Our daughter Julia has had night sweats on and off for the past year. They are really bugging her this time. Does anyone else experience these? Any idea why?...
Hi, James has night sweats on occasion - and definitely sweats a lot if he gets hot (which is why I have banned him from using the electric blanket). We asked...
Hi again, I should read all my emails before I write any! I was just reading through emails from the Australian Addison's Disease mailing list and they were...
Hello, our 19 month old son was just diagnosed with APECED. It was confirmed with a genetic test. His symptom was candidiasis - recurring, a rash that lasted 6...
Welcome to the group. I am sorry to hear about your son. The diagnosis is very hard to come to terms with, especially with all of the different symptoms...
Hello, My name is Donna and my son Ethan was diagnosed in january, he is 6 years old. It took the doctors 5 years to diagnose him we went threw alot of...
Hi, My name is Julia - I live in Ohio and am now 27. I was diagnosed with APECED at age 5. I first showed symptoms of candidiasis, like your sone. It is...
Please let us know any way we can help you and get you the information you need. My daughter is 36, graduated with a BA in Merchandising and another degeree in...
Thank you all so so much for your encouraging words. It is giving us so much hope with all the uncertainty we are going through. The messages made us cry at...
We are new to yahoo groups - and realized in an effort to reply to you all - we mistakenly started a new thread entitled "Thank you......" We wanted to be sure...
HI,  My 25 yr old son also has APS1. We live in Houston, Tx. His also began at an early age with yeast and eye problems but was not diagnosed until age...
Hi, We also live in chatsworth,ga if there is anything we can help you with we will be glad to. Â Â Â Donna ... From: rubiose <rubiose@...> Subject:...
When eye problems are mentioned with APS 1 what specific kinds of problems do you usually see? We are in the process of figuring out if my son has APS1 or...
Hi Angie- My daughter Emily has had eye problems since the very beginning with this disorder, and in fact it was the photophobia (light sensitive eyes) that...
Elisa has had eye problems sins she was 3 years old she is six now. It is red eys ofen with lumps in her eyelashes. It dosent goes away during the treatment...
Hi All- I hope this message finds you all well and you are enjoying your summer. I was interested in getting some advice on treating oral thrush/candidiasis...
Hi Susan, I can only speak from expeience about this. Amy has suffered from Candidiasis on and off since she was very young. At first we noticed it in her...
Hi Susan, Julia had terrible oral thrush at 24 months and after the nyastatin didn't work, she was put on fluconazole for a week. That seemed to clear her...
Hi Ruboise, I agree with the other moms in treating the thrush with Diflucan (Fluconaze). It is effective but can only be given for a short period of time....
Hi Susan, Ethan first got candidiasis when he was about 10 months old.It started in his fingernails.He has been treated with diflucan sense he was one year old...
Hi everyone, Can anyone of you tell me if you have used growth hormone.Ethan has stoped growing and the doctors are wanting to try growth hormone on him to see...
Hi Donna, Tara stopped growing for a time when she was about age 5 and then grew very slowly through age 12. Growth hormone was regularly considered but the...
Hi all, Thank you so much for your responses on thrush. Right now it looks like he doesn't have an overgrowth in his mouth. We haven't treated it since May...
Hi everyone, I have a few questions for all of you.Ethan is in the hospital with an adernal crisis. They have also found that is potassium is so high that it...
Hi Donna, I hope Ethan is feeling better. Yes, this is something to watch out for because during stress times Ethan needs more cortisone. The problem is how...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
