Hi Linda,

I had cataracts whne I was younger and had my whole lens removed in
both eyes. Due to extended contact wearing, my corneas are being
damaged and thickening. I think this is due to having to wear
contacts daily for 22 years. BUT I also had a retina scare about 8
months ago - I kept seeing a black dot for days - it would not go
away and my coworker said it could be a detached retina. My
opthamologist said that it would not surprise him if I did have
retinal issues considering my eye history - I think though that the
problems with my eyes were partly due to undiagnosed
hypoparathyroidism and very low calcium levels for so long. I do know
that I see a cornea and retina specialist too who is "watching" my
eyes yearly for changes - whatever that may mean.

Keep me posted on what happens. It seems Tara and I may have similar
presentations.

Julia

--- In apeced@yahoogroups.com, "lsquittman" <lsquittman@...> wrote:
>
> I didn't want to confuse the issues so I thought I would post my
> question separately. Something new has popped up with Tara. We are
not
> sure if it is APECED related but since most things that happen to
her
> relate back this probably does too. She has lost a lot of
peripheral
> vision in one eye and has many small cataracts in the same eye. She
has
> been in glasses for both near and far vision for several years but
> never had trouble with light or sensitivity.She went to an
> optholmologist who referred her to a cornea and retina specialist.
Her
> cornea is fine but the retina specialist may order further tests.
He
> didn't tell her what he thinks because he wants to confer with her
endo
> and optholmologist. Does this sound familiar to any of you?
> Thanks.
> Linda
>