Hi everyone, Julia, do you have your babe? Linda, I was wondering how Tara's ERG went and whether the docs gathered any useful information. My Julia is having...
Hi Jennifer, Tara had the ERG last Monday at Columbia University. She had no anesthesia, sedatives, etc. for the test. She said the test was perfectly pain...
Hello everyone, hope everyone is doing well. I am the mother of Joel (12 ½ yrs) who also has APS1. At the moment, he is doing very well and is not on any...
Hi Babette and Julia, Tara, as of now, does not have a confirmed case of retinitis pigmentosa. She has had every test, including the ERG, and her left eye is...
Hi everyone,  i wonder if any can help me with a question. Charlotte has recently developed a couple if stretch marks on her abdomen. Tis follows her...
Hi Karen, Julia was on high dose prednisone for a few months and she did develop a "beer belly" and her cheeks got bigger. She had a great appetite and gained...
hey hypoparathyroid dosnt necessaryly have to happen ,he is at very young age yet anyways.Have they checked for antibodies against parathyroid gland to see if...
I hope that you are all having a happy and healthy spring (autumn for our friends down under). Some time ago I wrote that Julia was going to have an ERG and...
Detailed Information About The Following Topic <http://bilalhealthclinic.com/index.htm> Cosmetic Surgery <http://bilalhealthclinic.com/Cosmetic%20Surgery.htm> ...
Hi, My son was released Wed after two days in the hospital with low calcium & potassium. His endo is out of town but another endo saw my son and put him on...
Wow, that's a lot of calcium. When doctors have made changes with Julia's calcium and calcitriol too quickly she has been affected. I would ask for daily...
Hi Vicki, Sorry to hear about Ryan. Anything different happen that might have caused the drops? This happened to Tara a lot but they would raise the calcium...
I think it is important to listen to our doctors. But, I want to share my experience with calcium. I have had hypoparathyroidism since age of 9. My doctors for...
Hi Vicki, I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always went low on 4 - I've had to increase in my late 20's (but I'm also female) ...
YES - the body can only absorb 600 mg a time of calcium - so if you're taking a lot, you'd have to srpead it out over the day to get it in - I've also read...
... I agree, it is a lot of calcium. I have decided not to give him that dosage as Ryan was hospitalized several years ago while we were on vacation in Hawaii...
... Ryan did have a stomach virus last Friday which I am sure started the problem but it didn't last but one day. He started feeling tingling in his arms &...
... I am sorry to hear about your kidneys after all these years of trusting what your doctor told you. It is so difficult to know what it best for us. We...
... I guess it could be that Ryan's dose of calcitriol needs to be increased now that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at...
Hi Vicki, I just checked with Tara. She takes 2 mcg's of Rocaltrol pills(4 .5mcg. a day) but no oral calcium any more. This keeps her calcium levels in the...
Hi Dede, et.al., Tara has rather severe calcification of the kidneys from too much Vit. D and too much diarrhea. She started on Rocaltrol when she was 4 years...
Hi All, I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son...
Hi Linda, Â Ryan's endo raises his oral calcium when his levels are low instead of his calcitriol. That concerns me very much. He has not had his magnesium...
dear rubiose and family, two of my children have apeced and both ahve oral thrush presenting in various forms-the white spots, coating on tongue and inner...
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