I have a six year old son with all the characteristics of this syndrome, but with no diagnosis so far. I would be very interested in talking with other...
Dear Dr. Gibbons, It was good to hear from you after all this time. I’m excited to hear about the book you are involved with. If there is any information...
I received your email address from some friends in the UK, their son has ATRX and I have been trying to find others with children that have ATRX. My name is...
Dear Brooks, I'm happy to talk to you about atr-x. Our son, Jasper, is 2 years, 8 months old; he was diagnosed with atr-x at 5 weeks. He is very delayed in ...
alisabeck@...
Oct 27, 2002 5:45 pm
194
Help!!!! We have had two admissions into hospital within a week recently due to Aaron's refusal to eat or drink. He was dehydrated and dripped and then sent...
NOEL STUBBS
noel@...
Nov 2, 2002 9:05 am
195
Noel, Yes, I had some of the same problems with Tommy. It's mostly when he gets the flu or has a fever, Tommy does not drink from a cup at all, we try to ...
Dear Sally, My Alex is 14 and we have also had the same thing happen. Alex would absolutely refuse to eat or drink and we would end up in the ER to be ...
Hi, Have just seen your message on the email (we are in hospital with Aaron at the moment so I am slow to catch up with emails). Just wanted to congratulate...
NOEL STUBBS
noel@...
Nov 9, 2002 10:15 am
198
Dear Nancy and family, Just a quick note to say a big thank you for the information you gave us in your email. I have come out of hospital for a couple of days...
NOEL STUBBS
noel@...
Nov 9, 2002 10:15 am
199
I will be out of the office starting November 8, 2002 and will not return until November 12, 2002. I will respond to your message when I return....
Dear Sally, Jasper has had periods of refusing to eat or drink, but then a sort of gastrointestinal thing deleloped where he was just throwing up anything but ...
alisabeck@...
Nov 11, 2002 12:51 pm
201
Sally and Noel, I hope Aaron gets better soon, nothing is more stressful then your child being sick. He is in our prayers. I know if we could just get into...
Hello, I am behind on the msgs from the ATR-X group because it is so quiet, I get discouraged and stop reading, but to the problem Aaron is having: this is...
mis ery
medmisery@...
Nov 16, 2002 12:34 pm
203
Hello, My son, Eric, has ATR-X and is 8 years old. As I read what many of you wrote I'm reminded of our own struggles with Eric's GI tract. He was on all the...
Don and Ann Allen
adallen@...
Nov 16, 2002 3:12 pm
204
Hiya everyone, Just a quick note to update on Aaron and his recent hospital stay. Firstly I would like to say a great big thank you to Nancy Bradel, Ann Allen ...
NOEL STUBBS
noel@...
Dec 17, 2002 10:26 pm
205
Greetings to all, Happy Holiday!!!! The boys are all doing well. Zechariah has recovered from his surgery and back to normal. Bear...is still laughing all...
Noel, I am glad to hear Aaron is feeling better and is home from the hospital. How did you keep your cool when they gave him the wrong meds? That would have...
Hi everyone, My computer is down at home so I am just now reading the messages from the group (I am at the local college). I am glad Aaron is doing much...
mis ery
medmisery@...
Dec 19, 2002 10:09 pm
208
Happy Holidays! Kathy Jones and all. It seems to be such a recurrent theme that our sons have stomach acid problems. Either people are feeding their kids...
Hello all! I wish you a happy and a well 2003!!! How are you and your children or your brothers with ATR-X? My brothers Wim (almost 29) and Gerard (13) and my...
dietaheij
dietaheij@...
Jan 10, 2003 1:59 pm
210
Hi Dieta and All, It is good to hear from you and to know that your family is doing well. Are you out of school now? My son Jerrod, now 31, seems to be...
mis ery
medmisery@...
Jan 10, 2003 7:23 pm
211
Hoi Dieta, Leuk weer ff iets van je te horen. We hebben de afgelopen tijd erg druk gehad o.a. met de geboorte van Kyra Rigt en nu zitten we midden in een...
Hello All, As to the question of the number of ATR-X cases known, Dr. Gibbons would be the one who may know the answer to this. David David Hughes, Founder ...
Hi All, Is Dr. Gibbons a member of this group? Wouldn't it be great if we had some experts of different kinds to help advise us? Kathy Jones ... ...
mis ery
medmisery@...
Jan 13, 2003 5:48 pm
214
Yes, Dr. Gibbons is listed as a member of this group and receives the email messages posted in this group. Members can send a message directly to Dr. Gibbons...
Dear Kathy, Some more reading for you! These are the notes my herbalist gives to her clients on radionics. Hope they are of some interest to you. RADIONIC...
NOEL STUBBS
noel@...
Jan 26, 2003 6:33 pm
216
We are new to your group but would enjoy sharing experiences as we raise an ATR-X boy named Ben. We recently got advice to do surgery to staighten Ben's back...
Dear Trish and David (and all), Welcome to the group! I enjoyed reading about your precious Ben. He sounds so much like my son Jerrod, now 31, was at that...
mis ery
medmisery@...
Feb 21, 2003 11:57 pm
218
Dear Trish, David and Ben, Lovely to read your e-mail about Ben. Our little boy, Aaron, is now just over 4 years old. He was diagnosed with ATR-X when he was...
NOEL STUBBS
noel@...
Feb 25, 2003 7:03 pm
219
Dear Kathy, Thank you so much for your note. It was so interesting to read how similar your son Jerrod is to Ben. In answer to your questions regarding Ben's...
