Hello to all of you. I am joining this group because my 32 year old daughetr has APECED, APS 1, and I feel it is important to share information and support to...
Hello All, I am Gerald Armstrong, I would like to be in this group because of the fact that there are so few of us with this syndrome. I am more than willing...
Hi Jerry, Welcome to this board. I was hoping to attract people with APECED so we could share information and experiences and act as a supporting forum...
Hello All, This syndrome is complex to say the least. First the difference between a disease and a syndrome. A disease affects and organ or group of tissues...
hi, i am a mum of a seven year old boy who has apeced syndrome, we are from belfast and as of yet i know of no one who has apeced in n.ireland, and i feel that...
Hi Kathy, I am glad you found the APECED site. My daughter is 34 and was diagnosed with HPTH at age 3. I know how difficult it is for you and your son and...
hi linda, my sons name is jason and he was born a healthy baby. it was when he was 14 months that Jasostarted having quite a few problems with his health. He...
hi everyone, came upon this site as I was browsing apeced. I am a mom whose three daughters diagnosed with apeced. All three followed same progression....
... so ... is ... years ... of ... your ... has ... was ... later ... My ... then ... apeced ... these ... the ... the ... has ... this ... this ... Hi Linda, ...
Hi karen, My name is kathy jones and i recieved an email from yourself today, and i just wanted to say welcome, i am so sorry to hear about your 3 daughters my...
Hi Kathy and Karen, I am glad both of you found this board and the timing couldn't have been better. So many exciting things are finally happening. There is...
Hi Linda and everyone, I am so happy that this support group was created. I am glad that we met 2 weeks ago at Dr. Maclaren's office. My 10yr old son, Joel...
Hello Everyone, Thank you Linda for sending me this site.I'd like to let you know about my 24 yo daughter, Becky.( see picture in photos) She has APS 1. It all...
Hi Rosa, I also found the Sunday breakfast at Dr. Maclaren's office an unbelieveable experience. For those of you that are not patients of Dr. Maclaren or live...
My 24 yr old son has APCED. It began with an eye condition at age 4, then candidias soon after, and at age 15 was diagnosed with autoimmune hepatitis and HPTH....
Hello everyone. I am 41 years old and live in France. I have APS. I had the good fortune of finding a doctor in Geneva (which I live very near to) who headed...
Hi everyone, Since joining this group 3 days ago I have been checking my emails every day. Can't believe it, we have had more messages in the last few days...
Hi everybody, I'm a bit of a computer idiot so its taken me a few days to get set up so that i can post. I have been in contact with Linda for about 2 years...
hi vicki, my son jason whom has apeced also has inflammation of the cornea in both eyes, and severe dry eyes, when he was just 14 months old i was told that...
Dear Jacqueline, I have APECED, and yes the doctors told me a long time ago to expect ovarian failure. I have had this condition since the age of 9, am now 41,...
HI all, I'm new to the group - a veteran of APS I though as some others I've seen on here. I am 26 and have had this for 23-24 years. I was diagnosed late...
HI LInda, I was reading previous posts and your daughter's journey sounds very similar to mine. I hope we can be of support - I am 26 now and have just...
... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the corneas at age 4, then chronic yeast infection...
... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the cornea at age 4, then chronic yeast infection of...
Hi Vikki, Thanks for the information and encouragement. Please send my encouragement to your son. I know how hard college can be when your health is not...
... Thanks, I will give my son your message. Congratulations on finishing college. I hope things go well for you. My son sees an endo here at Baylor College of...
Hi everyone, i have been told that my young son will develope addisons before Adolescence and also diabetes around this time, he is currantly seven years old...
I am so glad you found this group. My daughter said she prefers emails to a message board so anyone should feel free to email her at littlered611@... ...
Hi Julia, i also was wondering where apeced came from in my family i thought it came from iran or finland but i have since discovered that it may orginate from...
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