Hello, my name is Lori and my 15month old son, Lane, was diagnosed at 13 months. He is a very joyful child. He has finally got the strength to sit unsupported...
It is so great to hear how you cherish Lane's sounds that he makes. I know that he will bring you so much joy! I smile to think that he is gaining weight....
Lori, Hi, my name is David and I'm a single father of two boys with ATR-X. My boys have experienced much of what you have described about Lane. My boys are now...
Hi David, I have just watched the video and it is brilliant to be able to see the boys
They are so much like Liam even down to the laugh. Merry Christmas to...
Hi David, Thanks for the video. It looks so much like Nathaniel as well. The sound of laughter is wonderful isn't it. Well Happy Holidays to all!Suzett...
Hi David, The video is great, I was looking at Jack asleep with his thumb in his mouth-then looked at your video and it was like looking at Jack to see your...
Thank you so much David! Your boys remind me so much of our Eric! Eric has the best laugh too! It makes us all laugh with him--it's so beautiful! I see the...
You're so right--he is cute!!! It's so weird to me how our boys look so much alike. It's like they could all be brothers. Do you mind me asking where you...
Yes, the boys matress is on the floor. It seems to work well for them. They can sleep on a regular bed without any problems but they seem to like the matress...
I'm so glad that you put a video up of your boys. Thank you. Being a new mother to a son with atr-x, I'm so curious what my son is going to be like when he...
Hi everyone, thanks for sharing the photos they are great. I hope you all have a good christmas. On the 3rd Jan Jack is going into hospital to have a scan of...
Hi Yvonne Hope you and your family have a great christams, and to everyone on the site... Good luck with Jacks appointments is the new year, hope you get some ...
Hello! January 7 Travis goes in for a g-tube and nissens fundoplication. I'm very nervous about the whole thing but I know that it will be a weight lifted off...
Hello Ruth, You will be so relieved after Travis has his surgery and can gain weight. Eric had the surgery when he was just a year and a half and I'm...
Our son Ben had the g-tube and nissen fundoplication surgery after having a spinal fusion 4 years ago and both surgeries went very well. Having the g-tube has...
Hi everyone, hope you all had a lovely christmas. Aaron had a mickey button put in at end of November and has been very unsettled ever since. He hasnt eaten...
NOEL STUBBS
noel@...
Dec 27, 2007 6:01 pm
1142
Thank you for your support. I decided to reschedule his g-tube and fundoplication. Last night we had to do a sleep study on him and it was SO stressful on him...
Sally, sorry we can't be more helpful but Ben had a tough time keeping food down before the surgery and no trouble since. He has never shown any particular...
Travis & Ruth, Our oldest son, Barak "Bear", now age 14, had failure to thrive when he was an infant. He had the fundoplycation surgery and gastrostomy button...
Hello Our son Eric had the Nissan Fundolplication and tube placement when he was just one and a half. He is now 13 years old. His skin got irritated around...
Hi my name is Allie. I just joined this group and I will start from the beginning. My son, Nathaniel has a chromosome deletion known as 46,XY,del,16p13.3...
I would like to extend a big HAPPY NEW YEAR to each of our families. I hope you all have the best year of your life. My the Lord bless you and keep you, my the...
