I'm attaching a letter with specifics, but OPC is getting 10 Tier 1 slots and 3 Comprehensive Waiver slots. Make sure to contact your case manager or the LME (Cheryl Moran at OPC), verify that the psychological exam is current and on file, and that other needed information is also current and on file (especially any changes in your child's behavior or your life circumstances). You also want to be sure that OPC has completed the new prioritization tool.
Nice to have something good happening, although we need so many more slots than this...
[asncoc] FW: Help NOEWAIT End The Waitlist
for Needed Services
Did everything, but still waiting to hear who
these 3 lett. should be mailed to! Should I mail them only to my Reps.
of state, congress, gobernatorial, or what? There're several for all different
div. from ea. party. Of course, I'd only look for mine. Please specify.
PS. By the way...I was sorry the Spanish speaking
parent didn't showed up @ last night's mtg. held in the CH lib. Perhaps
another time. Please do keep me in mind if indeed there's the need. I left
approx. 35 - 40min. earlier due to an important tel. call & then had
to go pick up my son @ the "ARTS CTR." Changed my address on
website to new "YAHOO" acct. & doubled ck. on it as well,
but still getting messages sent here.
Thx, b.
Subject: Help NOEWAIT End The Waitlist for Needed Services
Dear Friends,
Did you know: Many people with developmental disabilities and their
families are on "waitlist" for home and community-based services
in
their state's own Medicaid program?
Did you know: There are over 300,000 Americans in these queues, which
frequently involve many years of waiting. As families, we struggle to
do the best we can to earn a living while also caring for our loved
ones who may require extensive help with the activities of daily
living that most take for granted. The challenges facing people on
waitlists and their families are significant, and in many cases can be
debilitating.
Did you know: Medicaid home and community-based services are not
portable! That means that people with developmental disabilities who
are fortunate enough to receive services cannot move to another state
for a military transfer, or to take a promotion in the private sector,
or to help care for an aging family member, without starting over at
the bottom of the waitlist in the new state.
Did you know: We need your help! You are getting this message because
you have supported NOEWAIT by signing a petition to End the Waitlist
for individuals with developmental disabilities and their families.
Do you know: The National Organization to End the Waitlist (NOEWAIT)
has been working on this issue for almost two years, thanks to its
volunteer members. No one is paid a cent to work for NOEWAIT. We have
volunteers all over the country giving of their time in this massive
effort to join together to have our collective voices heard to end the
waitlist for services. We appreciate and encourage your involvement.
You can join by contacting NOEWAIT@...
<mailto:NOEWAIT@...>
Do you know: These are the folks across the country on the Steering
Committee who are helping:
Maureen Devaney, Pennsylvania
Lori Fahey, Florida
Denver Fox, Colorado
Pedro Geraldino, Pennsylvania
John Hall, Florida
Did you know: The petition to End the Waitlist, which was signed by
11,000 concerned citizens, has been hand delivered to the President of
the United States, Vice President Biden, influential federal
Representatives, Senators, Special Assistant for Disability Issues
Kareem Dale and Cindy Mann, Director of the Center for Medicaid and
State Operations. Also sent to each was a personal letter, the list of
11,000 signatures and selected poignant comments.
Did you know: That we greatly appreciate the efforts of all who
signed the petition, and invite everyone to join us in a further
effort to impact Congress, by sending your own personal letter
directed to your federal Representatives and Senators, including a
copy of the petition, a list of the 11,000 signatories, and selected
comments. Think what an impact it would make if the congress received
thousands and thousands of similar letters and copies of the petition!
Did you know: We need your help, and helping is easy! You will find
everything you need to send a powerful letter on our web page: http://www.ourwebs.info/indexnoe.htm
There are instructions, a "fill in the address" letter, the actual
petition, and a list of the signatures. There are also links to help
you find your federal representatives and their local addresses. All
you need to do is download the documents and follow the instructions!
Make your voice heard. Silence is the enemy. Please join us in this
effort!
