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apeced · APECED SYNDROME
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Reply | Forward Message #363 of 593 |
Hello, our 19 month old son was just diagnosed with APECED. It was
confirmed with a genetic test. His symptom was candidiasis - recurring,
a rash that lasted 6 months and soft stool chronically. My wife and I
are seeking where to turn for the best medical care and useful
information from those who have this. Any stories and prognosis would
give us hope. Presently we are very scared from what we read here.
We would greatly appreciate any support - and any networking or support
groups that can help us. Can people live long quality lives with this
disorder? Please help
Sat Jun 21, 2008 2:54 am

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rubiose
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Forward 		Message #363 of 593 |
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Hello, our 19 month old son was just diagnosed with APECED. It was confirmed with a genetic test. His symptom was candidiasis - recurring, a rash that lasted 6... 		rubiose
Offline Send Email 		Jun 21, 2008
2:54 am

Welcome to the group. I am sorry to hear about your son. The diagnosis is very hard to come to terms with, especially with all of the different symptoms...
Orange, Jennifer
bandorangej
Offline Send Email 		Jun 21, 2008
1:47 pm

Hello, My name is Donna and my son Ethan was diagnosed in january, he is 6 years old. It took the doctors 5 years to diagnose him we went threw alot of...
ethanbaggett02
Offline Send Email 		Jun 22, 2008
3:12 am

Hi, My name is Julia - I live in Ohio and am now 27. I was diagnosed with APECED at age 5. I first showed symptoms of candidiasis, like your sone. It is...
juliap99
Offline Send Email 		Jun 22, 2008
12:40 pm

Please let us know any way we can help you and get you the information you need. My daughter is 36, graduated with a BA in Merchandising and another degeree in...
lsquittman
Offline Send Email 		Jun 23, 2008
1:26 am

We are new to yahoo groups - and realized in an effort to reply to you all - we mistakenly started a new thread entitled "Thank you......" We wanted to be sure...
rubiose
Offline Send Email 		Jun 23, 2008
2:29 am

HI,   My 25 yr old son also has APS1.  We live in Houston, Tx. His also began at an early age  with yeast and eye problems but was not diagnosed until age...
Vicki Robson
vrobson1
Offline Send Email 		Jun 23, 2008
2:34 am
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