Hi Anne,
Thank you so much for your reply. That was great information. We have been
treating Joseph with Diflucan for his thrush too, however only for a few days
until the thrush resolves, but it does reappear in a month or two and we need to
treat again. I was wondering the reasoning behind the 6 months of therapy. Why
so long? Wouldn't it return once discontinued or is there a reason for the
several months? I took Jospeh to a dentist the other day and he did tell me
about a rinse that kills bacteria and yeast, it is used for bone marrow
transplant patients who have a comprimised immune systems. I wonder if it is
the same you are refering to. Also what is a yeast restricted diet? Has anyone
tried certain probiotics and had success? Does anyone know if kids will grow
out of the yeast issues at some point?
Thanks so much. All the advice is so helpful. Susan



--- In apeced@yahoogroups.com, anne ging <anneging5@...> wrote:
>
> dear rubiose and family, two of my children have apeced and both ahve oral
thrush presenting in various forms-the white spots, coating on tongue and inner
cheeks to a vague coating on the upper palate and tongue associated with dry
mouth and occasional reflux signs. we live in Ireland nad the treatment
recommeded to us was DIFLUCAN (anti-fungal) high dose for 2 weeks. this always
worked. my eldst(she is 10) now has Gastro-intesetinal problems with recent
endoscopy by GI specialist showing candidia growth in upper and middle
oesophagus. she now is taking long term dose of Diflucan for 6 months. we all
have adapted a yeast restricted diet and this definitely helps and she feels
much better. they also attended a dental clinic in Trinity College Dublin(dental
Hospital) TCDfor a clinical trial to investigate the link with candida and
apeced. although my gang were negative on the swabs they still attend yearly for
review. they suggest using KIN mouthwash but
> not sure if you use with very young children. woudl you ahve access to a good
dental research hospital who could assess the type of candida that your son
has and recommend the appropriate treatment. Dr. claire Healy is the Professor
in dentristry in TCD.
> because my daughter has the GI symptoms now i would follwo up the treatment
and go with your instinct. we are usually right as parents. take care and good
luck with everything,
> --- On Mon, 8/6/09, rubiose <rubiose@...> wrote:
>
>
> From: rubiose <rubiose@...>
> Subject: [apeced] Oral thrush
> To: apeced@yahoogroups.com
> Date: Monday, 8 June, 2009, 1:38 PM
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> Hi All,
> I hope this message finds you well. I am writing with questions on
candidiasis. I am not certain how to successfully manage oral thrush. My son who
is now 2 and half years old has had oral thrush since he was 9 months old. We
would treat it and then each month it would return. It was pretty obvious when
it started with a white on his tongue and white spots in the pockets of his
cheek. Now he appears to only get a transparent white or grey film on his tongue
with no white spots in the pockets of his cheek. Sometimes his voice is hoarse
too. I don't want to leave it untreated but I sometimes question myself if it is
thrush. If I take him to the doctor they say that thrush would be in the cheeks
but I disagree; I think if is really bad it would be. Do any of you have
experience as to what thrush can look like and when to treat it. If some of you
have experienced it yourself maybe you can better explain to me how I can be
sure it is thrush. Any advice on how
> you all treat it? Is it better to treat right away because can it get out of
contol and effect the esophagus or liver etc? Does oral thrush hurt or bother
the children? Do APECED children typically grow out of it and when? Is there
anyway to support the immune system with diet or probiotics etc. Has anyone had
success with this? Any advice would be greatly appreciated.
> Thanks again so much for your help. I appreciate so much that there is a group
I can reach out to.
> Warm regards, Susan
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