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19:41:00
Subject: Help NOEWAIT End The Waitlist for Needed Services
Dear Friends,
Did you know: Many people with developmental disabilities and their
families are on "waitlist" for home and community-based services in
their state's own Medicaid program?
Did you know: There are over 300,000 Americans in these queues, which
frequently involve many years of waiting. As families, we struggle to
do the best we can to earn a living while also caring for our loved
ones who may require extensive help with the activities of daily
living that most take for granted. The challenges facing people on
waitlists and their families are significant, and in many cases can be
debilitating.
Did you know: Medicaid home and community-based services are not
portable! That means that people with developmental disabilities who
are fortunate enough to receive services cannot move to another state
for a military transfer, or to take a promotion in the private sector,
or to help care for an aging family member, without starting over at
the bottom of the waitlist in the new state.
Did you know: We need your help! You are getting this message because
you have supported NOEWAIT by signing a petition to End the Waitlist
for individuals with developmental disabilities and their families.
Do you know: The National Organization to End the Waitlist (NOEWAIT)
has been working on this issue for almost two years, thanks to its
volunteer members. No one is paid a cent to work for NOEWAIT. We have
volunteers all over the country giving of their time in this massive
effort to join together to have our collective voices heard to end the
waitlist for services. We appreciate and encourage your involvement.
You can join by contacting NOEWAIT@...
<mailto:NOEWAIT@...>
Do you know: These are the folks across the country on the Steering
Committee who are helping:
Maureen Devaney, Pennsylvania
Lori Fahey, Florida
Denver Fox, Colorado
Pedro Geraldino, Pennsylvania
John Hall, Florida
Did you know: The petition to End the Waitlist, which was signed by
11,000 concerned citizens, has been hand delivered to the President of
the United States, Vice President Biden, influential federal
Representatives, Senators, Special Assistant for Disability Issues
Kareem Dale and Cindy Mann, Director of the Center for Medicaid and
State Operations. Also sent to each was a personal letter, the list of
11,000 signatures and selected poignant comments.
Did you know: That we greatly appreciate the efforts of all who
signed the petition, and invite everyone to join us in a further
effort to impact Congress, by sending your own personal letter
directed to your federal Representatives and Senators, including a
copy of the petition, a list of the 11,000 signatories, and selected
comments. Think what an impact it would make if the congress received
thousands and thousands of similar letters and copies of the petition!
Did you know: We need your help, and helping is easy! You will find
everything you need to send a powerful letter on our web page:
http://www.ourwebs.info/indexnoe.htm
There are instructions, a "fill in the address" letter, the actual
petition, and a list of the signatures. There are also links to help
you find your federal representatives and their local addresses. All
you need to do is download the documents and follow the instructions!
Make your voice heard. Silence is the enemy. Please join us in this
effort!
We look forward to your help.
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19:41:00
Date: Thu, 19 Nov 2009 22:19:09 -0500 Subject: Jordan Lake School of the Arts To: helloknitty@... CC: bakuklinski@...
Hi,
One of my students on the AU spectrum has recently begun attending Jordan Lake School of the Arts, a private school in Chatham Co. I am totally enthralled with this school which is for AU kids and their typically developing siblings. It's a calm, beautiful space and they start each day out with a one hour nature hike. I love tutoring my little guy there and he is as happy as I've ever seen him. They are currently serving K-6, but hope to go up soon. Their top enrollment is 24 kids. Beth is not having school next week and doing parent tours on Monday and Tuesday, by appointment. I've copied her on this in case you or someone else would be interested in a tour. Check out the website and please pass this on to others who might be interested.
Voices Together is an evidenced-based approach and technique that combines music therapy, music training, communication and social skill training in the structure of small choruses. The weekly 1-hour sessions develop advocacy, self-determination skills and leadership skills through interactive songs as part of a fun, enriching and adapted program. Participants don’t need to know how to sing -- the training is weaved inside the music itself as each group learns to work together, support each other and eventually build bridges towards their families, friends and communities. We work with a wide range of developmental disabilities and functioning levels. We currently serve ages 8 and up.
