I'm just curious - what do you mean by "hypos"? since that just means low - are you referring to hypoglycemia (low blood sugar?) or calcium? Julia ... Moody...
Oops! Too used to talking to Diabetics! James has Type 1 Diabetes and was having hypoglycaemic episodes. He also did think his calcium was low but that...
... My son, Ryan, has the same symptoms when he gets the overgrowth of yeast. He is now taking Diflucan 100mg daily. I think you mentioned in a previous email...
Hi Vicki, I take diflucan (150mg) once when I am getting a vaginal yeast infection and it knocks it out right away - I'm sure ryan doesn't have this problem...
Hi Julia, Ryan has the same problem of eating and get full very fast like you said you experienced. Would you say that would qualify as slow GI motility? Did...
Yes, You CAN get tested for GI motility - rather simple test really. It is called a "gastric emptying scan". It is outpatient and noninvasive. The patient...
Hi Linda, Gastoparesis symptoms: I feel very full after eating only a small amount of food - five minutes worth of eating I would say. I stay full for quite...
Hi, It might be a silly questions but I was actually wondering how you say APECED. Do you just say the letters or is it turned into a word? I have only...
Hi Liz, I say it as a word, but I have no idea if that is how it is commonly known. On another topic, I was wondering if we should start a sort of database on...
Hi Jennifer, Having a list of doctors info sounds like a good idea although I live in Australia so might not get that many on the list!! James and I are...
Hi All, I emailed Todd, who runs the APS1.org web site and he is happy to set up this data base as long as we have permission from the doctors. I can collect...
To all my friends I wish you the happiest of holidays as we start the year 2008. I hope and pray you will all have a wondeful new year as together we operate...
Thanks, Linda for your good wishes for the coming year. I too hope and pray for better health and treatments for our children and friends. Have a very Happy...
Merry Christmas & a Happy New Year to Everyone from our family as well! I too hope 2008 brings new information on APECED and improved health for all of...
HI friends, I've been having some rather disturbing GI symptoms lately and am getting frustrated that I can't seem to get in contact with my GI doctor - I have...
Hi Julia, Do you have Addison's disease by chance? If so, that can play a factor in GI issues if for some reason it is not managing well with the meds. You...
Yeah, I've had Addison's since I was about 11 (27 now) - I don't think it's related, although you are right, that abdominal problems accompany an Addison's...
Julia, what you describe is yeast in your stomach. People talk about this from time to time on this list serve. I just tried to do a quick google search for...
Julia, what you describe is yeast in your stomach. People talk about this from time to time on this list serve. I just tried to do a quick google search for...
Yeah, I'm thinking you're right - I've actually had yeast in my stomach before and now that I think about it, it is very familiar - I've never had the lower GI...
Hello everyone, I haven't posted in a long time. My daughter, also a Julia (3 yrs) has spent almost a year in hospital. She has had a terrible time with...
Hi Julia, Tara has been having very severe episodes of malabsorption since she was 26. She has had many diagnoses inclusing the PA, Fat malabsorption, lack of...
Linda, Thanks for the information. I am heading to my gastroenterologist tomorrow and will tell her that another person with my similiar conditions of APS has...
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