Hi Kathy,

I am glad you found the APECED site.  My daughter is 34 and was diagnosed with HPTH at age 3.  I know how difficult it is for you and your son and would love to know more about him. 

I also have much more news for you but it is early here in NY and I have to get to work so i will email you later with much more information.

Best wishes,

Linda

----- Original Message -----
From: kathy
Date: Tuesday, October 24, 2006 5:11 am
Subject: [apeced] apeced
To: apeced@yahoogroups.com

> hi, i am a mum of a seven year old boy who has apeced syndrome,
> we are
> from belfast and as of yet i know of no one who has apeced in
> n.ireland, and i feel that this site could be a great support
> network,
> i am on speaking terms with a really lovely lady whom has apeced
> in
> london and she has given me great advice and hope for my sons
> future, i
> am also in contact with jeanette, from jeanettes web site and
> the
> advice they have both given me over the last few years has been
> brillant, i think that its great that to speak with people who
> know
> what my son i going through, take care kathy
>
>
>