"Yes, they are learning about singing and
music but even more importantly, they are learning to initiate conversations, to ask and answer questions, to follow directions, to tell stories about themselves, to think about situations and to share their thoughts. I just cannot say enough about the outcomes of this music experience." - VT parent
“For us, it’s a time every week that we get to come together with friends. We are able to sing and talk about what matters to us with people that understand what we’re going through. Voices Together really lets our natural talents shine.” - VT group members
Spaces available in existing groups: Adults: Monday 5:45 group meeting in Cary
Little Voices (8-11 year olds): Wednesday 4:00pm group meeting in Chapel Hill
Thursday 4:30pm group meeting in Raleigh for individuals with high functioning autism/Asperger's Teens
(15-19 year olds): Wednesday 4pm group meeting in Raleigh (near Crabtree Valley Mall)
Preteen girls (10 - 13) group in the Alamance/Chatham/Orange/Durham Counties is also trying to get started. If you are interested please contact Carrie Gage.
If you have a child or know of a child who would be interested and benefit from what we do, please contact us for an initial form and directions. There is no charge to try out the first session unless the consumer joins.
Please direct inquiries to Carrie Gage by email or phone (942-2714) or on the web: www.voicestogether.net
More about Voices Together Voices Together serves individuals with developmental disabilities in the Raleigh-Durham-Chapel Hill area. This unique programming uses the structure of a chorus, evidence-based interactive songs and the therapeutic group process to increase communication, decrease negative behaviors, support the public school curriculum, increase speech and language skills and increase social skills.
A Voices Together group, which is made up of 6-9 participants, is a place where individuals learn to express their thoughts, feelings and needs. It is a place where individuals learn to support one another, make friends and form a community. The program has such an immediate impact because skills are processed during
spontaneous moments and therefore are more successfully generalized. The songs are technique based and cue the brain towards language acquisition and interaction skills, yet are fun and motivating.
Voices Together is also about music and how it motivates us, stimulates the brain, makes us feel good, brings us together, and becomes our universal language. Each individual is valued, validated and has their own potential and we believe they are capable of reaching those potentials. Individuals do not have to know how to sing or have a certain level of verbal communication to participate in the program.
Voices Together music therapists are all Board Certified Music Therapists, with either bachelor or master level degrees in music therapy. The professional credential MT-BC (Music Therapist-Board Certified) is granted to music therapists who have attended an approved music therapy degree program, completed a 6-9 month full-time internship at an approved site, and successfully passed a nationally accredited certification exam. Continuing education is required in order to maintain the professional title of MT-BC. Music Therapy degree programs are firmly rooted in Psychological Theory and Practice.
Voices Together is a non-profit organization that is endorsed by The Autism Society of North Carolina, The Arc of North Carolina, and University of North Carolina Department of Education and Special Education. We are serving approximately 400 individuals this year with developmental disabilities in the Research Triangle area of North Carolina.
Please pass this on!
Carrie Gage, Operations Manager Voices Together P.O. Box 16721 Chapel Hill, NC 27516 919-942-2714 carrie@... www.voicestogether.net
"Lisa Dankner"
<bigchief2@...> Sent by: asncoc@yahoogroups.com
11/18/2009 12:12 PM
To
"ASNC Yahoo Group " <asncoc@yahoogroups.com>
cc
Subject
[asncoc] meeting reminder [1 Attachment]
I need to know if ya'll still
need a Spanish speaking person to translate @ this mtg. Thought u or someone
would had gotten back to me in ref. to this by now.
Hello! We are offering private tours at Jordan Lake School of the Arts during the next couple of weeks. We are now enrolling grades K-6 and will accept grades 7-9 beginning in January. Our program is based on long term relationships with teachers peers and families of the school community. We are offering daily nature hikes, music, art, theater, sign language and individualized curriculum in a tranquil lake side setting. Please call 672-4281 to come and see our incredible school!
