Vanessa,

Do I work at OSU with you :)

Julia

--- In apeced@yahoogroups.com, "unicornvr" <unicornvr@...> wrote:
>
> Hi all. I have been diagnosed with hashimoto's, adrenal
insufficiency
> and ulcerative colitis. Diagnosis for thyroid adrenal at 16 and
> colitis at 23 (25 now). Oh and eczema since birth. I have been on
> steroid treatment since age 16, but my current doctor either does
not
> believe I have adrenal insufficiency, or does not wish to treat it.
> He has been trying to wean me off steroids for about 2 years. I
have
> had 3 or maybe 4 ACTH stim tests in the past 2 years. My original
> dose was 2.5mg 2x/day prednisone and now it's 15mg hydrocortisone
> (morning only).
>
> I haven't been good about keeping up with my records, but the ones I
> have from the past year show high testosterone (I'm female) at
> 158ng/dL and low DHES (27ng/dL). Despite the high levels, I don't
> have masculinization. I also have never had a normal cycle, and can
> go up to 18 months w/o a period. I honestly don't feel too bad on
the
> 15mg hydrocortisone. I just have some fatigue and pretty low blood
> pressure. At one point I was on a low dose of pred and I felt
> slightly nauseous all the time and never hungry.
>
> Since I've never had a normal cycle, I wonder if it could be PCOS
> instead of adrenal insufficiency. I have had my ovaries checked
> before via ultrasound but I don't think the doctors found anything
> exciting. I hope I can dig up some interesting info in the group!
>
> -Vanessa
>