Hi everyone, Since joining this group 3 days ago I have been checking my emails every day. Can't believe it, we have had more messages in the last few days...
Hi everybody, I'm a bit of a computer idiot so its taken me a few days to get set up so that i can post. I have been in contact with Linda for about 2 years...
hi vicki, my son jason whom has apeced also has inflammation of the cornea in both eyes, and severe dry eyes, when he was just 14 months old i was told that...
Dear Jacqueline, I have APECED, and yes the doctors told me a long time ago to expect ovarian failure. I have had this condition since the age of 9, am now 41,...
HI all, I'm new to the group - a veteran of APS I though as some others I've seen on here. I am 26 and have had this for 23-24 years. I was diagnosed late...
HI LInda, I was reading previous posts and your daughter's journey sounds very similar to mine. I hope we can be of support - I am 26 now and have just...
... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the corneas at age 4, then chronic yeast infection...
... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the cornea at age 4, then chronic yeast infection of...
Hi Vikki, Thanks for the information and encouragement. Please send my encouragement to your son. I know how hard college can be when your health is not...
... Thanks, I will give my son your message. Congratulations on finishing college. I hope things go well for you. My son sees an endo here at Baylor College of...
Hi everyone, i have been told that my young son will develope addisons before Adolescence and also diabetes around this time, he is currantly seven years old...
I am so glad you found this group. My daughter said she prefers emails to a message board so anyone should feel free to email her at littlered611@... ...
Hi Julia, i also was wondering where apeced came from in my family i thought it came from iran or finland but i have since discovered that it may orginate from...
Hi, I have just become a member since being told about this site from my friend Kathy who is already a member as her son Jason has APECED. I wanted to share my...
... It is so nice to talk to another mom whose child has an eye condition with APCED. My son eyes used to be very light sensitive, but now they are not as bad...
Goodmorning to everyone, I can only repeat what I said yesterday, what a wonderful response we are having on this board. Two areas are being discussed which ...
Hi vicki, Jason's eyes seem to be getting better from they realised that his vitamin A levels where low. The doctor use to describe Jasons eye like the shape...
Good morning karen I was greatful, that you took the time to answer my question thanks, i was told that apeced was made up of three parts, 1.Candidiasis , 2....
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1475656 Good morning everyone! I am trying to send the links to the latest research studies at...
Hi Kathy, That is wonderful the Vitamin A has helped your son so much! I know it is difficult putting him under general anesthetic. I hope things go well at...
HI Karen I have also read in research articles that diabetes is less common with APS type 1 and more commonly seen (actually is part of the triad) in APS type...
HI Vicki, We struggled with the prednisone dosage for a while - first it was when, and then it was how much. I eventually have come to what I consider the...
Hi Julia, My son is currently on the same dosage as you are, 5mg in the am, and 2.5mg at dinner. It was increased to this dosage about a year ago. He still...
My daughter has problems with her calcium dropping in the fall when she doesn't get as much sun. She has used tanning to increase her 25 hyroxy Vitamin D...
Thank you Linda and everyone who responded to my email and for your support and beautiful replies. My mind is much clearer now and am determined to speak to...
Hi everyone, Just thought I'd throw out a question. Does anyone have remedies for fungal infections in the toenails or on the skin on the feet? I have been...
Hi Julia, Amy had severe candidiasis fungal infections in har nails for many years. We tried many different preparations to no avail. Eventually we went to...
My daughter has used Diflucan( fluconazole) for her candida infections with good results. Her local doctors don't seem to understand that this is part of the...
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