Join our Facebook fan page to keep up with our seasonal art shows and special events as well as community information. Pictures of the school is on our Fb page!
From: shar3b3ar3375 <shar3b3ar3375@...> To: WakeCountyASNC@yahoogroups.com Sent: Tue, November 10, 2009 2:16:34 PM Subject: [ : ) WakeCountyASNC] Re: New inclusive school/Autism
Thanks for mentioning this school. My husband and I are seriously considering an alternative to WCPSS. We have hit a road block in having one of our sons intergrated into a regular classroom due to problems with transitions. He often says that he is bored in his AU classroom. My other son has communication issues but loves to express himself through music. This school may be a good fit for both our boys.
Thanks again for the info!
Shari
--- In WakeCountyASNC@ yahoogroups. com, "beth_kuklinski" <beth_kuklinski@ ...> wrote: > > I wanted to fill everyone in on our new school in Apex, NC. Jordan Lake School of the Arts uses theater, music, art and sign language as well as an individualized curriculum for students. Set on Jordan Lake with daily hikes, gardening, and a real sense of
community. > > www.jordanlakesa. com >
Does anyone know where I can get rolls of Autism Awareness (puzzle piece) ribbon
locally?
I've tried Michael's, Walmart, Joanne Fabric and Hancock Fabric.
Marian
After briefly speaking with the Chancellor and exchanging emails, I have come to
the conclusion that if we are going to preserve the services that we need at
TEACCH, we will have to try to get a legislative earmark for the program. Gary
Gary,
Thanks for your note and good seeing you the other night. Every unit in
the university has had staff cuts because of the shortfalls in the state budget.
The number of staff losses in TEACCH has been similar or less in pro-rata share
compared to other units based on their state budgets. That creates challenges
for TEACCH in delivering services, but those challenges are there for all of us.
Fortunately, the dedicated staff of the university have been adapting to the
challenges.
Hope this helps.
Holden
H. Holden Thorp, Chancellor
The University of North Carolina at Chapel Hill
CB#9100
Chapel Hill, NC 27599-9100
(919)962-1365
-------- Original Message --------
Subject:
Changes to TEACCH programs
Date:
Fri, 13 Nov 2009 12:36:24 -0500
From:
Wallach Gary <garywallach@...>
To:
chancellor@...
Dear Chancellor,
Thank you for sharing your thinking about the future of TEACCH
programs with me last night. It was a relief to hear that you do not
plan to drop them. And, as you said I could, I did share that brief
conversation with others in the autism community.
There is one point that was not raised and I hope you can speak to
it. The point is, how can the programs for the families be maintained
if there are significant staff cuts. There are already waiting lists
for many of the programs. To maintain an already over-subscribed
program and at the same time reduce the staff, would seem to negate
the goal of maintaining the program.
If you can spare a moment, I would appreciate your thoughts on this.
Thank you,
Gary Wallach
--
Holden Thorp, Chancellor
The University of North Carolina at Chapel Hill
103 South Building
CB#9100
Chapel Hill, NC 27599-9100
Office (919) 962-1365
Fax (919( 962-1647
I have heard for many years, that there are about 300% more people with autism
in Chapel Hill than elsewhere. I have never had the reference to substantiate
this and need it for something I'm writing. If you have this reference, would
you pass it my way?
Thanks,
Marian Kaslovsky
Chapel Hill Parks & Recreation
I'd done translations in the past &
my native language's Spanish. Nevertheless...depends when mtg. is held.
Is it the same conducted @ someone's
house in or near Carrboro?
Please see the post announcing the November ASNCOC mtg. We have had a request
for an interpreter to translate, at that meeting, for a parent who speaks
Spanish. There will be alot of technical terms involved. If you would like to
volunteer, please contact Lisa Dankner (BigChief@...).
