From: rubiose <rubiose@...>
Subject: [apeced] Oral thrush
To: apeced@yahoogroups.com
Date: Monday, 8 June, 2009, 1:38 PM

Hi All,
I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son who is now 2 and half years old has had oral thrush since he was 9 months old. We would treat it and then each month it would return. It was pretty obvious when it started with a white on his tongue and white spots in the pockets of his cheek. Now he appears to only get a transparent white or grey film on his tongue with no white spots in the pockets of his cheek. Sometimes his voice is hoarse too. I don't want to leave it untreated but I sometimes question myself if it is thrush. If I take him to the doctor they say that thrush would be in the cheeks but I disagree; I think if is really bad it would be. Do any of you have experience as to what thrush can look like and when to treat it. If some of you have experienced it yourself maybe you can better explain to me how I can be sure it is thrush. Any advice on how you all treat it? Is it better to treat right away because can it get out of contol and effect the esophagus or liver etc? Does oral thrush hurt or bother the children? Do APECED children typically grow out of it and when? Is there anyway to support the immune system with diet or probiotics etc. Has anyone had success with this? Any advice would be greatly appreciated.
Thanks again so much for your help. I appreciate so much that there is a group I can reach out to.
Warm regards, Susan

From: Liz and James Yarker <theyarkers@...>
Subject: Re: [apeced] Re: Oral thrush
To: apeced@yahoogroups.com
Date: Wednesday, June 10, 2009, 9:12 PM

Hi Susan, The only question I can answer is about kids growing out of the yeast issues.  My husband is 25 and still has problems with thrush.  It usually only occurs when he is rundown or on antibiotics (or when his blood sugar levels are out of control as he has diabetes).  When James has antibiotics he also has a yakult a day and that seems to help.  When he needs Diflucan he has two tablets the first day and then takes one a day until a few days after the thrush goes away.  He has to be careful about taking too much diflucan as it can be hard on the liver and James has had liver trouble in the past.  However, with James the thrush doesn't recur immediately after he stops the tablets. Liz     -------Original Message----- --   From: rubiose Date: 11/06/2009 10:24:50 AM To: apeced@yahoogroups. com Subject: [apeced] Re: Oral thrush   Hi Anne, Thank you so much for your reply. That was great information. We have been treating Joseph with Diflucan for his thrush too, however only for a few days until the thrush resolves, but it does reappear in a month or two and we need to treat again. I was wondering the reasoning behind the 6 months of therapy. Why so long? Wouldn't it return once discontinued or is there a reason for the several months? I took Jospeh to a dentist the other day and he did tell me about a rinse that kills bacteria and yeast, it is used for bone marrow transplant patients who have a comprimised immune systems. I wonder if it is the same you are refering to. Also what is a yeast restricted diet? Has anyone tried certain probiotics and had success? Does anyone know if kids will grow out of the yeast issues at some point? Thanks so much. All the advice is so helpful. Susan --- In apeced@yahoogroups. com, anne ging <anneging5@. ..> wrote: > > dear rubiose and family, two of my children have apeced and both ahve oral thrush presenting in various forms-the white spots, coating on tongue and inner cheeks to a vague coating on the upper palate and tongue associated with dry mouth and occasional reflux signs. we live in Ireland nad the treatment recommeded to us was DIFLUCAN (anti-fungal) high dose for 2 weeks. this always worked. my eldst(she is 10) now has Gastro-intesetinal problems with recent endoscopy by GI specialist showing candidia growth in upper and middle oesophagus. she now is taking long term dose of Diflucan for 6 months. we all have adapted a yeast restricted diet and this definitely helps and she feels much better. they also attended a dental clinic in Trinity College Dublin(dental Hospital) TCDfor a clinical trial to investigate the link with candida and apeced. although my gang were negative on the swabs they still attend yearly for review. they suggest using KIN mouthwash but > not sure if you use with very young children. woudl you ahve access to a good dental research hospital who could assess the type of candida that your son has and recommend the appropriate treatment. Dr. claire Healy is the Professor in dentristry in TCD. > because my daughter has the GI symptoms now i would follwo up the treatment and go with your instinct. we are usually right as parents. take care and good luck with everything, > --- On Mon, 8/6/09, rubiose <rubiose@... > wrote: > > > From: rubiose <rubiose@... > > Subject: [apeced] Oral thrush > To: apeced@yahoogroups. com > Date: Monday, 8 June, 2009, 1:38 PM > > > > > > > > > Hi All, > I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son who is now 2 and half years old has had oral thrush since he was 9 months old. We would treat it and then each month it would return. It was pretty obvious when it started with a white on his tongue and white spots in the pockets of his cheek. Now he appears to only get a transparent white or grey film on his tongue with no white spots in the pockets of his cheek. Sometimes his voice is hoarse too. I don't want to leave it untreated but I sometimes question myself if it is thrush. If I take him to the doctor they say that thrush would be in the cheeks but I disagree; I think if is really bad it would be. Do any of you have experience as to what thrush can look like and when to treat it. If some of you have experienced it yourself maybe you can better explain to me how I can be sure it is thrush. Any advice on how > you all treat it? Is it better to treat right away because can it get out of contol and effect the esophagus or liver etc? Does oral thrush hurt or bother the children? Do APECED children typically grow out of it and when? Is there anyway to support the immune system with diet or probiotics etc. Has anyone had success with this? Any advice would be greatly appreciated. > Thanks again so much for your help. I appreciate so much that there is a group I can reach out to. > Warm regards, Susan > > > > > > > > > > > > > > > > > Send instant messages to your online friends http://uk.messenger .yahoo.com >