Hi Vicki,
I just checked with Tara. She takes 2 mcg's of Rocaltrol pills(4 .5mcg. a day)
but no oral calcium any more. This keeps her calcium levels in the 9's. But her
daily Cortef dose is now 40 mgs which is why the Rocaltrol is so high.She does
have magnesium issues also and takes magnesium daily but dosage is dependent on
most recent blood work.
Has Ryan's magnesium level been checked recently?
Tara also has calcification of the kidneys from too much Vit. D and diarrhea. So
I agree medications have to be carefully watched. I wish Tara had had more
frequent 24 hour urine tests to monitor hr kidneys.
Good luck to Ryan.
Best wishes,
Linda





--- In apeced@yahoogroups.com, "vrobson1" <vrobson1@...> wrote:
>
> --- In apeced@yahoogroups.com, "juliap99" <richardson.jrr@> wrote:
> >Hi Julia,
>
> I guess it could be that Ryan's dose of calcitriol needs to be increased now
that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at a
time when I thought you could only absorb 500mg at a time. His calcium levels
always stays on the low side also and I believe it is carbonate. He took citrate
before and his endo told him to take caltrate w/o vit D. which was hard to find.
We will get it all sorted out hopefully very soon.
> Thanks for all the help,
> Take care, Vicki
> > Hi Vicki,
> >
> > I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always
went low on 4 - I've had to increase in my late 20's (but I'm also female)
> >
> > I take calcium citrate (better absorption) - 1200 mg/day (an my endo just
informed me that is the absolute MINIMUM for calcium supps per day)
> >
> > With this regimen, my calcium is a little bit below normal levels - but this
is where my endo wants it - she says that a little bit below normal levels is
the newest treatment protocol for hypoparathyroidism. So Ionized calcium normal
is 4.5-5.5 as normal and mine is at 4.3 and that is where she wants it. Normal
blood calcium is 8.5-10.0 and mine runs 8.1-8.2 - again where she wants it. All
my DEXA scans look great and bone density looks good.
> >
> > 4000-6000 seems ghigh for calcium supplementation. Is it carbonate or
citrate? The citrate form of calcium is better absorbed and easier on the GI
tract. A goodbrand is Citracal.
> >
> > Hope you get it all sorted out! I know the feeling of not having your doc
around and not trusting another's opinion! Very unnervin and concerning.
> >
> > Julia
> > 28 yo
> >
> > --- In apeced@yahoogroups.com, "vrobson1" <vrobson1@> wrote:
> > >
> > > Hi,
> > >
> > > My son was released Wed after two days in the hospital with low calcium &
potassium. His endo is out of town but another endo saw my son and put him on
double dose of calcitriol(4 -.25 per day) plus 4000-6000 mg of calcium. I am
very nervous about him absorbing too much calcium. Any thoughts?
> > >
> > > Thanks, Vicki
> > >
> >
>