Thanks,
Marian
Just a reminder
Come meet other ASNCOC parents for a casual coffee at
Weaver Street Market in Southern Village
Thursday, November 12
9-1030 a.m.
We look forward to seeing familiar and new faces.
716 Market Street
Chapel Hill, North Carolina 27516
In case you havent seen it yet we will be putting on a Winter Day Camp at Camp Royall this year. Check out below for details or visit the Autism Society's homepage if you cannot for some reason access info below! Have a great day!
Sara
The Autism Society of North Carolina is excited to announce our first ever Winter Day Camp for school aged children on the Autism Spectrum.
This program will take place the last week of the year - Monday, December 28th, 2009 through Friday, January 1st, 2010 at Camp Royall in Moncure.
This message was sent from Autism Society of North Carolina to sgage@.... It was sent from: Autism Society of North Carolina, 505 Oberlin Road, Suite 230, Raleigh , NC 27605-1345. You can modify/update your subscription via the link below.
AGENDA
7:00 Meet and talk - People arrive and open conversation
7:30 Introductions and Business
7:45 Speaker
Our official meeting will end around 8:30. Library closes at 9pm
This event has
been added to the calendar on our website
CHAPEL HILL PARKS & RECREATION'S
Weekend Fun Night
Sponsored by Disability Services & Supports Program
A drop-in program for kids & adults with disabilities, their families, friends,
neighbors & staff. This FREE program offers you a chance to play, meet new
people & spend time with friends you've known.
November 6th 2009
6:30 8:30 pm
Chapel Hill Community Center
(Across from University Mall & the main Post Office)
120 S. Estes Drive
Chapel Hill, NC 27514
Swim, do arts & crafts, sing karaoke, play games, climb the climbing wall, shoot
some baskets and have a snack.
For more information:
Marian Kaslovsky
Chapel Hill Parks & Recreation
919 968-2813
mkaslovsky@...
People who need direct supervision or assistance with personal care needs should
bring someone to help. To use the climbing wall please have a parent or guardian
sign the liability waiver (available from climbing wall staff) before climbing.
Come meet other ASNCOC parents for a casual coffee at
Weaver Street Market in Southern Village
Thursday, November 12
9-1030 a.m.
We look forward to seeing familiar and new faces.
716 Market Street
Chapel Hill, North Carolina 27516
Jordan Lake School of the Arts in Apex, NC is an inclusive school for children
with autism. Offering music, theater, sign language, with nature hikes,
gardening and a relevant individualized curriculum. Now enrolling for our year
round program grades K-6. Listing for middle grades.
www.jordanlakesa.com
On Facebook as well!
-----Original Message-----
From: Sonya Van Horn [mailto:assist@...]
Sent: Wednesday, October 28, 2009 3:24 PM
To: bigchief2@...
Subject: ACTION ALERT: ATRC Contracts Eliminated
As of October 31, 2009, the Department of Public Health is eliminating all
of the Infant Toddler Assistive Technology Resource Center contracts. These
seven centers have provided assistive technology services to children aged
birth to five since 1992. They have played a major role in the early
intervention services in this state and the loss of these services to the
families of North Carolina is tragic. It will have a direct impact on the
lives of children with disabilities and their future development. Without
access to assistive technology, many of these children will develop
secondary disabilities that will negatively impact their development and
future abilities. Without access to assistive technology, we will raise a
generation of children who are more disabled than they have to be and who
require more costly care. I also understand that the 0-3 Assistive
Technology Fund that provided last resort funding for families who do not
have the means to purchase the equipment their children need will be
eliminated.
Please forward this message and ask families and organizations to contact
Dennis Harrington, Deputy Director of the Department of Health and Human
Services, 919-707-5050, with their concerns about the loss of these
services. I do not have his email address, but if it follows the DHHS format
it would be dennis.harrington@....
