Hello Angie, Have you seen an endocrinologist yet? I do not know where you are geographically. But, you may want to put out the name of your city and country...
My daughter Elisa 6 years old recently got her diagnose APS 1 after years of sickness. No doctor here in Sweden new why she was so sick al the time. It started...
Thank you for the reply! We live in the Dallas/Fort Worth area. Angie ... you may want to put out the name of your city and country and see if any listserve ...
I believe there are others on this board from that area as well. Also, I wanted to say too, that APS 1 does have a tryad of disorders that most of us have...
HI Angie, Welcome to our group. My 25 yr old son was diagnosed with APS1 at age 16 and we live in Houston. We see an Endo here in the Medical Center. I know...
--Hi Angie, Welcome to the group it has been a lifesaver for me.My son Ethan has aps1.We just found out in January that he has aps1.You are in the wright place...
Thank you for all the replies. We have not seen a pediatric endocrinologist yet. We will be making an appointment with one soon. If anyone knows of a good...
HI Angie, My son's endocrinologist name is Dr. Morali Sharma. She is with Baylor College of Medicine here in Houston. I think she is knowledgeable in APS but I...
Hi Everyone, There is a mom in Argentina whose child has APS 1 and she has many questions and would like to participate. But she doesn't speak any English....
Hi Linda, My best friend speaks and writes Spanish and would be happy to help out if there is no one on this list who can. Let me know. Liz ... From:...
Hi Linda, I can speak and write in Spanish. My son has APS1 and will be 12yrs. in August. My son is doing well now and is not taking any medications. I wonder...
Hi Rosa and Liz, Thanks so much for your quick responses. I think it might be easier for Rosa to do this since she has a background in APS 1. But Liz please...
Hi Rosa, I was excited to hear how well your son is doing. Could you please explain how he is off all medications? I never thought of that as a possibility! ...
Hi Everyone, I have an appt. for Emily on Tuesday with her Endocrinologist for a routine exam & checkup, and we are also going to see a Dermatologist, as a...
Hi Jennifer, My son, Joel was diagnosed with APS1 when he was 9 yrs old. He used to get thrush in the mouth when he was 11 months old until he turned 5. He...
Hi Jaci, Hope all is going well. I am so glad to hear Emily is not having adrenal issues, and her eye exam was good news. Is she still using Restasis? We have...
Hi Vicki, yes, Emily is still using Restasis drops 3-4 x a day, and also she started using Alrex drops 2 x a day as well in January. She is still light...
Jaci, I haven't had the hair loss but the nail dystrophy/cracking comes and goes for me - I take Lamisil for toes and diflucan for other infections (it's been...
Hi Jaci, I have had APS1 since age of 9. I have had ridges in my nails and splitting since about age 6. Nothing I have done has helped them, but to just take...
Hi everyone, I am translating for Wendy Kassar from Argentina. She is the mother of Anita Eugenia who is 11yrs old and has APS1. She was diagnosed this year....
Hi Wendy, Welcome to this group of very caring people. We try to help one another in so many ways- medically, emotionally, supportively, etc. I understand...
Hi Rosa, I am replying to Wendy and hope you can translate for her. It's regarding the leg pains that she said har daughter is experiencing. Charlotte had...
Hi! Welcome to the group My daugther is 6 and has APS 1 since august last year we have been strugling with her since she was 6 month old with fungus in her...
Hi Karen, I emailed your info translated in Spanish to Wendy. ********* Una usaria del grupo llamada Karen tiene una hija, Charlotte que sufria de dolores en...
(Maja your message is translated below to Wendy) Wendy, este emsaje es departe de Maja: Hola! Bienvenidas al grupo. Mi hija de seis años tiene APS1 desde el...
Reply translated from Wendy Kassar: (mother of 11yr old with APS1) Hi Maja, thank you for replying back and thanks again to Rosa for translating for me. We...
Hi Vicki, I wonder if you can help us. Amy is travelling to Houston in July for 3 weeks work experience then onto Los vegas for 1 week. Saw her endo today...
HI Karen, I will be more than happy to help. My son sees an endo here in the Medical Center. Her name is Morali Sharma, MD. Her address is 6620 Main, Suite...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
