I am a mother of a 6 year old boy who was recently diagnoised with ATR-X syndrome. About 5 weeks ago my sweet loving little boy turned into a little monster....
Hi Rhonda Thanks for the info on the calming vits. I have had a really bad 6 weeks school holidays. Now I am seeing at psychologist to help me handle this. Did...
Hi My son Charlie will be 2 next month, he has always had a fascination with hair and loves playing with it before he goes to sleep, but over the last 6...
Hi Debbie, Sorry to be the bearer of bad news but Liam is nearly 17 now and is still as
fascinated by hair as he has always been. They have tried many...
Hi My little boy also did something similar a year back and it was a awful and stressful time for us all. After a couple of x-rays, it turned out that he was...
Hi Lisa, We saw a gastroenterologist about 3 weeks ago and my little boy did not have any blockage and he was negative for a peptic ulcer. He does have...
There is a recent review on the syndrome which you may be interested to have for records which I wrote last year but have recently discovered is open access....
... Thanks for the update, I have new concens about Jacks acid/reflux so I can take this with me next week when I see the Proff's. Many thanks Yvonne Smith...
I know that everyone doesn't respond to the same medications, but could you list medications for different diagnosis of this disease. My grandson, Gage, in...
Ciao sono Fernando, papā di Mattia 9 anni. Mattia il 21-01-07 ha avuto un problema respiratorio di apnea ricoverato in ospedale č stato dimesso con la...
Fernando, Il mio figlio ha avuto problemi respiratori per i primi 2-3 anni della sua vita. Ha dovuto essere su ossigeno per quello i medici di time.The hanno...
CIAO FERNANDO, ANCHE ALE QUANDO ERA PICCOLO SOFFRIVA DI LARINGOMALACIA, LA VALVOLA DELLA LARINGE ESSENDO DEBOLE PER VIA DEL IPOTONIA, SI CHIUDEVA E NELLE PRIME...
CIAO FERNANDO, ANCHE ALE QUANDO ERA PICCOLO SOFFRIVA DI LARINGOMALACIA, LA VALVOLA DELLA LARINGE ESSENDO DEBOLE PER VIA DEL IPOTONIA, SI CHIUDEVA E NELLE PRIME...
We had a similar problem when Ben (13) was young but he grew out of it. This seemed tied into the floppy muscle tone he had when very small but that is...
I am a mother who has just found out that her 10 month old child has ATRX. At first i was very upset, but now the shock factor is over and all me and my...
Tammy / Bill, Welcome our support community. Our members will be more than happy to share their stories with you. Where do you live? Our members are spread...
Hi Tammy & Bill, Welcome to the site, we are all friendly and will help in anyway we can. I think if you read through previous postings you will find that all...
Hi Both, Im Yvonne from England and my son Jack is now 11 years. Like Sheralyn's son- Jack was diagnosed when he was 4 after having alot of feeding problems...
... Thanks everyone who responed so quickly, it has been great hearing about each of your successes and frustrastions. We are currently living in DurhaM,North...
Hello, I am a new member but not new to ATRX. My son Eric is now 13 years old and is a pretty content teenager. Lately, however, he has been needing so much...
Barak "Bear" had a nissan done when he was 10 months old. Shortly after having in put in, he quit eating orally for us but in time he started back. He had...
Tammy and Bill, we would echo Liam's family's comments about looking thru old postings for the variety with which our boy are affected. Another posting I just...
Hello! My name is Ruth and I'm from Michigan. My 1 1/2 year old son was recently diagnosed with ATR-X. I would really love to talk to a parent who is going or...
Hi Ruth, My Names Yvonne, my son is Jack and we are from England. How are you? Silly question really. My son is now 11 and we had the news when he was 4, after...
Hello Ruth, My name is Ann and we're practically neighbors! We live in Wisconsin. We have a 13 year old son names Eric. I agree with Yvonne. There is quite...
... was ... parent ... HI Ruth, My name is Tammy and I'm from North Carolina. I am also new to this group. My son Miles, was diagnosed with ATR-X at about 10...
Hi Ruth, Welcome to the group! My name is Sally and I am mum to Aaron who has just turned 9 years old. I live in East Yorkshire in England. I have to limit...
NOEL STUBBS
noel@...
Nov 6, 2007 5:05 pm
1120
Hello, my name is Lori and my 15month old son, Lane, was diagnosed at 13 months. He is a very joyful child. He has finally got the strength to sit unsupported...