To remove your email from this mailing list, click here:
http://www.pat.org/index.php?ACT=5&id=o21UH9h7KH
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18:44:00
Have you ever wished you could have a significant role in creating change to the system of services you navigate for your special needs child but feel you just don't have the necessary know-how to be effective? If you have, then our November 14th all-day training is exactly what you need to move forward and make positive improvements in your community or beyond. See details below!
Parents of children with special health care needs who are interested in learning how to develop the skills necessary to become an effective leader and community advocate will receive the training and tools needed to succeed in this intensive all-day training facilitated by the NC Family to Family Health Information Center (HIC), a project of the Exceptional Children's Assistance Center (ECAC).
Registration is FREE and includes all materials, morning and afternoon refreshments, as well as lunch.
A Certificate of Completion will be provided for each participant completing the program. Please be prepared to stay for the entire workshop.
Registration deadline is Monday, November 9th. Seating is limited - register early!
A small stipend will be available to NC parents of children with special needs upon request.
This training will provide emerging leaders with:
Advocacy skills for your child
Information on how to serve effectively on Boards and Committees
Resources to locate leadership opportunities on a local, state and nationwide level
Helpful tips to present and utilize your skills
PLEASE NOTE: Our regular PARENT SUPPORT GROUP facilitated by Steevie Jane Parks, PhD, will meet 8:00 to 9:00 a.m. in the church Parlor on this date.
The Family Leadership Institute is being co-sponsored by the Family Advocacy Network (FAN), a program of the Mental Health Association in Orange County, and the Chapel Hill-Carrboro City Schools Special Needs Advisory Council (SNAC).
FAN ECAC
Upcoming Events
October 26th (Monday) - Chapel Hill-Carrboro SEPTA (Special Education PTA), "Brain Functioning & Interventions for Children with Reading Disabilities/Dyslexia," presented by Dr. Andrew Preston, pediatric neuropsychologist, 7:00 to 9:00 p.m., Sunset Creek Clubhouse, 103 Farm House Dr., Chapel Hill. Attendees should come away with some helpful insight into this challenging disorder. Details at www.septachc.homestead.com.
October 28th (Wednesday) - Chapel Hill-Carrboro City Schools EC Night, "Fundamentals of Special Education" 7:00 to 8:30 p.m. at Culbreth Middle School Auditorium, 225 Culbreth Rd., Chapel Hill. THREE BREAKOUT SESSIONS: "Special Education 101"; "Programming in Pre-K and Transition to Kindergarten"; "Positive Behavior Support in the Home." Doors open at 6:30 p.m. for registration and networking. For additional information, please contact Karen Patillo at 919-967-8211, x. 28234. Childcare is not available during this EC Night program.
November 3rd (Tuesday) - ELECTION DAY! Remember to vote!
November 10th (Tuesday) - The Second Annual Forum on Underage Drinking, 8:30 to 11:00 a.m., Hillsborough United Church of Christ, hosted by Advocates for Adolescents: A Coalition to Prevent Underage Drinking and Drug Use, sponsored by Community Backyard and Healthy Carolinians of Orange County. Breakfast provided. Please join us for this powerful and historic community-wide convening to address where we've been and where we're going in our effort to create a local community that supports alcohol and drug-free teenagers. Participants will be provided with the most current data and trends that have been captured over the past year; learn more about the nationally recognized strategic prevention framework utilized by the coalition; and walk away with examples of tools, resources, ways you or your organization can benefit, as well as learn 'next steps' to unite and address
teen substance abuse. GUEST SPEAKER: Eric Rowles, CEO of Leading to Change, Inc. RSVP to Billie Guthrie at bguthrie@..., or call 919-942-8083, ext. 1.
November 14th (Saturday)
- Parents of special needs children SUPPORT GROUP will meet 8:00 to 9:00 a.m. in the church Parlor at Orange UMC, 1220 Martin Luther King Jr. Blvd., Chapel Hill. Steevie Jane Parks, PhD, will facilitate the group. PLEASE NOTE: this is a time change for the group due to the all-day parent training from the Family Leadership Institute that meets 9:00 a.m. to 4:00 p.m. in fellowship hall at Orange UMC.
