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Reply | Forward Message #367 of 593 |
Re: Help Needed

Please let us know any way we can help you and get you the information
you need. My daughter is 36, graduated with a BA in Merchandising and
another degeree in business. Like Julia she was on a swim team, diving
team, took tons of dance classes, played soft ball, went to camp,
traveled to Europe, Club Med, etc. She's had a bit more difficulty as
an adult but she is coping well at the moment. She has a five month old
daughter through a surrogate and loves life.
Another supportive web site, started by a member of this group is
http://www.apstype1.org/
If you tell us what country and area you live in we may be able to help
with additional resources.
Best wishes as you endeavor to get the best care and treatment for your
little one. Time is on your side with all the advances and research
being conducted. There is a lot of room for optimism and hope.
Linda




Mon Jun 23, 2008 1:26 am

lsquittman
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Message #367 of 593 |
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Hello, our 19 month old son was just diagnosed with APECED. It was confirmed with a genetic test. His symptom was candidiasis - recurring, a rash that lasted 6...
rubiose
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Jun 21, 2008
2:54 am

Welcome to the group. I am sorry to hear about your son. The diagnosis is very hard to come to terms with, especially with all of the different symptoms...
Orange, Jennifer
bandorangej
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Jun 21, 2008
1:47 pm

Hello, My name is Donna and my son Ethan was diagnosed in january, he is 6 years old. It took the doctors 5 years to diagnose him we went threw alot of...
ethanbaggett02
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Jun 22, 2008
3:12 am

Hi, My name is Julia - I live in Ohio and am now 27. I was diagnosed with APECED at age 5. I first showed symptoms of candidiasis, like your sone. It is...
juliap99
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Jun 22, 2008
12:40 pm

Please let us know any way we can help you and get you the information you need. My daughter is 36, graduated with a BA in Merchandising and another degeree in...
lsquittman
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Jun 23, 2008
1:26 am

We are new to yahoo groups - and realized in an effort to reply to you all - we mistakenly started a new thread entitled "Thank you......" We wanted to be sure...
rubiose
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Jun 23, 2008
2:29 am

HI,   My 25 yr old son also has APS1.  We live in Houston, Tx. His also began at an early age  with yeast and eye problems but was not diagnosed until age...
Vicki Robson
vrobson1
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Jun 23, 2008
2:34 am
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