Hi Vicki, I wonder if you can help us. Amy is travelling to Houston in July for 3 weeks work experience then onto Los vegas for 1 week. Saw her endo today...
HI Karen, I will be more than happy to help. My son sees an endo here in the Medical Center. Her name is Morali Sharma, MD. Her address is 6620 Main, Suite...
Translating for Wendy Kassar, mother from Argentina of 11yr old with APS1. Hi Rosa & Linda and everyone from the forum. I would like to ask a question to know...
Hi Wendy, My daughter (3yrs) started taking Immuran in January. The hope was that it would help her malabsorption, dry mouth and eyes, as a trial of prednisone...
--Hi Wendy, and Jennifer The doctors have put Ethan on prograf for his malabsorption and his diarrhea. To see if it will help him. He has just been on the ...
Hi Wendy, Tara was put on Inmuran last year for autoimune hepatitis. She reacted poorly to the drug. Instead of helping to lessen her diarrhea it made it...
Our daughter Julia has had night sweats on and off for the past year. They are really bugging her this time. Does anyone else experience these? Any idea why?...
Hi, James has night sweats on occasion - and definitely sweats a lot if he gets hot (which is why I have banned him from using the electric blanket). We asked...
Hi again, I should read all my emails before I write any! I was just reading through emails from the Australian Addison's Disease mailing list and they were...
Hello, our 19 month old son was just diagnosed with APECED. It was confirmed with a genetic test. His symptom was candidiasis - recurring, a rash that lasted 6...
Welcome to the group. I am sorry to hear about your son. The diagnosis is very hard to come to terms with, especially with all of the different symptoms...
Hello, My name is Donna and my son Ethan was diagnosed in january, he is 6 years old. It took the doctors 5 years to diagnose him we went threw alot of...
Hi, My name is Julia - I live in Ohio and am now 27. I was diagnosed with APECED at age 5. I first showed symptoms of candidiasis, like your sone. It is...
Please let us know any way we can help you and get you the information you need. My daughter is 36, graduated with a BA in Merchandising and another degeree in...
Thank you all so so much for your encouraging words. It is giving us so much hope with all the uncertainty we are going through. The messages made us cry at...
We are new to yahoo groups - and realized in an effort to reply to you all - we mistakenly started a new thread entitled "Thank you......" We wanted to be sure...
HI,  My 25 yr old son also has APS1. We live in Houston, Tx. His also began at an early age with yeast and eye problems but was not diagnosed until age...
Hi, We also live in chatsworth,ga if there is anything we can help you with we will be glad to. Â Â Â Donna ... From: rubiose <rubiose@...> Subject:...
When eye problems are mentioned with APS 1 what specific kinds of problems do you usually see? We are in the process of figuring out if my son has APS1 or...
Hi Angie- My daughter Emily has had eye problems since the very beginning with this disorder, and in fact it was the photophobia (light sensitive eyes) that...
Elisa has had eye problems sins she was 3 years old she is six now. It is red eys ofen with lumps in her eyelashes. It dosent goes away during the treatment...
Hi All- I hope this message finds you all well and you are enjoying your summer. I was interested in getting some advice on treating oral thrush/candidiasis...
Hi Susan, I can only speak from expeience about this. Amy has suffered from Candidiasis on and off since she was very young. At first we noticed it in her...
Hi Susan, Julia had terrible oral thrush at 24 months and after the nyastatin didn't work, she was put on fluconazole for a week. That seemed to clear her...
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