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Hi, My son was released Wed after two days in the hospital with low calcium & potassium. His endo is out of town but another endo saw my son and put him on...
Wow, that's a lot of calcium. When doctors have made changes with Julia's calcium and calcitriol too quickly she has been affected. I would ask for daily...
Hi Vicki, Sorry to hear about Ryan. Anything different happen that might have caused the drops? This happened to Tara a lot but they would raise the calcium...
I think it is important to listen to our doctors. But, I want to share my experience with calcium. I have had hypoparathyroidism since age of 9. My doctors for...
Hi Vicki, I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always went low on 4 - I've had to increase in my late 20's (but I'm also female) ...
YES - the body can only absorb 600 mg a time of calcium - so if you're taking a lot, you'd have to srpead it out over the day to get it in - I've also read...
... I agree, it is a lot of calcium. I have decided not to give him that dosage as Ryan was hospitalized several years ago while we were on vacation in Hawaii...
... Ryan did have a stomach virus last Friday which I am sure started the problem but it didn't last but one day. He started feeling tingling in his arms &...
... I am sorry to hear about your kidneys after all these years of trusting what your doctor told you. It is so difficult to know what it best for us. We...
... I guess it could be that Ryan's dose of calcitriol needs to be increased now that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at...
Hi Vicki, I just checked with Tara. She takes 2 mcg's of Rocaltrol pills(4 .5mcg. a day) but no oral calcium any more. This keeps her calcium levels in the...
Hi Dede, et.al., Tara has rather severe calcification of the kidneys from too much Vit. D and too much diarrhea. She started on Rocaltrol when she was 4 years...
Hi All, I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son...
Hi Linda, Â Ryan's endo raises his oral calcium when his levels are low instead of his calcitriol. That concerns me very much. He has not had his magnesium...
dear rubiose and family, two of my children have apeced and both ahve oral thrush presenting in various forms-the white spots, coating on tongue and inner...
Hi All, I am posting an email sent to both Vicki and myself, written by Jeanette Crossley. Jeannette has asked me to post ths because she believes it may be...
Hi Anne, Thank you so much for your reply. That was great information. We have been treating Joseph with Diflucan for his thrush too, however only for a few...
Hi Susan, The only question I can answer is about kids growing out of the yeast issues
My husband is 25 and still has problems with thrush. It usually only...
Liz thanks for your email. It is interesting that you say that your husband has had liver problems in the past becasue that is also something on my mind. ...
Hi Liz and Susan, Liver involvement is one of the diseases associated with APS Type 1 unually called autoimune hepatitis. Tara's liver enzymes would vary...
I do not want the entire group seeing these photos.Because some may recognize me. Here's the link: http://rasallover.zoomshare.com/files/photos.htm Enjoy babe...
I took Ethan to the endocrinologist today for a check up and she is checking Ethans thyroid.It is enlarged can anyone tell me what this is that is coming...
Hello all, I am new to this group. My daughter Kaitlyn is almost 19. She was diagnosed with APS in 1995 at the age of almost 5. Recently, calcium absorption...
Hi Maureen, sorry to hear about the absorption problems with your daughter, the same thing happens to my daughter now and then, and in fact we just got home...
Hi Maureen,   Welcome to our group.  My 26 yr old son, Ryan, was diagnosed at age 16 with Autoimmune Hep & PTH, age 19 with Addison's & Hypothyroidism....