Kudos to Our Advocates by Lynn N. Giddens, PhD, Board of Directors Secretary
Mental Health Association in Orange County
(Pictured below, left to right: Julie Bailey, Lynn Giddens, Linda Boldin at the annual FAN picnic, June 2009)
Who are these women we call "Family Advocates?"
When I think of our program, the Family Advocacy Network, "FAN," I think of Linda Boldin and Julie Bailey. Each of these ladies bring a variety of complementary talents and expertise to this growing program. They are the guiding force and impetus behind FAN and all of us on the Board of Directors at the Mental Health Association are very proud of the work they both do on behalf of our organization, as well as on behalf of the community.
Most days of the week Linda can be found either on the phone or running to meet a parent whose child is struggling with a multitude of issues that too often result in a court appearance. She helps these parents to find vital resources in the community, she provides them emotional support and advice based on her seven years experience as an advocate and 30+ years as a parent of her own children for whom she learned to navigate the vast system of services. Linda works as FAN's court liaison, advocating for families in need, helping clients, teaching them advocacy and parenting skills, as well as encouraging their spirits, all the while applying the common sense and logic that everyone loves and has come to expect
from her. Several times I have overheard her making commitments to clients that are above and beyond the job description of an advocate, such as giving them a ride to an appointment when their car is in the shop, or arranging for food, clothing and even shelter when dire times have hit a family she serves. Family Advocates have come and gone over the program's nine-year history, but Linda has remained steadfast since being hired in 2002. Most of us look to her experience and longevity as nothing short of incredible.
Julie was the FAN program's first advocate when the program began in 2000. After laying the groundwork she had to take leave for a few years to tend to the growing needs of her three children who struggle with a variety of disorders. She came back as a volunteer in 2004 and by 2007 we were able to convince her to rejoin the team and help the program grow further. Some days it's difficult to find Julie in her office because she's out in the community attending school meetings with parents or helping them connect with a needed resource, or attending meetings for strategic working groups, committees, collaborations, or sometimes at trainings with Linda to learn more skills and resources that help the families they
serve. She works a great deal with the FAN program to develop community outreach, educational trainings and one-on-one supports for parents whose children have IEP or 504 Plans. Julie also coordinates the monthly parent trainings, support groups, publishes our FANtalk newsletter and manages our two websites. Her current devotion has been in working on the development of dedicated mental health services for transitioning young adults ages 18 to 25 and it was primarily for this endeavor that she was recently nominated and received a "Heroes in the Fight" award from the NC Coalition for Persons Disabled by Mental Illness.
Both Julie and Linda are incredible community worker bees who always go beyond the call of duty for the families they serve. They are often invisible to those who don't know to look for them because of their humble demeanors. Together, they are a dynamic team. As friends and co-workers, they are the symbol of 'Family' in Family Advocacy Network. Linda and Julie are 'heroes' to all of us who know them.
On behalf of the entire Board of Directors and the community I say, "Thank you," to Julie and Linda for their hard work and ongoing commitment to a program that serves the often forgotten and underserved population in our society. The FAN program would not be the driving force it is today without your leadership and kind spirits. Thank you both!
I am looking for an afterschool activity that involves other children in the
9-10 year range for my son with AS. He has a fairly wide range of interests
crafts, music, art and sports but needs to be in a totally non-competitive low
stress environment. Does anyone have any suggestions in the Chapel
Hill/Pittsboro area?
"Cathy M. Breshears"
<cathymarie@...> Sent by: asncoc@yahoogroups.com
10/21/2009 10:13 AM
To
Debra Dade <psalms234me@...>
cc
asncoc@yahoogroups.com
Subject
Re: [asncoc] Groups
Solomon Kobes conducts excellent social groups in Chapel
Hill. He's in private practice and he has a website. http://www.solomonlcsw.com/
I think he's especially good with boys. Some groups tend to center around
activities like craft projects which my son has no interest in. Solomon
plays games like Battleship and Jenga. Sometimes the kids even go outside
and play games where they get some physical activity and throw a ball around.
