I think it is important to listen to our doctors. But, I want to share my experience with calcium. I have had hypoparathyroidism since age of 9. My doctors for years had me on very high dosage, about (8) 600mg pills a day or so for years. It may have been that more was needed during my growth years. But, I remained on that level until my mid-twenties when I started to experience the early stages of kidney failure. Yet, the endocrinologist I was with was unalarmed by my tests and kept me at the dose. Finally, in my mid 30s I went to ucsf, and the director of endocrinology was agast at the level of calcium I was taking and reduced my intake down to about one third of this to about 1500 per day. The doctors I consulted said that all the body can absorb is 1500 max day, no matter how much you injest, and the rest is just more work for the kidneys. I was terribly
ill for about a year during this process of taking less as my body had to adjust to this new level. But, after I adjusted, I felt much better with more energy. The damage to my kidneys however, is permanent. I now take 1000 mg a day since my doctors are concerned for my kidneys and want to make them last. But, long story short, live in Europe, and feel fine and in fact better on this dose, but they check my kidneys regularly and it worries me. I did not need that load all those years after adolescence was necessary, and it is questionable if i needed it in my youth either. I am making restitution with my kidneys, now and watching and waiting.
--- En date de : Sam 6.6.09, Orange, Jennifer <jorange@...> a écrit :
De: Orange, Jennifer <jorange@...> Objet: Re: [apeced] Concerned À:
apeced@yahoogroups.com Date: Samedi 6 Juin 2009, 16h30
Wow, that's a lot of calcium. When doctors have made changes with Julia's calcium and calcitriol too quickly she has been affected. I would ask for daily bloodwork to make sure his calcium levels don't change too quickly. Good luck! Jennifer Jennifer Orange Torys LLP
From: apeced@yahoogroups. com To: apeced@yahoogroups. com Sent: Sat Jun 06 10:26:02 2009 Subject: [apeced] Concerned
Hi,
My son was released Wed after two days in the hospital with low calcium & potassium. His endo is out of town but another endo saw my son and put him on double dose of calcitriol(4 -.25 per day) plus 4000-6000 mg of calcium. I am very nervous about him absorbing too much calcium. Any thoughts?
Thanks, Vicki
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Hi, My son was released Wed after two days in the hospital with low calcium & potassium. His endo is out of town but another endo saw my son and put him on...
Wow, that's a lot of calcium. When doctors have made changes with Julia's calcium and calcitriol too quickly she has been affected. I would ask for daily...
... I agree, it is a lot of calcium. I have decided not to give him that dosage as Ryan was hospitalized several years ago while we were on vacation in Hawaii...
Hi Vicki, Sorry to hear about Ryan. Anything different happen that might have caused the drops? This happened to Tara a lot but they would raise the calcium...
... Ryan did have a stomach virus last Friday which I am sure started the problem but it didn't last but one day. He started feeling tingling in his arms &...
I think it is important to listen to our doctors. But, I want to share my experience with calcium. I have had hypoparathyroidism since age of 9. My doctors for...
... I am sorry to hear about your kidneys after all these years of trusting what your doctor told you. It is so difficult to know what it best for us. We...
Hi Dede, et.al., Tara has rather severe calcification of the kidneys from too much Vit. D and too much diarrhea. She started on Rocaltrol when she was 4 years...
Hi Vicki, I'm on 1.25 mcg of calcitriol/day (that's 5 pills of 0.25 mcg) = I always went low on 4 - I've had to increase in my late 20's (but I'm also female) ...
YES - the body can only absorb 600 mg a time of calcium - so if you're taking a lot, you'd have to srpead it out over the day to get it in - I've also read...
... I guess it could be that Ryan's dose of calcitriol needs to be increased now that he is 26. Ryan's endo also tells him to take two 500-600mg of calcium at...
Hi Vicki, I just checked with Tara. She takes 2 mcg's of Rocaltrol pills(4 .5mcg. a day) but no oral calcium any more. This keeps her calcium levels in the...
Hi Linda, Â Ryan's endo raises his oral calcium when his levels are low instead of his calcitriol. That concerns me very much. He has not had his magnesium...
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