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apeced · APECED SYNDROME
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Reply | Forward Message #6 of 593 |
hi, i am a mum of a seven year old boy who has apeced syndrome, we are
from belfast and as of yet i know of no one who has apeced in
n.ireland, and i feel that this site could be a great support network,
i am on speaking terms with a really lovely lady whom has apeced in
london and she has given me great advice and hope for my sons future, i
am also in contact with jeanette, from jeanettes web site and the
advice they have both given me over the last few years has been
brillant, i think that its great that to speak with people who know
what my son i going through, take care kathy





Tue Oct 24, 2006 9:11 am

kateee5j
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Message #6 of 593 |
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hi, i am a mum of a seven year old boy who has apeced syndrome, we are from belfast and as of yet i know of no one who has apeced in n.ireland, and i feel that...
kathy
kateee5j
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Oct 24, 2006
9:11 am

Hi Kathy, I am glad you found the APECED site. My daughter is 34 and was diagnosed with HPTH at age 3. I know how difficult it is for you and your son and...
lsquittman@...
lsquittman
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Oct 24, 2006
12:49 pm

hi linda, my sons name is jason and he was born a healthy baby. it was when he was 14 months that Jasostarted having quite a few problems with his health. He...
kathy
kateee5j
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Oct 25, 2006
11:12 am
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