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Oral thrush   Message List  
Reply | Forward Message #529 of 593 |
Re: [apeced] Oral thrush

dear rubiose and family, two of my children have apeced and both ahve oral thrush presenting in various forms-the white spots, coating on tongue and inner cheeks to a vague coating on the upper palate and tongue associated with dry mouth and occasional reflux signs. we live in Ireland nad the treatment recommeded to us was DIFLUCAN (anti-fungal) high dose for 2 weeks. this always worked. my eldst(she is 10) now has Gastro-intesetinal problems with recent endoscopy by GI specialist showing candidia growth in upper and middle oesophagus. she now is taking long term dose of Diflucan for 6 months. we all have adapted a yeast restricted diet and this definitely helps and she feels much better. they also attended a dental clinic in Trinity College Dublin(dental Hospital) TCDfor a clinical trial to investigate the link with candida and apeced. although my gang were negative on the swabs they still attend yearly for review. they suggest using KIN mouthwash but not sure if you use with very young children. woudl you ahve access to a good dental research hospital who could assess the type of candida that your son has and recommend the appropriate treatment. Dr. claire Healy is the Professor in dentristry in TCD.
because my daughter has the GI symptoms now i would follwo up the treatment and go with your instinct. we are usually right as parents. take care and good luck with everything,
--- On Mon, 8/6/09, rubiose <rubiose@...> wrote:

From: rubiose <rubiose@...>
Subject: [apeced] Oral thrush
To: apeced@yahoogroups.com
Date: Monday, 8 June, 2009, 1:38 PM

Hi All,
I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son who is now 2 and half years old has had oral thrush since he was 9 months old. We would treat it and then each month it would return. It was pretty obvious when it started with a white on his tongue and white spots in the pockets of his cheek. Now he appears to only get a transparent white or grey film on his tongue with no white spots in the pockets of his cheek. Sometimes his voice is hoarse too. I don't want to leave it untreated but I sometimes question myself if it is thrush. If I take him to the doctor they say that thrush would be in the cheeks but I disagree; I think if is really bad it would be. Do any of you have experience as to what thrush can look like and when to treat it. If some of you have experienced it yourself maybe you can better explain to me how I can be sure it is thrush. Any advice on how you all treat it? Is it better to treat right away because can it get out of contol and effect the esophagus or liver etc? Does oral thrush hurt or bother the children? Do APECED children typically grow out of it and when? Is there anyway to support the immune system with diet or probiotics etc. Has anyone had success with this? Any advice would be greatly appreciated.
Thanks again so much for your help. I appreciate so much that there is a group I can reach out to.
Warm regards, Susan


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Mon Jun 8, 2009 10:34 pm

anneging5
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Message #529 of 593 |
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Hi All, I hope this message finds you well. I am writing with questions on candidiasis. I am not certain how to successfully manage oral thrush. My son...
rubiose
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Jun 8, 2009
12:39 pm

dear rubiose and family, two of my children have apeced and both ahve oral thrush presenting in various forms-the white spots, coating on tongue and inner...
anne ging
anneging5
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Jun 8, 2009
10:36 pm

Hi Anne, Thank you so much for your reply. That was great information. We have been treating Joseph with Diflucan for his thrush too, however only for a few...
rubiose
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Jun 11, 2009
12:24 am

Hi Susan, The only question I can answer is about kids growing out of the yeast issues My husband is 25 and still has problems with thrush. It usually only...
Liz and James Yarker
hypodogs
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Jun 11, 2009
1:13 am

Liz thanks for your email.  It is interesting that you say that your husband has had liver problems in the past becasue that is also something on my mind. ...
SE Rubio
rubiose
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Jun 11, 2009
3:12 am

I probably can't be that much help with the liver questions as in that (as in everything) James was unusual lol. In 2006 James had pain which got...
Liz and James Yarker
hypodogs
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Jun 11, 2009
9:18 am

Hi Liz and Susan, Liver involvement is one of the diseases associated with APS Type 1 unually called autoimune hepatitis. Tara's liver enzymes would vary...
lsquittman
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Jun 11, 2009
6:03 pm
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