Hi Jerry,
Welcome to this board. I was hoping to attract people with APECED
so we could share information and experiences and act as a
supporting forum whenever needed. The other boards do deal with
Addisons, HPTH, Diabetes, etc., but the members have different needs
and problems.
My daughter has
HPTH- age 3,
Addisons- age 6,
Rheumatoid Arthritis- age 14,
Pernicious Anemia- age 26
Diabetes Type 1- age 32
But her biggest problem was the malabsorption at ages 26, 30 and 32.
She is doing well at the moment although she is more tired than she
used to be. She just got married and is working part time.
I would love to hear more about you and how APECED has affected you
and if you have any questions.
perhaps there are other people out there who don't feel comfortable
posting on a board but could benefit from our experiences.
Best wishes,
Linda