Hello,
My name is Donna and my son Ethan was diagnosed in january, he is
6 years old. It took the doctors 5 years to diagnose him we went threw
alot of hospital stays that started out with high fevers and
candidiasis.And adout 3 months ago they diagnosed him with
addison's,hypoparathyroidism,he all so has the loss stools.The doctors
are working on it now.If you tell me were you are from maybe Ethan's
doctors can help.We live in Chatsworth Georgia.
Donna

- In apeced@yahoogroups.com, "rubiose" <rubiose@...> wrote:
>
> Hello, our 19 month old son was just diagnosed with APECED. It was
> confirmed with a genetic test. His symptom was candidiasis -
recurring,
> a rash that lasted 6 months and soft stool chronically. My wife and I
> are seeking where to turn for the best medical care and useful
> information from those who have this. Any stories and prognosis would
> give us hope. Presently we are very scared from what we read here.
> We would greatly appreciate any support - and any networking or
support
> groups that can help us. Can people live long quality lives with this
> disorder? Please help
>