He also has book clubs and he's a Licensed Clinical Social Worker.
Cathy Breshears
Yeah...my son participated in Solomon's book
clubs several yrs. ago (think he was in middle school or early high school)
but that soon stopped as members started to drop out & now showing
up @ the mtgs.
On Oct 21, 2009, at 9:11 AM, Debra Dade wrote:
Is there social group
here for HFA in Chapel Hill or the Durham area. We attended the group in
Wake County and it was great!!!!!
Solomon Kobes conducts excellent social groups in Chapel Hill. He's in private practice and he has a website. http://www.solomonlcsw.com/ I think he's especially good with boys. Some groups tend to center around activities like craft projects which my son has no interest in. Solomon plays games like Battleship and Jenga. Sometimes the kids even go outside and play games where they get some physical activity and throw a ball around. He also has book clubs and he's a Licensed Clinical Social Worker.
Cathy Breshears
On Oct 21, 2009, at 9:11 AM, Debra Dade wrote:
Is there social group here for HFA in Chapel Hill or the Durham area. We attended the group in Wake County and it was great!!!!!
One of the few pieces of good news from the last legislative session, is that some CAP-MR/DD waiver slots were included in this year’s budget.
The state is still working on when these slots will be allocated to the Local Management Entities (LME).
What we know at this point is that the Division of Mental Health/ Developmental Disabilities/ Substance Abuse Services (MH/DD/SAS) has posted a chart on their website that shows how many supports and comprehensive waiver slots will be given to your LME, if and when the state allocates these slots.
ASNC believes that providing CAP-MR/DD waiver slots must be a state priority. Slots need to be allocated as soon as possible so that people with autism and their families who are waiting for services receive the support that they need.
ASNC will continue to educate and advocate with our state leaders about the vital importance of CAP waiver services to people with autism and their families.
If you are on the CAP–MR/DD waiting list:
Keep your application for CAP-MR/DD services updated with the most current information about your family and your need for services. Stay in touch with your case manager and the Developmental Disabilities Coordinator at your LME.
Let them know as soon as any family circumstances change that would highlight your need for CAP services.
Document phone contacts with your LME by also sending a follow up letter.
Check our ASNC blog regularly for the latest information about when and how these CAP- MR/DD slots will be allocated.
Yesterday, in a room packed with reporters and supporters, Coalition advocates called for a special session of the General Assembly to address the loss of services and supports for people with developmental disabilities, mental health and addictive diseases.
The Autism Society of North Carolina is one of the 42 organizations in the Coalition; organizations that advocate and provide services and support for nearly 340,000 of these NC citizens.
For more information about the press conference, use these links :
Governor Perdue responded to the Coalition by restoring $15 million dollars to lessen the impact of budget cuts to community services for people with developmental disabilities, mental health and addictive diseases.
The Autism Society of North Carolina joins with our Coalition partners in applauding the Governor for this important first step.
But we have still have a long and uphill journey ahead- to advocate for the restoration of all the necessary funding for vital community services for people with autism and other developmental disabilities.
Two actions to take today:
Local management entities (LME’s) are now developing plans to restore some services with their portion of this $15 million for state funded services.
1. If your services have recently been cut or reduced, contact your case manager and the developmental disabilities care coordinator at your LME to update and discuss your current service needs.
2. Contact Governor Beverly Perdue and thank her for this first step in restoring funds for people with autism and developmental disabilities.
Ask her to call a special session to take the remaining steps needed to restore funding for community services for people with autism and other developmental disabilities.
Tell her your story ; the need for services and the difference they make – or could make- in the life of your family.
Please share attached flyers with individuals, families, and professionals...
Thank you,
Lisa Townsend Parent Advocate Autism Society of NC 919-743-0204 X 36
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