Hi All- I hope this message finds you all well and you are enjoying your summer. I was interested in getting some advice on treating oral thrush/candidiasis...
Hi Susan, I can only speak from expeience about this. Amy has suffered from Candidiasis on and off since she was very young. At first we noticed it in her...
Hi Susan, Julia had terrible oral thrush at 24 months and after the nyastatin didn't work, she was put on fluconazole for a week. That seemed to clear her...
Hi Ruboise, I agree with the other moms in treating the thrush with Diflucan (Fluconaze). It is effective but can only be given for a short period of time....
Hi Susan, Ethan first got candidiasis when he was about 10 months old.It started in his fingernails.He has been treated with diflucan sense he was one year old...
Hi everyone, Can anyone of you tell me if you have used growth hormone.Ethan has stoped growing and the doctors are wanting to try growth hormone on him to see...
Hi Donna, Tara stopped growing for a time when she was about age 5 and then grew very slowly through age 12. Growth hormone was regularly considered but the...
Hi all, Thank you so much for your responses on thrush. Right now it looks like he doesn't have an overgrowth in his mouth. We haven't treated it since May...
Hi everyone, I have a few questions for all of you.Ethan is in the hospital with an adernal crisis. They have also found that is potassium is so high that it...
Hi Donna, I hope Ethan is feeling better. Yes, this is something to watch out for because during stress times Ethan needs more cortisone. The problem is how...
Hi Linda            I have to let you know that Ethan was not sick when all of this happend.The doctors told me what to look for so this won't...
Donna, I'm so glad you were able to catch it with labs. It seems that I know how to tell if my own body needs extra cortisone, but how diffidult it must be to...
Hi Julia This is what the doctors are telling me that Ethan has the start of diabetes.When Ethan was in the adernal crisis his blood sugar stay at 108 to 112...
Hi Donna - this is a late response. I was on GH as a child because I stopped growing at about age 9 and went off the growth chart (negatively that is). I was...
Hi all, I am writing due to some concern for my nephew (my brother's son). He is 2.5 months old and has had thrush a few times already. It has recently...
Hi Julia, i am relatively new to the site. Joseph, now 22 months old was just diagnosed with his symptoms only being chronic thrush, and nail dystrophy, and...
Hi Julia, Wish I could help but Tara's symptoms were quite different. We didn't suspect anything was wrong until she was 2 1/2. Her only problems till then...
Hi Julia, It sounds like it would be genetically unlikely for your nephew to have APS, but if your sister in law is interested in testing, it might put her at...
Thanks everyone for your comments. Seems like we should wait it out until he turns 6 months to see what happens. My mother and I don't want to scare my...
Ethan is having eye problems he has dilated pupils alot and say the hurt when light its them. I was also wondering if any of you have problem with keeping your...
Hi Donna, I'm sorry to hear about Ethan's eyes. Julia's pupils started to dilate at around 14 months and within a year they were very sensitive to light. Julia...
Hi Julia Ethan already has Addison's.I bet they have forgotten about the calcium levels.They have told me that Ethan does not go by the books like everyone...
Hi Donna, We are told continually that "Julia is Julia" and she doesn't go by the books either, but the more I hear from people in this group, the more I think...
Please see below. Jennifer Orange Torys LLP ... From: Jennifer Orange <jenniferorange@...> To: Orange, Jennifer Sent: Wed Sep 17 11:53:15 2008 Subject:...
Thanks, Jennifer, for updating us on this important piece of research. Rituximab, or Rituxan as it is known here in the U.S., has had positive effect for...
Hi All - Hope you all are doing well and in good health. I have a two part question that I was hoping I could get some advice on. My son, Joseph is now two...
Hi Susan, I'm not sure about most of your questions, but I do know that James (my husband) has the flu vaccine every year since he can remember and has no ...
Hi Susan, I also have received the flu vaccine every year. It doesn't always prevent me from the getting the flu, but compared to all my officemates (who...
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