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Concerned   Message List  
Reply | Forward Message #524 of 593 |
Re: Concerned

--- In apeced@yahoogroups.com, "juliap99" <richardson.jrr@...> wrote:
>Hi Julia,

I guess it could be that Ryan's dose of calcitriol needs to be increased now
that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at a
time when I thought you could only absorb 500mg at a time. His calcium levels
always stays on the low side also and I believe it is carbonate. He took citrate
before and his endo told him to take caltrate w/o vit D. which was hard to find.
We will get it all sorted out hopefully very soon.
Thanks for all the help,
Take care, Vicki
> Hi Vicki,
>
> I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always went
low on 4 - I've had to increase in my late 20's (but I'm also female)
>
> I take calcium citrate (better absorption) - 1200 mg/day (an my endo just
informed me that is the absolute MINIMUM for calcium supps per day)
>
> With this regimen, my calcium is a little bit below normal levels - but this
is where my endo wants it - she says that a little bit below normal levels is
the newest treatment protocol for hypoparathyroidism. So Ionized calcium normal
is 4.5-5.5 as normal and mine is at 4.3 and that is where she wants it. Normal
blood calcium is 8.5-10.0 and mine runs 8.1-8.2 - again where she wants it. All
my DEXA scans look great and bone density looks good.
>
> 4000-6000 seems ghigh for calcium supplementation. Is it carbonate or
citrate? The citrate form of calcium is better absorbed and easier on the GI
tract. A goodbrand is Citracal.
>
> Hope you get it all sorted out! I know the feeling of not having your doc
around and not trusting another's opinion! Very unnervin and concerning.
>
> Julia
> 28 yo
>
> --- In apeced@yahoogroups.com, "vrobson1" <vrobson1@> wrote:
> >
> > Hi,
> >
> > My son was released Wed after two days in the hospital with low calcium &
potassium. His endo is out of town but another endo saw my son and put him on
double dose of calcitriol(4 -.25 per day) plus 4000-6000 mg of calcium. I am
very nervous about him absorbing too much calcium. Any thoughts?
> >
> > Thanks, Vicki
> >
>





Sun Jun 7, 2009 3:58 am

vrobson1
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Message #524 of 593 |
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Hi, My son was released Wed after two days in the hospital with low calcium & potassium. His endo is out of town but another endo saw my son and put him on...
vrobson1
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Jun 6, 2009
2:26 pm

Wow, that's a lot of calcium. When doctors have made changes with Julia's calcium and calcitriol too quickly she has been affected. I would ask for daily...
Orange, Jennifer
bandorangej
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Jun 6, 2009
2:31 pm

... I agree, it is a lot of calcium. I have decided not to give him that dosage as Ryan was hospitalized several years ago while we were on vacation in Hawaii...
vrobson1
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Jun 7, 2009
3:26 am

Hi Vicki, Sorry to hear about Ryan. Anything different happen that might have caused the drops? This happened to Tara a lot but they would raise the calcium...
lsquittman
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Jun 6, 2009
4:04 pm

... Ryan did have a stomach virus last Friday which I am sure started the problem but it didn't last but one day. He started feeling tingling in his arms &...
vrobson1
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Jun 7, 2009
3:38 am

I think it is important to listen to our doctors. But, I want to share my experience with calcium. I have had hypoparathyroidism since age of 9. My doctors for...
Dede Leydorf
dleydorf
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Jun 6, 2009
5:21 pm

... I am sorry to hear about your kidneys after all these years of trusting what your doctor told you. It is so difficult to know what it best for us. We...
vrobson1
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Jun 7, 2009
3:50 am

Hi Dede, et.al., Tara has rather severe calcification of the kidneys from too much Vit. D and too much diarrhea. She started on Rocaltrol when she was 4 years...
lsquittman
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Jun 7, 2009
10:32 pm

Hi Vicki, I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always went low on 4 - I've had to increase in my late 20's (but I'm also female) ...
juliap99
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Jun 6, 2009
10:16 pm

YES - the body can only absorb 600 mg a time of calcium - so if you're taking a lot, you'd have to srpead it out over the day to get it in - I've also read...
juliap99
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Jun 6, 2009
10:20 pm

... I guess it could be that Ryan's dose of calcitriol needs to be increased now that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at...
vrobson1
Offline Send Email
Jun 7, 2009
3:58 am

Hi Vicki, I just checked with Tara. She takes 2 mcg's of Rocaltrol pills(4 .5mcg. a day) but no oral calcium any more. This keeps her calcium levels in the...
lsquittman
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Jun 7, 2009
10:22 pm

Hi Linda,   Ryan's endo raises his oral calcium when his levels are low instead of his calcitriol. That concerns me very much. He has not had his magnesium...
Vicki Robson
vrobson1
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Jun 8, 2009
1:52 pm
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