Ciao sono Fernando, papā di Mattia 9 anni. Mattia il 21-01-07 ha avuto un problema respiratorio di apnea ricoverato in ospedale č stato dimesso con la...
Fernando, Il mio figlio ha avuto problemi respiratori per i primi 2-3 anni della sua vita. Ha dovuto essere su ossigeno per quello i medici di time.The hanno...
CIAO FERNANDO, ANCHE ALE QUANDO ERA PICCOLO SOFFRIVA DI LARINGOMALACIA, LA VALVOLA DELLA LARINGE ESSENDO DEBOLE PER VIA DEL IPOTONIA, SI CHIUDEVA E NELLE PRIME...
CIAO FERNANDO, ANCHE ALE QUANDO ERA PICCOLO SOFFRIVA DI LARINGOMALACIA, LA VALVOLA DELLA LARINGE ESSENDO DEBOLE PER VIA DEL IPOTONIA, SI CHIUDEVA E NELLE PRIME...
We had a similar problem when Ben (13) was young but he grew out of it. This seemed tied into the floppy muscle tone he had when very small but that is...
I am a mother who has just found out that her 10 month old child has ATRX. At first i was very upset, but now the shock factor is over and all me and my...
Tammy / Bill, Welcome our support community. Our members will be more than happy to share their stories with you. Where do you live? Our members are spread...
Hi Tammy & Bill, Welcome to the site, we are all friendly and will help in anyway we can. I think if you read through previous postings you will find that all...
Hi Both, Im Yvonne from England and my son Jack is now 11 years. Like Sheralyn's son- Jack was diagnosed when he was 4 after having alot of feeding problems...
... Thanks everyone who responed so quickly, it has been great hearing about each of your successes and frustrastions. We are currently living in DurhaM,North...
Hello, I am a new member but not new to ATRX. My son Eric is now 13 years old and is a pretty content teenager. Lately, however, he has been needing so much...
Barak "Bear" had a nissan done when he was 10 months old. Shortly after having in put in, he quit eating orally for us but in time he started back. He had...
Tammy and Bill, we would echo Liam's family's comments about looking thru old postings for the variety with which our boy are affected. Another posting I just...
Hello! My name is Ruth and I'm from Michigan. My 1 1/2 year old son was recently diagnosed with ATR-X. I would really love to talk to a parent who is going or...
Hi Ruth, My Names Yvonne, my son is Jack and we are from England. How are you? Silly question really. My son is now 11 and we had the news when he was 4, after...
Hello Ruth, My name is Ann and we're practically neighbors! We live in Wisconsin. We have a 13 year old son names Eric. I agree with Yvonne. There is quite...
... was ... parent ... HI Ruth, My name is Tammy and I'm from North Carolina. I am also new to this group. My son Miles, was diagnosed with ATR-X at about 10...
Hi Ruth, Welcome to the group! My name is Sally and I am mum to Aaron who has just turned 9 years old. I live in East Yorkshire in England. I have to limit...
NOEL STUBBS
noel@...
Nov 6, 2007 5:05 pm
1120
Hello, my name is Lori and my 15month old son, Lane, was diagnosed at 13 months. He is a very joyful child. He has finally got the strength to sit unsupported...
It is so great to hear how you cherish Lane's sounds that he makes. I know that he will bring you so much joy! I smile to think that he is gaining weight....
Lori, Hi, my name is David and I'm a single father of two boys with ATR-X. My boys have experienced much of what you have described about Lane. My boys are now...
Hi David, I have just watched the video and it is brilliant to be able to see the boys
They are so much like Liam even down to the laugh. Merry Christmas to...
Hi David, Thanks for the video. It looks so much like Nathaniel as well. The sound of laughter is wonderful isn't it. Well Happy Holidays to all!Suzett...
Hi David, The video is great, I was looking at Jack asleep with his thumb in his mouth-then looked at your video and it was like looking at Jack to see your...
Thank you so much David! Your boys remind me so much of our Eric! Eric has the best laugh too! It makes us all laugh with him--it's so beautiful! I see the...
