Hi everyone,
Just wanted to send an email about a new social network for Carers.
The new site is http://www.carers.ning.com if enough people who care
for people with APECED join we can start a group for us all :).
Hope everyone is well. James has started on new Addison's meds and
that has made his diabetes control much better. The question I have
is that the new eye specialist is talking about starting some kind of
systemic immunosupression. He didn't say much more than that as he
wanted to talk to James's Endo first. So I just wanted to know if
other people are on systemic immunosuppession, and what they think
about it. It sounds a bit scarey to me.
Thanks,
Liz