Hello everyone, We haven't poseted anything since our initial email searching for doctors who are knowledgable about Apeced. At that time Julia was still in...
Hi Jennifer, I am glad you have an appointment with Dr. Deal. I think this might help because my daughter cannot tolerate the calcium carbonate either so she...
Thanks, Linda. That is very helpful. Jennifer ... From: apeced@yahoogroups.com <apeced@yahoogroups.com> To: apeced@yahoogroups.com <apeced@yahoogroups.com> ...
Linda, one more question on this point. How did you know that it was the calcium carbonate that was causing your daughter trouble? Julia has been vomiting off...
Hi Jennifer, Tara had been on a different oral calcium called Neocalglucon for several years. She was diagnosed at age 3 1/2 and by the time they took...
There are also Viactiv chews you could always try. I have been taking Calcium citrate for some time now and only ever notice burping afterwards. Of course, I...
Thanks to all for the helpful responses. We found a liquid calcium gluconate supplement. The only supplier of the product in Ontario seems to be Walmart of all...
Hi Jennifer, Thanks for keeping us posted. The syrup you are using is probably the same formulation as the one Tara uses. I recently learned that it is best...
Linda, I also was informed recently by my endo that doctors are trying to manage hypoparathyroidism with as minimal calcitriol as possible and as much oral...
Hi Julia, One reason for the lower calcitriol doses may be the build up of calcium in the kidneys. The oral calcium is less likely to cause this. I was also...
Hi Linda, If you don't mind, why is Tara taking Imuran. The reason I am asking, Jessica went to Seattle last week, she was seen by a couple of m.d. there,...
Hi Mary, Tara is taking Imuran for autoimmune hepatitis. However her levels didn't come down until she had a round of IVIG last week. She was in the hospital...
Dear Jennifer, Hello I am Jerry. First I am a person with Polyglandular type II. Second I am not a doctor so anything I say is just a layman telling stories......
Becuase Tums is an antacid, it impedes the absorption of calcium. Therefore I was advised that taking Tums for calcium was not efficient. You will get only...
Hi Jerry, Jennifer, Julia, etc., APS 1 is such a complicated illness that it requires the most complex of treatments and the most knowledgeable doctors in the ...
hello everybody, i am karens daughter, amy.Im posting this today as i have candidiasis in my mouth, and i am worried that it has spread to my stomach or ...
Hi Amy, I am Tara's mom and she also has stomach difficulties similar to yours. But she doesn't have the candidiasis so I don't know if you both have the same...
... Hi, I seldom visit this group, because my 6y son has no confirmed apeced dgn, but he has chronic mycocutaneous candidiases since birth and hypocalcemia and...
Hi Amy, I'm Julia (27 year old with APS type 1) And Yes, I have experienced candidiasis in my esophagus and stomach. I first experienced aruond the time I...
Hi Amy, I'm Julia (27 year old with APS type 1) And Yes, I have experienced candidiasis in my esophagus and stomach. I first experienced aruond the time I...
Hi , Thanks for the info on candidiasis. Amy phoned her endo today and he arranged for her to go straight into hospital for tests. I've just got back from...
Thanks to everyone for the info on candidiasis. Amy has come out of hospital today. Diagnosis low calcium 1.8 and endoscopy showed candidiasis in her...
Greetings all, Adding my perspective to the recent discussion about managing candida… There is quite a lot of evidence and experience indicating that courses...
Hi Jeanette, I found your information on candidiasis extremely helpful. Amy has been prescribed only 2 weeks on diflucan. When we next go to see endo i shall...
I have also been told to limit this (diflucan) to the times when I really need it. It falls under the class of antifungals that can be harmful to liver - like...
Hi Everyone, I also found the postings on the Candidiasis very interesting. I am a 25 year old female with APECED....I have had Candidiasis problems since age...
Hi Everyone, Is there anyway to tell if candidiasis is in the stomach and intestines? Could this cause malabsorption? Thanks. Linda ... am ... problems ... 17 ...
Hi Linda, When I get yeast overgrowth in my stomach and esophagus, it usually causes decreased if not little to no appetite, burning upon eating, and slowed...
Hi Everyone, I haven't said much on this group but I have to say thanks for all the info on candidiasis. In the last few weeks James has had a trying time...
I'm just curious - what do you mean by "hypos"? since that just means low - are you referring to hypoglycemia (low blood sugar?) or calcium? Julia ... Moody...
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