Hi Nancy, I wanted to tell you how wonderful it is that Tommy is so advanced! You are probably *very* excited about all that he can do. When will your...
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medmisery@...
Mar 5, 2003 4:05 am
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Hi Kathy, Alex just saw his gastro guy last week. He did have an endoscopy (several times) and the damage to his esophogus is better but not gone. He is...
Thank you for this, Teresa. Jerrod took Prilosec (and then Nexium) for about maybe 8 yrs, that is why I hate for him to take another similar drug for awhile....
mis ery
medmisery@...
Mar 5, 2003 10:42 pm
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Hi again Teresa, Looking at this book Eat Right For Your Type by Peter J. D'Adamo, I will try to relate parts that you might find interesting. Some of this...
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medmisery@...
Mar 6, 2003 12:56 am
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Thank you, Trish. ... __________________________________________________ Do you Yahoo!? Yahoo! Tax Center - forms, calculators, tips, more ...
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medmisery@...
Mar 6, 2003 12:58 am
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The book goes through each kind of food group (meats, oils, fruits, veggies, etc) and gives a list of those that are most beneficial, those that are neutral...
