I am new to all of this my 6year old son has aps1,candidiasis,addison,and the new new one hypoparathyroid.It has took us 6 years to find out what is wrong with...
Welcome to our message board. We will all try to help because we all know how difficult it is having a young child with APS 1. First of all where in the US do...
... for a few days then he has diarrhea for a few days he is losing weight and he drinks all the time.Where are you from.We were told they are not many people...
Hi Donna, I live in Australia so I'm definitely not near :-). Just a quick note to say welcome. My husband has APECED - he is 24. I'm glad you found this...
-Thank you Liz for the reply your story is one of the first I found on line you don't know how much it has helped me to read your story.Thank you once again. ...
Hi Donna, Welcome to the group. I live in Toronto, Canada and have a 3 year old with APECED. We have had a scary couple of years with Julia as the doctors...
--Hi Jennifer, When Ethan is not feeling well sunlight hurts his eyes. They told us he has Irithes in his eyes and he has to use drops in them. Donna ... old...
Hi Donna, welcome to our group! My daughter Emily has APECED as well, she is 9, turning 10 at the end of March. I remember the year that all of her symptoms...
Hi, Welcome to this group! It has been an invaluable help to me. I am Julia, 27 years old with APS type I (candidiasis, hypoparathyroidism, human growth...
Donna, I've had Addison's for about 17 years now - it really is one disorder where proper medication can treat quite well. You do have to monitor for what we...
... Welcome to our group. My son is 25 and has cornea keratitis, Candidias, Hypoparthyroidism, Thyroid insufficiency, autoimmune hepatitis, and addisons. We...
Thank you so much for the reply it means so much to me to know there is other people out there with aps1.Thank you Donna Jaci OBrian <jaciobrian@...>...
Thank you so much for the reply.I am so greatful to have people that I can ask questions.Thank you so much. Donna juliap99 <juliap99@...> wrote: Hi, ...
Thanks for the reply about Addison's to me I think it has scared us more than any of the other things Ethan has.thank you so much. donna Julia Peterson...
Thank you so much for the reply.I am sure I will have questions.I am glad I found this group. Thank you so much. Donna ... Welcome to our group. My son is 25...
Ethan is having real bad Gi problems they aare now running tests to see if they can find the problem. We will eat alot for a few days and then he will have...
Hi Donna, My daughter was diagnosed with hypoparathyroidism at age 3 along with severe diarrhea malabsorption. At age 6 she developed Addisons, age 14...
Linda, We are going to the gi doctor on monday they took a biopsy of Ethan's small intestine.They sent it to a Doctor at ucla who is doing a study of people...
Hi Donna, If not too much trouble, could you send the name of the doc at UCLA doing the GI study? I would like to pass the name onto Julia's GI doc as Julia...
Jennifer, When I go to the doctor on Monday I will ask him the name of the doctor.The doctor at ucla is who Ethan's doctor studied in under and I will be glad...
I would also love to know the name - I've been having recent GI distress and have had a CT scan a month ago and colonoscopy soon - but my GI doc is baffled and...
This is what they told us today at the doctors office.Ethan has enteroendorine cells missing in his small intestine.They have only knew of these cells for...
Hi everyone, I know you have been talking about diarrhea but I have a question about the other end of the scale! lol. James has trouble with constipation -...
Hi Donna, Thanks for the information. My Google search came up with this site: http://www.mattel.ucla.edu/diarrhea/julypress.html It discusses recent research...
Liz, YES!! I thought I had to be the oddball here, but I am currently seeing my GI because of severe constipation - it's really slowing down. I've always had...
Linda, The live bacteria the are using is Lactinex Granules.We use a half a pack in the morning and half a pack in the evening.We put it in his food or...
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